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Specific Carbohydrate Diet (SCD)


AliB

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jmd3 Contributor
My only thought is if you have not been eating a lot of almonds, then maybe you just ate too much at a time. You don't need to eat any nut flours on the SCD, they are simply an option.

Remember, the SCD is not so much about what you eat as what you do NOT eat.

I can eat any type of nut, have a bit of trouble with cashews, I stay away from those - they are suppose to be the hardest digested I am told. I usually only eat raw nuts, except for pistachios.

I was just making some things with the almond flour that we/my family has been doing without for awhile now. Rolls - In the healing foods book there is some wonderful receipes "crusty onion rolls", they are wonderful. I just ate one of them, and wham, it felt like I had been in a boxing match, or bear hugged I was in so much pain! I stopped the almond flour and in a few days things cleared up for me. Perhaps it is the almond flour that I am using, not my own, but bob's ???

If I eat to much yogurt it doesn't fair to well. I have backed off - I eat several spoonfuls a time morning and night. I was eating way to much when I first started.... My daughter does quite well with when she eats it faithfully, tons of allergies, her sneezing stops without incident... if she stops eating the yougurt, then it comes back. I have made goats yogurt, and not having luck with it, but figured out I was heating it to high temp wise, so I will try again sometime in the future. Looking into the different types of probiotics to culture it from now too.

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pele Rookie

So do you think the almond flour had something else in it?

Interesting about your daughter and sneezing. When I did a dairy experiment awhile back it gave me a runny nose along with fatigue and brain fog.

You can do the SCD without dairy if you prefer. You can culture other things besides milk, like cabbage or coconut milk. Or take probiotic pills or drink kombucha.

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mftnchn Explorer
Hi, I've been following this diet for just over two weeks now. Before that I had been gluten-free for about 6-7 years and wheat free before that for a few years.

I just need reassurance. Before I had completely eliminated diarrhea problems unless I accidentally ate gluten. However since starting the diet I have had 2 occasions that start off with painful bloating, then quickly needing to void first yeasty white stuff then solid stools and finally diarrhea. This time the diarrhea had quite a bit of white almost jellyfish-like substance floating in it. I'm hoping it's just parasite/yeast "die off", but I am worried I have made myself intolerant of certain foods that I could tolerate before.

These episodes seem to follow having butter in the morning, and I have had aches after having coconut oil in the morning too. I've just introduced yoghurt, but I'm hoping it was the butter as yoghurt seems to be an important part of the diet. I need to start keeping a food diary. Having read through a bit of this thread it seems lots of people have had the same thing happen, so hopefully it is normal and will clear up, but I am going to take it slooooow as I can from now on.

As far as staying strict I don't seem to have any problems yet, though it is quite expensive as the only thing that keeps me full is meat at the moment. My mum doesn't think a meal is a meal some form of potato, but we have a decent menu going on now. Haven't been very successful with gravy yet, that is one thing I need to get sorted!

Welcome, Matchew.

The stool changes ARE common. I had a lot of this, especially the first week. Lots of weird stuff, and also a bunch of visible parasites, TMI to describe. SCD has a great cleansing effect when you have stuff that has been feeding on undigested carbs. IMO, this is confirmation that you will benefit from SCD.

The intestinal damage can mean that harder to digest foods can be harder to handle. So the fats might not be doing so well. Those with lots of experience on SCD (and Elaine in BTVC) suggest backing off on anything that you don't seem to handle, and retrying in a month or so.

I know what you mean about not feeling full. I need to munch on nuts between meals, and occasionally add some honey. It seems to partially be a blood sugar thing. I think over time you'll sense what to do.

Also, the first 2-3 weeks there can be a lot of hunger/cravings for carbs. Once you get through that, you'll notice a big difference. I guess it is part of the cleansing of the bad gut flora.

Gravy I've only done once, but the idea of blended onion added as a thickener seemed to work.

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mftnchn Explorer
Incorporating the scd a bit into my meals, love the homemade yogurt. Can tolerate it, and even eat a bit of REAL cheese if I eat a bit of yogurt too.

What I am wondering about it when I eat the almond flour - I felt like I had been beat up -- I was so stiff and sore all around my body, almost like I had done thousands of sit-ups, that kind of achy feeling. Has anyone had any experience with this? or have any thoughts?

Welcome jmd. This strikes me as a *possible* allergy. Can you eat raw whole almonds without problems?

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mftnchn Explorer
Recently I discovered Carbohydrate Intolerance.

I have not been aware of it until then... do I have this?

Similar to you, I am intolerant to gluten and lactose quite severely.

Plus those two are not the only ones.

Red meat, fried food especially deep fried, heavy seasoned food, salty food, grains especially rice and potatoes and egg yolks cause bad indigestion so I avoid them completely. Plus the Chinese herb doctor also advised me to take chicken out of my diet which I have for almost half a year now and yes, it has improved my digestive system.

I never liked the food lists mentioned above so I am feeling pretty great although dining out is rather difficult and 99% if the time I am either dissatisfied with meal or fall ill from them.

Plus sparkling drinks are suppose to assist in digestion but they always seem to add on a lump on my stomach and causes more inconvenience down below.

Perhaps I need to be on a specific Carbohydrate free diet?

Oh, and carrots ALWAYS cause abnormal bloating.. They have the possiblity for bloating but with me, it is rather severe. Perhaps I am carbohydrate intolerant.... lol.

IMO the SCD would be worth a try. The lactose problem would fit. The hard to digest foods, grains and potatoes, would also fit. The fact that you are still having a lot of symptoms in spite of gluten-free for some time fits.

Sparkling drinks--do they contain sugar? Does 100% fruit juice (confirmed no sugar added) cause problems?

Carrots are high in fructose, so you could think through the symptoms of fructose intolerance. Search this thread for it, there are some posters who also have fructose intolerance. On another SCD forum, I learned that a subset of people on SCD have trouble with the carrots at first, even though it is an intro food.

The SCD could eliminate quite a bit of stress on your gut, and allow some of the other intolerances to ease over time. You might have to stay pretty basic for awhile, until you find your *safe foods* and stay on that long enough to start to heal.

Perhaps you might find reading BTVC useful??

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mftnchn Explorer
My only thought is if you have not been eating a lot of almonds, then maybe you just ate too much at a time. You don't need to eat any nut flours on the SCD, they are simply an option.

Remember, the SCD is not so much about what you eat as what you do NOT eat.

I think this is a possibility. I can't recall where, but I think I also remember reading someone didn't tolerate the Bob's almond flour.

What I'd do is try to get some raw almonds. Maybe even order from Just Almonds, where they don't spray them or anything, they just use steam to pasteurize them. So you can be sure there are not any additives. Maybe Whole Foods or a health food store would have some. Wait about 7-10 days after having any almonds in any form, and then eat a good amount. Track your symptoms for a response that might indicate an allergy or intolerance.

Alternatives could be allergy testing.

If you are fine with the whole almonds, you can grind your own flour. I bought a little hand grinder for about $27, that works pretty good. I actually prefer it over the commercial ground almond flour, which I think makes gummy muffins.

Another issue might be the timing. Elaine suggests waiting on the nuts for a little while. She only adds the nut muffins early on if you have constipation, and then she suggests one a day along in her constipation protocol.

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Ms Jan Rookie

Hi there,

I have problems with almond flour - as well as all the other nut flours - even now four months into the diet. But I do perfectly well with whole nuts, except for cashews which I believe tend to be moldy. Also I can't digest carrots. Think they're too sweet or starchy. And since I don't do dairy, nor eggs or sweets, and only chicken as meat, my diet is pretty simple. It consists mainly of: sauteed vegetables like broccoli, cauliflower, and green beans, boiled aspargus, boiled chicken/soup, and a few fruits like grape fruits, kiwi, pineapple, bananas and sometimes strawberries. It took a little while getting used to, but now I truly enjoy these few basic foods, and I feel that the simplicity helps the cleansing and healing. Munching on nuts also helps satisfy the hunger.

Went to my GP yesterday, who can't understand that I have to stay on such a basic diet not to get sick - so now he's referred me to the hospital for a total check. Having already been tested for so many things, I don't know if I'm optimistic, but I'm going to give it a try while certainly keeping the diet to a point ! Any deviation immediately makes me fall ill, so I have no problems sticking to my few foods.

Going out is difficult, but I've learned to always carry nuts and bananas around - and if I must go to a restaurant I tell people ahead of time that I can only have steamed vegetables, then it's no problem.

As to sparkling mineral water, it sometimes helps me when I'm 'poisoned', but genereally speaking I find that it's by far too tough for my stomach. So now I drink almost exclusively flat water.

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jmd3 Contributor
So do you think the almond flour had something else in it?

Interesting about your daughter and sneezing. When I did a dairy experiment awhile back it gave me a runny nose along with fatigue and brain fog.

You can do the SCD without dairy if you prefer. You can culture other things besides milk, like cabbage or coconut milk. Or take probiotic pills or drink kombucha.

I used Bob's Mill brand, made the most delicious things with it, I even coated some zucchini with the almond flour, and fried it in olive oil, yum for sure. But, I just felt so swelled up, just sore and beat up all around my torso.

Nuts are fine, get most of them from whole foods, wegmans, or trader joes. I think I might try to grind my own nuts and make somethings with that. I have to build up to it though, I had such a bad experience with the packaged before.

I want to try and make my own scd fermented cabbage, will try it when I have more time to start it.

The yogurt/probiotics are suppose to help with allergies, and it does so with my daughter, I think I heard one sneeze in the last week or so... and when she doesn't eat the scd yogurt, I can hear 5 sneezes in a row every morning - well I used too.

My order for the mindlinx (probiotic) came in today, I am anxious to try it. I am not sure if anyone has tried it here, it is specifically made for the celiac/autism person. I am going to use it in making of my scd yogurt, and I am hoping for good results.

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mftnchn Explorer

I notice that the flour that we can buy is off white in color. Seems to be made of the blanched almonds that are all white/off white. I wonder if it is this part of the processing that is bothering you?

I buy the whole almonds that are brown on the outside, which I grind and use for my baking. I prefer the taste, I find.

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mftnchn Explorer

Those reacting to cow's milk might do fine on goat milk yogurt. Many do at least, including me. At least it is worth a try. I drip the yogurt for "cream cheese" for baking.

I just got results from ELISA IGG testing for a food panel. The results went along with my experience. I can't handle the cow's milk products that were tested except for cheddar and swiss cheese. (I'm pondering why those are okay, might have to do with the culturing breaking down and changing some of the proteins). Goat milk tested fine.

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pele Rookie
whole foods, wegmans, or trader joes. .

You have wegmans AND trader joes? and whole foods, too? Maybe I should move to where you are...

I have never used Bob's almond flour, but I do use Trader Joe's Almond Meal with no problems.

I know of a person who cannot tolerate almond skin, just blanched almonds.

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pele Rookie

Hi Sherry

Glad to see you're still around. It's been a bit quiet.

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jmd3 Contributor
You have wegmans AND trader joes? and whole foods, too? Maybe I should move to where you are...

I have never used Bob's almond flour, but I do use Trader Joe's Almond Meal with no problems.

I know of a person who cannot tolerate almond skin, just blanched almonds.

I drive about 2 hours to get to any of those places. :o( But it is worth it., take a big cooler, etc...

In about a week or so, I will try the almond flour again, but a different brand, or to grind my own, I might have a different reaction.

What would be the difference between almond meal, and almond flour. Bob's Mill is a bit gritty and cream color.

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mftnchn Explorer

Yes it has. I'm not that easy to get rid of, lol.

I'm having quite a bit more bloating these days. I'm going to go ahead and start eating a bit more raw, as the doctor said I should be able to. Hoping that this will even out when I finish the protozoan treatment, just a few more days now. After that I am going to do a few days of extra probiotics and see if that helps.

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pele Rookie
I drive about 2 hours to get to any of those places. :o( But it is worth it., take a big cooler, etc...

In about a week or so, I will try the almond flour again, but a different brand, or to grind my own, I might have a different reaction.

What would be the difference between almond meal, and almond flour. Bob's Mill is a bit gritty and cream color.

The difference is most likely how the almonds are ground. You can actually bake with nut butter instead of nut flour with similar results, but you need to be aware of weight, rather than volume. I make almond butter by putting almonds through the champion juicer. I like to lightly roast them first. A lot of work, but at least that way I know what Im getting.

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mftnchn Explorer

Bob's is not as fine as some of the other flours, as I understand. I had a bag of Bob's given to me, but didn't care for it. Mind you, I had been grinding all of my own prior to that. The Digestive Wellness, which many people like, is quite fine. It is also the light color you describe.

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Yoekie Apprentice

Hi all!!

I've been reading about it (love the pecanbread site! usually, what's good for kids, is good for me). I've done some reading on the purely chemical structure of nutrition also and am now convinced that simple carbohydrates (both mono and disaccharides) go easier on an inflamed/irritated/leaky gut. So to me it's all about cutting down on complex carbs (together with other measures like peeling and cooking fruits and vegetables). I could call it the simple carb diet. I would give preference to monosaccharides because I am lactose-intolerant (which is a disaccharide) yet it has more possabilities (lactosefree milk, chestnutflour and chickpea flour are disaccharides I would allow).

Yet I wonder, complex carbs are necessary to level out bloodsugar highs and lows (I'm hypogleacemic) so how about that?

And then there's another thing: my stooltest came out fine so I don't have bacterial overgrowth (which is why I won't do the introduction diet). I understand polysaccharides are what gut-bacterias live on but not all are harmful! The good ones are necessary and even reduce the harmful ones!

"When oligosaccharides are consumed, the undigested portion serves as food for the intestinal microflora. Depending on the type of oligosaccharide, different bacterial groups are stimulated or suppressed.

Clinical studies have shown that administering FOS, GOS, or inulin can increase the number of these friendly bacteria in the colon while simultaneously reducing the population of harmful bacteria" (wikipedia)

Is that why you have to eat the scd yoghurt? Is that enough?

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GermanMia Newbie

Welcome Yoekie :)

You already did quite some research!

Now - if your stooltest came out negative, there are some things to be considered: First of all, how reliable is that test? I'm in Germany where most regular tests don't say anything about your flora - they don't even really say anything about candida because they consider candida normal to a certain degree which is far too high to be healthy.

Then - what symptoms do you suffer from? There are other things, too, besides gluten or lactose which can cause very different problems.

Your gut consists of small intestine and large intestine. Carbs are digested in the small intestine. The small intestine contains only very few bacteria while the large intestine contains lots of them. If carbs don't get digested in the small intestine, they reach the large intestine where they feed bacteria which normally shouldn't be there - or should be less than they actually are after feeding ;)

But you also have to see which kind of carbs don't get digested in the small intestine and why they cannot get digested.

I'm fructose intolerant, too, which means that I cannot eat things which contain fructose as a monosaccharide nor anything that contains sucrose - like honey, which is legal on the SCD. But I do very well with rice syrup which in fact contains polysaccharides - long chain saccharides - because my system can digest that.

Actually the SCD is the perfect diet to balance hypoglycemia because you have a diet of fruit, vegetables, fat and proteins. The combination of carbs and fibre in fruit and vegetables plus protein (e.g. meat) should calm the bloodsugar down and keep it stable. So if you are sure you can handle fruits and vegetables you'd really give it a try.

Concerning FOS etc. the wiki article is right - except for the fact that FOS and other oligosaccharides can cause huge problems in people who don't digest carbs well and whose large intestines are already troubled.

The SDC yoghurt contains no FOS at all, no inulin etc., but tons of lactobacteria which help to restore the regular flora. Personally I don't think that it's enough to restore a really damaged flora. But you should be really sure whether your flora is damaged or not. Eating SCD yoghurt will never hurt, but taking additional probiotics above the yoghurt when not needed isn't the best idea.

Maybe you should either just find out if you don't digest carbs well - and which carbs cause you trouble, e.g. by breath tests. Or you jump into the diet and give it a try. You won't hurt yourself anyway if you do the SCD because it's simply a diet which is very close to what our bodies are made for - which is not bread ;)

Mia

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AliB Enthusiast

Hi all. Been away for a week - went to Cornwall for a break which was good, but ended up sloshing hot oil all over my left hand on Thursday. I tripped down a step I didn't realise was there (unfamiliar surroundings) and I went one way and the pan went the other and took my hand with it. It's ok. Nice blisters and extremely red but still working. I had it in cold water for hours - eventually fell asleep with it in the water and woke up with an extremely white, cold, numb and swollen hand which was a bit frightening, but after warming it up it eventually came back to life! At least it cooled it down! I'm just grateful it mostly missed my fingers and completely missed my face.

Yoekie, I'd like to give you my thoughts on your comments but it is late here now and I need to get to sleep so will respond tomorrow at some point. Night night.

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mftnchn Explorer

Yoekie, welcome.

My thought was also what Mia said, the concern is whether you can digest the carbs in the small intestine.

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Yoekie Apprentice

Hi all!

Thanks for replying!

What is very strange to me is that what I read about scd (which should be helpful in healing a leaky gut) is a contradiction to what the doctor prescribed me for it. He put me on 'permealine' which is a powder that is intended to stop hyperpermeablity of your gut, yet it's basically fructo-oligosaccharides. And I have to take probiotics as well.

I don't know if I have a problem with carbs (good question!), I have very normal bowelmovements. The reason why I'm looking into scd is because something is obviously weakening my immunesystem and nervoussystem (I have chronic sore throat, feel exhausted, frequent headache, can't stand noise, have rashes, bleeding gums, dizzines, trouble concentrating, feeling depressed) and chadlady mentioned on an other thread that sugar and carbs could do this.

Yet, I'm taking a look at different aspects of life (I have dust allergy and live in a house with lots of mold, my bedroom is so bad I can smell it) or maybe it's all because of depression and insomnia. But food is my number one since I have trouble keeping the weight on and it is a fact that I have/had foodintolerances.

AliB, that sounds like a painful experience! Get well!

Yoekie

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AliB Enthusiast
And then there's another thing: my stooltest came out fine so I don't have bacterial overgrowth (which is why I won't do the introduction diet). I understand polysaccharides are what gut-bacterias live on but not all are harmful! The good ones are necessary and even reduce the harmful ones!

"When oligosaccharides are consumed, the undigested portion serves as food for the intestinal microflora. Depending on the type of oligosaccharide, different bacterial groups are stimulated or suppressed.

Clinical studies have shown that administering FOS, GOS, or inulin can increase the number of these friendly bacteria in the colon while simultaneously reducing the population of harmful bacteria" (wikipedia)

Is that why you have to eat the scd yoghurt? Is that enough?

Hi Yoekie. The problem with stooltests is that they really only indicate what is going on in the colon. If your problems are in the upper intestine then it is possible that it wouldn't show up. Certain parasite activity wouldn't necessarily show up either, so I am not sure that Bacterial overgrowth or imbalance can be absolutely ruled out. Plus, of course, what if you have an overgrowth of bacteria or other pathogens that has not been tested for? Even seemingly 'friendly' bacteria like Bifidobacterium has the potential to become pathogenic if it gets out of hand. Candida is a 'friendly' microbe in small doses, mopping up stray undigested carbs in the gut, but of course becomes extremely nasty when it gets the upper hand.

The very fact that you have gut damage does suggest that there is some kind of activity - the gut doesn't get damaged on its own. I noticed that your problems started after a dose of food poisoning. A healthy gut would deal with any potentially pathogenic bacteria - even things like Salmonella, but any gut that is compromised would allow house room for the beggars, so I would deign to suggest that your problems may well have actually started much earlier even though they didn't show up until the poisoning.

Did you have antibiotics before that date, or other prescription drugs? Even things that seem fairly innocuous, like painkillers, can compromise the gut flora and make people more susceptible to pathogenic activity.

Our local Hospitals here in Wales have been giving pre-operative patients probiotics, to try and make them less susceptible to things like E.Coli and C.Diff. Even they now recognise the fact that these little microbes are powerful gut protectors.

The SCD yogurt is very helpful, but what is even more helpful is keeping the bad carbs and processed foods out of the diet. That in itself will help to change the gut flora - if there is nothing for the pathogens - whatever they are - to feed on then they will gradually die back.

I thought the following was an interesting little report showing how the 'Western' lifestyle has such a radically dangerous effect on people's health.

Open Original Shared Link

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Yoekie Apprentice

Ali B, you are right. I had a tummy bug only a couple of weeks before, that must have weakened my gut flora.

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AliB Enthusiast

The tummy bug may well have made things worse and allowed the Food Poisoning to take hold, but without weakened flora you would have been far less likely to have even had the tummy bug. Although they are often caused by viruses, again the body is usually adept at fighting them off too if it is strong enough, after all, not everyone catches them. Those that don't must have stronger immune systems.

For many, the compromisation starts in childhood. If a mother herself does not have good strong gut flora to pass on to her child, the child will have weakened immune strength. They will then find some foods, like dairy and gluten-based foods difficult to cope with and they too will contribute to the gut flora imbalance.

Many babies are bottle-fed these days - a processed dairy and soya product that is not natural and does not contain the benefits of breast milk. Many babies are also weaned at a very early age - often before 3 months of age when they are given wheat products as a major part of their diet. Wheat in its current form is difficult for many adults to cope with, let alone children.

Childhood illnesses and diseases will often manifest after weaning as damage starts to set in - not necessarily through Celiac but often through gluten intolerance. Much of the 'child-friendly' snacky foods are gluten based and we love our little darlings so much that we want them to have the things they like. And yes, I fell into the same trap myself and I can see my children and grandchildren paying the price with digestive, neurological and mental issues. The other problem is too that because none of us now really knows what it is like to truly be healthy, we view it all as normal. Gas and bloating? Well, everyone gets it so it must be normal. Isn't it??? No it isn't, and should never be viewed as such.

I do wonder if those who have gluten intolerance may perhaps have been perfectly ok with it if it mainly came from barley, rye and oats, but that perhaps the complexity of wheat and the fact that it is in so much foodstuff these days just ends up creating an issue with all gluten.

Back in the days when the only wheat that would have been ingested would have been not only an odd slice of wholemeal bread and an occasional piece of cake but was likely baked with spelt or some other ancient and far less complex wheat grain, it was probably not an issue for the far majority, but these days when wheat is in virtually everything, the sheer quantity of the stuff is almost guaranteed to cause problems. An over-consumption of any kind of food is going to be difficult for the body to cope with, but the fact that it is so highly processed now causes a double whammy.

The people who are realising that gluten-based foods are a problem for them (and dairy too) is rapidly growing every day - so much so that many food outlets are now being forced to provide gluten-free options, and it will sadly continue to grow. This is not something that is going to go away.

It is only by going 'back to basics' food-wise and making sure that we are keeping our diet as free from anything processed as possible that many of us can hope to regain our digestion, and ultimately, our health.

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mftnchn Explorer

Yoekie,

Seems like there could be a number of causes of your symptoms. SCD could be helpful, it might be worth a try. I also wonder about an infection of some type or heavy metal toxicity. What about deficiencies due to malabsorption?

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    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
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