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Specific Carbohydrate Diet (SCD)
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2,415 posts in this topic

Wow, gobbie, what do you eat?

Here is a link to the breaking the vicious cycle website that will give you info on the SCD, including the leagl foods list:

http://www.breakingtheviciouscycle.info/

Thank you so much for the link, checking it out now.

What do I eat.. I know :0

My menu is always the same and very limited if I want to look after my health.

I can only eat a certain amount of varied fresh vegetables and fruits.

Ofcourse not all the kinds as I still have few allergies even to fresh stuff like nuts lol.

Things are alright as long as I am eating at home.

The major problem is dining out cos I can't eat anything lol.

Hard to socialise that way..

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May I ask what IMO is?

It means "In my opinion."
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It means "In my opinion."

Oh, thank you!

lol.

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Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

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Hi, this is my first post! I've just spent a good week researching SCD like crazy and I think I'm finally ready to tackle the diet, slowly but surely. I've been going back and forth about it, my symptoms are not as severe with most of the people I read about, but I have had bloating and gas filling up my stomach every time I eat, no matter what I eat for almost 2 years, and I know I need to clear out my system and heal (and get rid of those nasty grains and starches). I also was very apprehensive at first, because over the past year I have lost about 15 pounds (I was not overweight) so I was scared that I would get to under 80 pounds (i'm 4'11 and female) with the diet. So the question was - should I do the intro and go through the stages slowly or not? I decided that yes, my body needs a reboot, and especially after reading this site that you recommended:

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

I understand that for true healing to take place I should follow their advice about progressing through the stages very slowly. It seems like the e-book has a lot of great info, and the free chapter kind of sucked me in. Have you downloaded the whole e-book? I'm very tempted to buy it, since it gives a lot of step by step info about how to progress through stages, how to cook food, etc. I know a lot of people say, do whatever is best for you, but I need structure damnit! Anyway, I was wondering if anyone had any success following the advice of the book and would it be worth it to purchase it?

I'm so happy to be finally part of the conversation, I've been reading this forum for a week straight and only got up to page 70! Lots of great people, very interesting info!

~Ellen

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I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

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Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

I have been following the SCD for ten years and probably will follow it for life. I have been able to add a few things after all this time but don't do it often. Please be aware the blog you mention is written by people who have not been on the SCD diet for a long time and all the information may not be applicable to a strict version of SCD. The gentlemen have written a book which claims to tell you what Elaine Gottschall left out. Elaine researched the SCD for nearly four decades and it is presumptuous to assume one knows what she left out. The authors certainly seem very enthused and sincere and deserve praise for their extensive and interesting articles. If you want to verify authenticity on SCD foods supplements and instructions, refer to:

www,breakingtheviciouscycle.info

www.pecanbread.com

Some of the SCDLifestyle information has been gleaned from these two websites above in addition to the book on SCD, "Breaking the Vicious Cycle." Use extreme caution with store bought foods and know you are using them at your own risk even if the ingredients have been verified.

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I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

http://www.celiac.com/authors/143/Carol-Frilegh

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Hi there,

just wondering if anyone has had success going off of the diet? I believe in its validity but don't want to restrict myself forever.

Any advice would be appreciated!

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I have been on 100% SCD doing the stages since august 09.

Now I am able to tolerate 8 vegetable (boiled to death..) and lean meat + white fish :)

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It looks like no one has been on this thread for a while, but I was hoping that maybe some of you who have tried the SCD would tell your story. That is if it worked for you or not and if you have any advice about it.

I am going to buy the book today and I think this is the most hopeful thing I have come across since I have not had any improvement from going gluten free.

I was diagnosed with Celiac November 2009 and have been gluten free for 11 months.

Along with taking gluten out of my diet I have also taken out many many other food groups including all the top problematic ones.

Thanks for any replies!

~Sarah

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I am wondering if this diet helps Candida issues and if not, how I can also kill the Candida while on the SCD diet? Anyone have experience with this?

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Hello, I am new here. My daughter has recently become ill with what we will only be able to assume is (partly) Celiac or severe gluten intolerance. Prior to July, she was a fairly healthy (though very thin) child (age 10), with her only major complaint over the years being horrible canker sores that would take over her mouth on a regular basis (I have always suffered them as well, as did my father).

In July she suddenly became very ill with many digestive symptoms. To make the long story short, we know that she carried the HLA DQ-2 and HLA DQ-1 alleles, and that she now reacts violently to gluten with digestive symptoms as well as horrible migraines and peripheral neuropathy.

She is 100% gluten-free and will remain so, so we decided to forgo biopsy as it seems to be a risk with little benefit, since she clearly needs to be gluten-free either way.

The only other thing we know is that she shows evidence of a prior EBV infection, perhaps that was what started this whole mess?

On to my point in posting on this thread. I've read quite a bit about GAPS and SCD over the months she has been sick (she is not completely better, though much improved on the gluten-free diet).

What I am wondering, as we consider this option and discuss going through such a diet with her- has anyone here actually been "cured" of celiac disease with this diet? I understand that by nature these diets are gluten-free and very easy on the digestive system, so I understand that she may well benefit from the diet in making her "all better", but I am curious about the idea that after a couple of years, perhaps she might be able to all things, simply being sure grains are "properly prepared" and a small part of her diet, etc.

I'd welcome any thoughts on this, thank you for your time.

~Patty

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I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

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I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

Happy to hear that you're feeling better. I had the same reaction! I didn't have to stay on the diet forever. I started adding other foods back in at about 11 months. I'm still mostly SCD, but not completely. I feel great now!

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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