So far things are going fairly well. Mostly, I'm just tired, and feeling a bit constipated. (I'm not, it's just that feeling in that area.) No particular food aversions, aside from having no appetite. I'm sure that'll change in not too long.
Joining The Crowd
#1
Posted 07 September 2009 - 07:24 AM
So far things are going fairly well. Mostly, I'm just tired, and feeling a bit constipated. (I'm not, it's just that feeling in that area.) No particular food aversions, aside from having no appetite. I'm sure that'll change in not too long.
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
#2
Posted 07 September 2009 - 07:27 AM
BTW, I won't tell anyone.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#3
Posted 07 September 2009 - 07:44 AM
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#4
Posted 07 September 2009 - 07:50 AM
#5
Posted 07 September 2009 - 08:36 AM
Congratulations.
I couldn't be happier for you
I've known since we became friends 5+ years ago on the board that this was a dream.
So glad it's come true.
Hugs
Judy in Philly
#6
Posted 07 September 2009 - 08:39 AM
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
#7
Posted 07 September 2009 - 11:32 AM
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
#8
Posted 07 September 2009 - 11:34 AM
Oscar Wilde
Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09
Celiac.com - Celiac Disease Board Moderator
#9
Posted 07 September 2009 - 11:45 AM
tarnalberry, on Sep 7 2009, 04:24 PM, said:
So far things are going fairly well. Mostly, I'm just tired, and feeling a bit constipated. (I'm not, it's just that feeling in that area.) No particular food aversions, aside from having no appetite. I'm sure that'll change in not too long.
Congrats!!!!!
..oh...and enjoy!!!!!!
Nikki
Husband diagnosed with Coeliac Disease 2004 by biopsy
Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)
#10
Posted 07 September 2009 - 11:51 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#11
Posted 07 September 2009 - 12:57 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#12
Posted 07 September 2009 - 03:20 PM
#14
Posted 07 September 2009 - 05:23 PM
diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006
But healthy and happy!

11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!
The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)
#15
Posted 09 September 2009 - 08:55 AM
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