Celiac And Colon Polyps
Posted 04 January 2004 - 04:33 PM
Posted 04 January 2004 - 05:00 PM
Unfortunately, most doctors are like the first one you mentioned. I had never heard of Celiac or gluten, after 30 years of seeing dozens of doctors for GI related problems. Then when I came acrossed it one day and it sounded like me I asked for testing, and at first it seemed no one knew what tests to order, then they ordered the wrong ones, then when I finally got the right ones ordered(I had to take a list of tests in to my doctor so he knew what to order!) they came back negative. But long story short, more testing showed I did in fact have celiac disease and am much better off for knowing. I have already suffered too long, but should be able to heal, my children won't have to suffer so long.
Now as for the colon polyps, I did not have any during my recent colonoscopy (Thank God), but it is not uncommon to find in an undiagnosed celiac. Now I assume you are on the gluten free diet? So you should be feeling somewhat better, right. I would like to say that you will not have any more polyps, but I just don't know. I do know that you reduce your risk of developing intestinal cancer by staying 100% gluten free. So it is good that you be gluten-free, and good that your doctor recheck you in May, but it is not good for you to dwell on the thought of developing more polyps, or of it turning into cancer. It sounds like you have a great doctor and as long as you take care of yourself, then you are doing the best you can. The rest is in God's hands. I am glad you are here at this site. There are a lot of supportive people here and we are all in the same boat.
(my daughter really wanted me to use the heart smiley!)
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 04 January 2004 - 06:25 PM
Gluten Free since 12-31-2002!!
Posted 07 January 2004 - 02:30 AM
The theory is that if my dad and his brother had been tested soon enough they would have been able to have the polyps removed without cancer developing.
You are wise to be concerned, and I feel that adhering strictly to a diet consistent with what you can tolerate (after of course learning what those foods are, and the list may be longer than what you think now) will certainly lessen your anxiety and apprehension.
Katie Couric is on such a campaign to rid this country of colon cancer, and my sister was so persistent that my brother and I went for testing. I had experienced colitis for years. I hope you find your path to good health and peace of mind. Please listen to what your body is telling you to avoid, and as the other writer mentioned, we are in God's Hands. He is faithful to help us each day. Welda
Posted 07 January 2004 - 11:01 AM
I'm so new to celiac disease that I can offer no help as far as research is concerned. I just found out in November and what I have learned about the disease has come from the internet.
I have suffered indigestion problems for the last 30 years and got tired of being told they couldn't find anything, so I stopped complaining and just dealt with it the best I could. Since being diagnosed and going 100% gluten-free I have done fine. I am on medication for the damage to my stomach because of not being diagnosed sooner but have been told that If I stay 100% gluten-free my stomach will heal. It's just a matter of time.
Posted 07 January 2004 - 05:32 PM
God Bless Everyone
Posted 12 January 2004 - 12:40 AM
Posted 27 January 2004 - 10:37 AM
My sister in law also complains of stomach problems,pain, diarreah, the whole nine yards. She also refuses to be tested. She has had kidney stones, gall bladder removed and a hysterectomy. She is only 43 years old.
I HOPE neither has celiac disease, however, my son's diagnosed celiac disease had to come from somewhere!!! Anyone have any thoughts or recommendations to get them to be tested? Thank you.
Posted 27 January 2004 - 12:03 PM
gluten-free since November 1, 2003
Posted 27 January 2004 - 02:22 PM
How old is your son with celiac disease? I understand what it is like to have this situation as when I was diagnosed with celiac disease my doc told me to have my 9 yr. old tested as well due to the fact that she displays some classic symptoms. The test came back negative, but I noticed when she is gluten-free she does much better. anyhow, when I told my mother in law that I was going to have her tested she thought that I was out of my mind. In dealing with this, I have discovered that there are so many people out there who do not take this as a bonafide serious disease. It is a shame. Maybe that is part of the reason that they turn the other ear. Perhaps collecting as many articles on the subject, (Womans Day has an article about it as well in their Feb 17th edition), and presenting it to them. You will then have done all you can and must worry about your son. Obviously he got it from their side if your side of the family has no history due to the high genetic link. This disease however, still remains something that is in the dark. I actually had a friend tell me that once I healed my stomach that I could go back to have "a little" gluten here and there and guess what? She is a reg. nurse and has been for 18 years! Good luck. Remember though, you can only do so much and then guess what? It is up to them, they are big girls. Take Care. Natalie
Posted 02 March 2013 - 06:31 AM
Posted 02 March 2013 - 06:39 AM
I recently self diagnosed a gluten sensitivity and have been gluten free for 2 months. I waited until my celiac bloodwork came back negative but then went gluten free anyway. 2 days ago I had an upper endoscopy but I don'tknow if my biopsies would show celiac at this point even if I had it. I also had a colonoscopy (I'm a 32 yo female, not normally high risk, but my brother had 3 polyps removed at 26 about 5 years before he went gluten free). They did find and remove one and I'm awaiting those results as well. So I guess I'm saying that I don't know if I have celiac or non celiac gluten sensitivity, but I had a polyp so it's something to watch for. Good luck with your health!
Just an FYI - you are responding to a 9 year old thread. I don't think any of these posters have been on in years.
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