Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
* * * * * 1 votes

Specific Carbohydrate Diet (SCD)


  • Please log in to reply

2414 replies to this topic

#2371 yolo

 
yolo

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,470 posts
 

Posted 04 November 2009 - 10:23 PM

Lucky girls! All I really seem to tolerate as far as fruit goes are lemons...which I sweeten with stevia to make lemonaide. I keep wondering if it is or is not a fructose allergy... I am actually OK these days with (gads!) brown rice! If it was just candida et al I am betting this would not be the case.

Bea
  • 0
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

Celiac.com Sponsor:

#2372 Ms Jan

 
Ms Jan

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 165 posts
 

Posted 05 November 2009 - 02:03 AM

Hi Bea,

Yes, it sounds like something else/more than candida is going on if you can't even have grape fruit. don't know too much about fructose intolerance, except that it's pretty serious for those who have it with potential organ side effects, so perhaps it'd be worth having checked. And brown rice to me is a killer, so it's interesting you have no problems with that. Your gut flora surely sounds like 'one of a kind' ...

I think I realy improved when I stopped pushing the cart - you know at the moment where I accepted my dietary limitations and just fanatically stayed on safe foods, not even trying new SCD legal foods. It somehow calmed my system that it wasn't challenged. And luckily after a while it's just become a habit, so I no longer feel like crying in the super markets or when I'm out where other people have cakes or gourmet dinners. I just look at it all as if it's poison, and make sure to always be full or carry some safe foods of my own around. I've found that being 100% dilligent is easier than doing 97%, which then much too easily tempts one to 85% etc .... But I guess in one sense it's easy for me to do my diet 100%, simply because I get so very sick when I don't. And having been able to add a few more fruits have just been like a great treat.

Do hope you find whatever combination that can heal you properly.

Jan
  • 0
QUESTION EVERYTHING (also the experts).
DON'T FOLLOW ANY ADVICE BEFORE YOU KNOW IT'S SUITABLE FOR YOU.
45 yrs; A life time of health problems, incl. arthritis and psoreasis; five years of debilitating 'poisoning' symptoms of headaches/vomiting.
Diagnosed Leaky Gut 2005.
Gluten free since nov 2008.
SCD diet/excl. all sugar&dairy since jan 2009. Finally improving!

#2373 Lynayah

 
Lynayah

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 556 posts
 

Posted 05 November 2009 - 10:42 AM

Here's an interesting personal experience of Celiac and the water and salt connection.

http://www.celiac.co...tion/Page1.html

I now feel that like type 2 Diabetes, it may well be possible to reverse Celiac Disease. This may seem controversial, but even Elaine felt that it was possible and may well have even encountered people who had recovered from it by following the diet.

I was thinking about this. The thing that made me pick up on Celiac in myself was the floaty stools and the running diarrhea. They are typical symptoms. But diarrhea is in itself dehydrating.

As I mentioned in another thread, I now believe that diarrhea is an extension of constipation. That they are both a result of dehydration - the diarrhea is a more virulent manifestation at the point where the dehydration is so bad that the gut can no longer support the digestion of certain foods and just ends up using what water is available to get the indigestible food through and out of the body as quickly as possible.

The fact that people 'develop' Celiac at different stages may simply depend on at what stage the dehydration has degenerated the gut to the point that it can no longer digest gluten and gluten-containing foods. The fact that there is a much higher amount of gluten in the wheat etc. these days may well also be a factor.

Perhaps the gluten is yet another aspect of the food that needs a lot of water to complete the digestive process.

I feel that if one looks at it from that aspect it is no surprise that people with Celiac Disease and gluten intolerance then go on to develop further intolerances to other foods. Which foods will purely depend on how much water their individual body needs for digestion of that particular food.

I thought that it was interesting in Anne Marie's report that her body wasn't absorbing the water until she started taking the salt. It comes back to needing to take the two in conjunction.

Also it has to be imperative that we follow a very low-carbohydrate diet whilst rehydrating because if we are still eating a lot - or even a moderate quantity of grains and other dehydrating foods, we wouldn't really be getting the benefit of the water. Instead of rehydrating the body it would be drawn off for digestive needs.

I have put 'celiac' and 'dehydration' into Google and quite a lot of stuff has come up.

http://www.celiac.co...php/t19484.html

I thought it was interesting that CarlaB said that when she drinks water she can never get enough of it. I found that - if I drank water I was always still thirsty! Of course! My body was crying for it! It needed water! I didn't drink it because it made me feel thirsty! Doh!

This is no coincidence. There are all those Celiacs on there saying how dehydrated they always are........they may dump gluten but they are still eating lots of dehydrating carbs.

If I was a betting person I would bet my life on it. Dehydration is not a symptom of Celiac - it's the cause..........


This thread is absolutely fascinating, and it just keeps getting better. Thank you, by the way for the salt suggestion. I've been using Original Himalayan Crystal Salt, and I love it.
  • 0
Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#2374 yolo

 
yolo

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,470 posts
 

Posted 05 November 2009 - 12:05 PM

Hi Bea,

Yes, it sounds like something else/more than candida is going on if you can't even have grape fruit. don't know too much about fructose intolerance, except that it's pretty serious for those who have it with potential organ side effects, so perhaps it'd be worth having checked. And brown rice to me is a killer, so it's interesting you have no problems with that. Your gut flora surely sounds like 'one of a kind' ...

I think I realy improved when I stopped pushing the cart - you know at the moment where I accepted my dietary limitations and just fanatically stayed on safe foods, not even trying new SCD legal foods. It somehow calmed my system that it wasn't challenged. And luckily after a while it's just become a habit, so I no longer feel like crying in the super markets or when I'm out where other people have cakes or gourmet dinners. I just look at it all as if it's poison, and make sure to always be full or carry some safe foods of my own around. I've found that being 100% dilligent is easier than doing 97%, which then much too easily tempts one to 85% etc .... But I guess in one sense it's easy for me to do my diet 100%, simply because I get so very sick when I don't. And having been able to add a few more fruits have just been like a great treat.

Do hope you find whatever combination that can heal you properly.

Jan


Hi Jan,
The reaction to fruit and ground up grains is why I started avoiding grains...just to keep things simple. I decided to on a semi-paleo or cave man diet, like I did years ago when I was getting rid of candida overgrowth back in the late eighties.

I thought at first with the SCD I would be able to actually expand my diet. Aalthough I could for a couple of weeks, soon my old allergies came back. However I did find that the 24 hour yogurt was better than the 7 hour yogurt. It seems I am sensitive to lactose but not casein.

Up until this week I have been completely strict with staying off all grains and sugars. However the little glutening foray that Graeme had and then my making him a sweet, led me to try out brown rice (since I also made that for him too). Much to my surprise the brown rice seems to be just fine for me now--though more than likely I should not have it every day.

I think I will get the fruit sugar reaction checked out sometime. In the meanwhile I simply am avoiding all fruit except for the lemons.

Despite the awful antibiotics bout I had in early October and then having to repopulate my gut with probiotics and take the olive leaf etc., in some ways I now seem to have improved--although my energy is still on the mend. Yesterday I discovered I may be able to have aged cheese every so often. The thing is not to have it every day or I may react to it, as I did a while ago.

I am in a gradual experimenting stage right now, seeing where my boundaries are.

I am thinking the SCD is no longer quite right for me. However it has helped me these last several months since now it seems I may be able to eat aged organic cheddar cheese once or twice a week (I think!) and eggs a couple of times a week--whereas previous to that I had a flaming reaction to both.

My diet has been more limited than the average sSCD-er these last 10 months due to the no fruit, no cheese, no eggs, no nuts, no carrots, no tomatoes or green peppers and of course no honey--plus having to not over emphasize meat due to my damaged right kidney...For me my diet always has to be a balancing act--towards moderation.

When you stop and think about it, squash and brown rice aren't that different on the glycemic scale--though no doubt brown rice is not a mono-saccaride. I don't think squash is either, but it is SCD OK.

Nevertheless I decided to start another thread, called "back to basics"--exploring a moderate diet that is still off the standard (even gluten-free!) American diet. It will still avoid ground up grains and an over reliance on the whole grains. It will use healing herbs, squash and roots (minus potatoes etc.), the 24 hour (plus!) yogurt, some chicken and occasionally salmon etc. and lots of veggies. Given my restricted diet for so very long, I want to expand it a little and figure this is a way to do it--which might help some other folks too along the way.

Unfortunately my proposed diet is not SCD correct at all. I love this thread, so plan to nose around a little but likely will be less active in it.

Bea
  • 0
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#2375 AliB

 
AliB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,301 posts
 

Posted 05 November 2009 - 03:47 PM

I went for an ultrasound today but as expected there was nothing out of the ordinary. Everything was where it should be and apparently as it should be. I didn't think it would achieve anything. They can't see through the ribs, and the problem I have is further up in my back and on my right side under the ribs.

Quite where I go from here I haven't a clue. Having waited 6 months for a non-materialising appointment that should only have taken 4-5 weeks due to the gross incompetence of my Doctor (!), I am back to square one.

I still think that this may well be SIBO, but it now seems that the tests for that aren't particularly good, mind you I suspect that it may be like the Celiac test where they have to set it at greater than 10 because some of the 'healthy' control group were found to have gluten antibodies (but then they might have 'silent Celiac!). Because they found evidence of SIBO in some healthy controls just may mean that many have it but are not (yet) displaying any symptoms!

I can't quite figure out why they even need to bother with the breath test - all they need to do is swab people's tongues first thing in the morning (well, they'd get a jolly good sample from mine!) and they will be able to figure out exactly what they are dealing with!

The water and salt is definitely what my body now needs, but that in itself is not enough to eject the little beggars.

I really don't want to go down the antibiotic route due to the almost certain probability of resistance so am just going to have to bombard them with whatever else I can get my hands on. I have just ordered some olive leaves and will get some grapefruit seed extract. I had some Citricidal at one point but I don't have a clue where that went to so will have to get some more.

I had a big mug of oregano and lapacho (pau d'arco) tea a while ago. Ugh. I took two oregano oil capsules at dinner and I have just had three garlic oil capsules (I just can't bring myself to eat it raw - last time my throat was on fire! Once you have it, it seems a very tough customer to eradicate.

I suspect that SIBO is probably behind the issues that many of us have with different sugars and carbs and other foods - whether it forms as a result of dehydration or whether it even contributes to it is something probably as yet unknown. It is undoubtedly still driven one way or another by the Western diet.
  • 0
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

#2376 Woolygimp

 
Woolygimp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 111 posts
 

Posted 06 November 2009 - 04:51 PM

About the whole dehydration thing, it's actually my worst symptom and I can guarantee you that it's worth with me than most of you. I'm currently on fludrocortisone because I can eat all the salt in the world and without the fludrocortisone, my body does not hold on to either liquids or salt.

Without the fludrocortisone, I get horribly dry skin/mouth/eyes and polyuria... the fludrocortisone has been nothing short of a saving grace for me.

So now I take 0.1 twice daily and eat a lot of salt and stay hydrated and for the most part my symptoms are going away as long as I watch what I eat. If I get glutened/caseined then the fludrocortisone seems to lose it's effect and the symptoms come back. For the most part, my skin feels very good again, mouth/eyes water if I'm doing good.

Not much room for error though!
  • 0

#2377 AliB

 
AliB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,301 posts
 

Posted 06 November 2009 - 05:07 PM

I think we just don't realise how dehydrated we are. When I think back to my health issues over the years I can see that a lot of it has been related to dehydration.

No I'm not nearly as bad as you are. Thank goodness you and your Doctors have figured out the problem and are able to address it.
  • 0
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

#2378 yolo

 
yolo

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,470 posts
 

Posted 06 November 2009 - 06:25 PM

About the whole dehydration thing, it's actually my worst symptom and I can guarantee you that it's worth with me than most of you. I'm currently on fludrocortisone because I can eat all the salt in the world and without the fludrocortisone, my body does not hold on to either liquids or salt.

Without the fludrocortisone, I get horribly dry skin/mouth/eyes and polyuria... the fludrocortisone has been nothing short of a saving grace for me.

So now I take 0.1 twice daily and eat a lot of salt and stay hydrated and for the most part my symptoms are going away as long as I watch what I eat. If I get glutened/caseined then the fludrocortisone seems to lose it's effect and the symptoms come back. For the most part, my skin feels very good again, mouth/eyes water if I'm doing good.

Not much room for error though!



Hi Woolygimp,

I was just reading about celiac and Addison's--and for what its worth, apparently it is speculated that John F. Kennedy likely had that combo. too. He also had what was diagnosed at the time as IBS, chronic diarrhea, migraines and osteoporosis besides the Addison's. Back then all they knew to treat him with was steroids.

Fortunately now more is known about celiac--and it appears following a gluten-free diet can help reduce the Addison's syndrome symptoms to some degree--and possibly can prevent it if its caught early enough. I am betting following the SCD and/or the Paleo or cave man diet (or some combination thereof) and staying off sugar will help even more than just the gluten-free diet.

I am wondering if using marshmallow root would also help. Its very non SCD--however it soothes the lining of the intestines and kidneys and takes down inflammation, both of which (when inflamed) would exacerbate salt and fluid loss due to the damaged villi in both organs.

I have a great deal of trouble absorbing enough minerals myself and though I don't have Addison's--my kidneys are at risk and I still have a low body temperature and low blood pressure and some osteoporosis and risk migraines and eczema if I eat the wrong things. Taking co-enzyme B vitamins daily have helped my nervous system (including my heart) revitalize so now I am much stronger than I was.

I am wondering if, with Addison's, you also take extra minerals too in general?

Bea
  • 0
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#2379 Lynayah

 
Lynayah

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 556 posts
 

Posted 06 November 2009 - 09:02 PM

I went for an ultrasound today but as expected there was nothing out of the ordinary. Everything was where it should be and apparently as it should be. I didn't think it would achieve anything. They can't see through the ribs, and the problem I have is further up in my back and on my right side under the ribs.

Quite where I go from here I haven't a clue. Having waited 6 months for a non-materialising appointment that should only have taken 4-5 weeks due to the gross incompetence of my Doctor (!), I am back to square one.

I still think that this may well be SIBO, but it now seems that the tests for that aren't particularly good, mind you I suspect that it may be like the Celiac test where they have to set it at greater than 10 because some of the 'healthy' control group were found to have gluten antibodies (but then they might have 'silent Celiac!). Because they found evidence of SIBO in some healthy controls just may mean that many have it but are not (yet) displaying any symptoms!

I can't quite figure out why they even need to bother with the breath test - all they need to do is swab people's tongues first thing in the morning (well, they'd get a jolly good sample from mine!) and they will be able to figure out exactly what they are dealing with!

The water and salt is definitely what my body now needs, but that in itself is not enough to eject the little beggars.

I really don't want to go down the antibiotic route due to the almost certain probability of resistance so am just going to have to bombard them with whatever else I can get my hands on. I have just ordered some olive leaves and will get some grapefruit seed extract. I had some Citricidal at one point but I don't have a clue where that went to so will have to get some more.

I had a big mug of oregano and lapacho (pau d'arco) tea a while ago. Ugh. I took two oregano oil capsules at dinner and I have just had three garlic oil capsules (I just can't bring myself to eat it raw - last time my throat was on fire! Once you have it, it seems a very tough customer to eradicate.

I suspect that SIBO is probably behind the issues that many of us have with different sugars and carbs and other foods - whether it forms as a result of dehydration or whether it even contributes to it is something probably as yet unknown. It is undoubtedly still driven one way or another by the Western diet.



AliB,

Might you have time to post the titles of any books you've read regarding water, salt sole, SIBO, etc.? I would like to learn more. If you've already mentioned some titles here, kindly forgive my not being able to sort through all the posts. Perhaps an update? Thank you so much, AliB!
  • 0
Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#2380 Lynayah

 
Lynayah

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 556 posts
 

Posted 06 November 2009 - 09:14 PM

I think we just don't realise how dehydrated we are. When I think back to my health issues over the years I can see that a lot of it has been related to dehydration.

No I'm not nearly as bad as you are. Thank goodness you and your Doctors have figured out the problem and are able to address it.


I drink sooooo much water, yet I still have problems. I was looking at my legs this morning, and GOOD GRIEF, they look like reptile skin. Some nights I awaken so thirsty I can hardly stand it.

I have been tested, and I'm not diabetic. The thirst is not from that.

I am hoping the salt sole drink I now take each day will continue to help -- the first 24 hours on it was amazing. I do not know if it was a coincidence, but the constipation I was having completely cleared. What a relief this was!

Okay, so all that said, I feel I need to add that I am wondering if this thread has strayed a bit off topic. The water, salt, etc. discussed here is not really about SCD.

AliB, might you consider starting another thread that is about water and salt? If there already is one, please let me know . . . and please PM me if you start a thread; the topic is important (perhaps even more important than we realize at this point).

Thanks for being on the leading edge of things.

Lyn
  • 0
Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#2381 AliB

 
AliB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,301 posts
 

Posted 07 November 2009 - 05:55 AM

Hi Lyn,

I suppose that the water and salt thing is a bit off-topic, but then it is still 'food' as such - I don't think that either are SCD illegal! :lol:

I will start a thread if you like - those that run this website already know that I am a bit 'off the wall' so they probably won't be that surprised!

Mind you, dehydration does seem to be a big problem for Celiacs and gluten intolerants.
  • 0
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

#2382 Lynayah

 
Lynayah

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 556 posts
 

Posted 07 November 2009 - 08:48 AM

Hi Lyn,

I suppose that the water and salt thing is a bit off-topic, but then it is still 'food' as such - I don't think that either are SCD illegal! :lol:

I will start a thread if you like - those that run this website already know that I am a bit 'off the wall' so they probably won't be that surprised!

Mind you, dehydration does seem to be a big problem for Celiacs and gluten intolerants.


If you do start one (either way is fine), please post the link here.

A question: I notice in other threads you also discuss Candida and the relationship it may have to gluten-intolorance, as well as other disorders.

Have you, or has anyone here, put together a list that combines the foods from a Candida diet and the Specific Carbohydrate diet? Or perhaps do you know of a source of one?

I imagine the list would be very limiting -- basically low-carb veggies and protein foods, as well as the homemade yogurt. I haven't studied it enough to know at this point, and if a list exists that would be nice. Anyone know?
  • 0
Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#2383 AliB

 
AliB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,301 posts
 

Posted 07 November 2009 - 03:13 PM

Sorry Lyn, as I suspected might happen, the thread I started on water and salt has been moved to the gab/chat room and has been pulled to pieces.

Anyone would think that I had suggested drinking bleach and taking arsenic! The fact that a very small percentage of people have not done things sensibly and have been very ill or died as a result seems to be totally overshadowing the fact that half the population is getting sick due to dehydration! So it's obviously better not to drink enough than to drink too much??? Wouldn't drinking about the right amount be a much more sensible thing to do all around?

I'm not surprised at the reaction - knowing the problems I had getting the SCD thread off the ground..........

Sometimes it's all just too much effort.

Anyway, if you want to look at my answer to your question, that is where the thread is.

How are you getting on with the SCD? Is it helping?
  • 0
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

#2384 Lynayah

 
Lynayah

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 556 posts
 

Posted 07 November 2009 - 05:21 PM

Sorry Lyn, as I suspected might happen, the thread I started on water and salt has been moved to the gab/chat room and has been pulled to pieces.

Anyone would think that I had suggested drinking bleach and taking arsenic! The fact that a very small percentage of people have not done things sensibly and have been very ill or died as a result seems to be totally overshadowing the fact that half the population is getting sick due to dehydration! So it's obviously better not to drink enough than to drink too much??? Wouldn't drinking about the right amount be a much more sensible thing to do all around?

I'm not surprised at the reaction - knowing the problems I had getting the SCD thread off the ground..........

Sometimes it's all just too much effort.

Anyway, if you want to look at my answer to your question, that is where the thread is.

How are you getting on with the SCD? Is it helping?


Hi,

If there was a link in your post, it has been removed. :(

SCD is definitely helping, as long as I can STAY on it! <laughing>

Today, I went to my cousin's health food store grand opening . . . and wouldn't you know it, she made gluten-free cake with me in mind . . . and how could I not try it?

It was a bit of a mistake, but probably not too bad. I find that if I blow the SCD rules the symptoms often last only a day or two - nothing like if I blow it on gluten, which takes about a week and is horrific.

I haven't done the starter diet, but I probably should. Right now, I seem to be sensitive to eggs and maybe honey.

Chicken, organic hamburger, brocolli, butternut squash - these all seem to be excellent for me right now. I've also been able to eat Glutenfreeda oatmeal, which is illegal on SCD -- no problems with it. I add cooked apples and cooked blueberries and really enjoy it . . .

But I am thinking that candida might also be an issue, so I'm not sure if the fruit, etc. is the best in fighting it.

Oh my goodness, so many issues . . . so little time! :)

Thank you once again for being out there, trying your best, etc.

Lyn
  • 0
Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#2385 AliB

 
AliB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,301 posts
 

Posted 07 November 2009 - 05:40 PM

If Candida is an issue, I think you will find that the diet will deal with it eventually. It does take time, but at least it is working in the right direction.

Whilst I feel that there is something a bit more problematic living in me that will take some pretty strong stuff to eradicate, I do seem to have pretty well, through the diet gradually been able to get Candida under control.

I certainly am not the walking fungus-factory that I used to be - slathering the Canesten on every five minutes. All my external symptoms of Candida et al have either gone or have virtually gone which is great, and that gives me confidence that the internal ones are well on their way too.

This other issue is pretty much the only thing standing between me and better health. I am throwing herbs and garlic and stuff at it which does seem to be doing something so hopefully I will get the better of it (them) eventually.

Certainly I am in a far better place as a result of the diet than I was 20 months ago. Being hardly able to eat anything, let alone gluten, was not a good place to be. Now I can eat pretty much anything 'legal' and occasionally an illegal treat.

I won't ever go back to eating the carbs in any quantity - not now I have realised what damage they are doing to everyone.

I have had issues with carbs and a poor digestive system for many years along with weight gain, hypos, IBS, Candida, etc., and most of that time and especially since being diagnosed diabetic 12 years ago I spent most of that time feeling sorry for myself - why me? Why can other people eat all this yummy stuff and I can't? You know the stuff.

Having my digestion finally collapse has actually been the best thing that could have happened. All the research and knowledge I have gained since has made me realise just how damaging the Western diet is, and that so many people are suffering with so many illnesses and diseases as a result of following it.

Now I no longer feel sorry for myself, I feel sorry for everyone else who is still 'enslaved' to it! It is jolly liberating, I can tell you!
  • 0
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: