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Soy/gluten Intolerant People, I Have A Question
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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

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I have a soy allergy and Yes, I get the same symptoms when I get glutened.

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction presents as a bright red rash and extreme itching.

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My soy and gluten reactions are similar, but different. My reactions to being glutened are usually delayed. My reaction to soy are more immediate, usually within the hour of consumption. As far as what the symptoms are for me, both exposures cause nausea, intestinal cramping and bloating, and usually diarrhea (more so with soy).

A gluten exposure will take the body (villi) weeks to recover from. For me, a soy reaction is usually cleared within 24 hours.

Michelle

Western Washington State

I am gluten/soy/dairy/beef-free

Daughter is gluten/corn/dairy-free

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My reactions to soy are much different than my reactions to gluten. Soy binds me up really bad but I don't get the same neuro effects and arthritic pain that I get from gluten. Soy also makes me feel like my intestines are swollen but doesn't give me the bloat and gas that I get from gluten. Gluten also makes my ataxia worse, makes my hair fall out and once I get D, about 3 days after contact, I then have 3 days of GI bleeding and pass clots. That doesn't happen with the soy. The soy reaction also passes fairly quickly with gluten I am sick for up to 3 weeks.

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Soy causes the symptoms I used to get with gluten...stomach cramping, diarrhea, and I am sick for at least 3 weeks...gluten now is mostly neurological symptoms, yet my tummy isn't right for 3 weeks to 4 months.

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

You may be actually reacting to MSG (found in all soy products) and other foods (whole foods) that contain naturally occuring glutamates. I recently discovered this through researching for info and reviewing my food/medication/cosmetics diary. MSG and aspartate (artifiicial sweeteners) are both strong excitotoxins to the brain and can cause GI and neuro problems/symptoms. After almost three years of suffering from myoclonus, I have recently made this discovery. Gluten (gluten grains), Dairy, corn, and soy have the higest level of glutamic acid.

"Whole Foods" containing high levels (which triggered my myoclonus) include: Shrimp and shellfish, Parmesan cheese (and many cheeses), mushrooms, tomatoes, Boar's head deli meats, Boar's head hot dogs, many chicken broths that contain yeast extract, products containing hydrolyzed vegetable or soy proteins or hydrolyzed "anything". Most nuts (cashews are the worst), most beans (but not all), gelatin found in capsules, ice cream and some gluten-free flours...and commerically produced gluten-free bread! Most toothpastes and tooth whiteners contain artificial sweeteners. I reacted severely to Aquafresh White trays two weeks ago. Many cosmetic products also contain glutamates. I am currently investigating my Garnier hair color because I see one ingredient that could be a strong possibility. There are so many products containing hidden Glutamates but it is well worth considering as you may find a substantial improvement in symptoms if you make a "connection" with this.

Sylvia ann

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My gluten reactions are annoying, my soy reactions are more extreme.

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Soy gets me faster than gluten with acne around my mouth and jaw line. I do recover within a day with soy but takes me a few days with gluten (fog and tiredness).

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction is worse and more immediate than my gluten reaction. For me soy even small amounts of soy trigger within about an hour stomach cramps, then within 3-4 hours anxiety and insomnia, and hot flashes. Larger amounts of soy trigger moderate myoclonus and panic attacks in addition. It takes me about 1 to 2 weeks to recover from soy reaction. The anxiety and insomnia are the last things to go.

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My soy reaction involved massive bloating, diarrhea and cramps so bad I thought I was having a baby. It doesn't last as long, usually a day.

My gluten reaction usually involves anxiety, nausea, sleeplessness, fatigue, shakiness and weakness. It usually lasts over a week.

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

I have the same problems with soy as Sylvia Ann has. If you take foods high in glutamates like soy and then process it, the glutamates are freed. If your sensitive to MSG (many people are and don't know it) you'll react to soy. Free Glutamates causes neurons or receptor cells to fire sometimes to the point of death. We have alot of these cells lining our digestive tract, along our heart, and across the brain or BBB.

Processed soy will in turn give me headaches, stomach distress and at night I'll wake up because my heart is beating like crazy in my chest. Then insomnia will follow. Not fun.

Gail

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    • I thought I would update you all.  I started to eat gluten shortly after this post.  I was miserable by the time I had my EGD.  The doctor gave a diagnosis after the EGD was completed, duodenitis, gastritis and hiatal hernia.  I had abnormal mucosa of the whole stomach and severe inflammation.  The biopsy results came back today, they stated early stages celiac disease.  I wonder what it would've shown if I wasn't on a gluten free diet for two years?  My doctor said he still wants me to come in for a talk, he doesn't really know if he should call it celiac disease since it's early stages....  WTH!  I've really got to find a doctor that specializes in Celiac Disease...    
    • thank you for the info, its very helpful to hear from someone else who has it and knows a lot about it. When you say I may be eliminating one problem vs 3, what would you think the other problems could be? It's frustrating because I even buy Uldis gluten-free bagels and what not and I still find myself reacting sometimes to that, I don't use butter but just gluten-free peanut butter, but like I said I don't know for sure if its from that or maybe something else. I have read on this site about a couple others that have had issues with uldis breads so could be that. but like you said I guess it can also just take awhile to get better. I read the other day that a lot of throwing up can put stress on your small intestine which can maybe cause your body to react to dairy, do you know anything about that or if that's true?
    • Thanks for the reply!  Yeah, I really should have gotten testing done before the elimination diet.  I had asked my previous doctor, but she didn't want to do it.  I was transitioning to a new insurance and couldn't get a doctor's appointment for awhile, so I thought I would just do the elimination diet.  After all, it might not have been gluten.  (<--that was my thought process...) Hindsight is 20/20.  I felt pretty good during those 3 weeks gluten free, and was not expecting how bad it would be when I added it back in.  Anyway, I found a new doctor and I think she would totally be willing to test me again 9 weeks out. I think she would also be willing to order the endoscopy if I brought her research and really pushed for it. Now that I know how good feeling good feels... I just can't see staying on gluten for another 9 weeks.  I honestly don't know how I would survive.  Even if it's not Celiac, and it's ONLY the wheat allergy... it's making my life absolutely miserable. Thanks again for the reply!  I think I'll go in Friday for the blood test and take it from there.
    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
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