Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Support For Beginning Days Of Going Gf
0

8 posts in this topic

I am very new to going gluten free. I am convinced that this is a life path for me. Is it usual to have several good days then have some bad days? I know that I have been gluten-free because the ONLY things I have eaten are meat and rice and a few fresh veggies. Also have checked all cosmetic products, supplements, etc.

I'd like to hear how it went for others in the "early days"!!!

fritzicurls

0

Share this post


Link to post
Share on other sites


Ads by Google:

I also had good and bad days at first. I really didn't start feeling alot better until month 3 and then it took me a few more to get back to normal.

Everyone has different times for when they start feeling better but it takes time for your body to get used to this new way of eating and for your body to heal.

That's great you have been on top of things and checked makeup, supplements, etc. That eliminates alot of risks of contamination right there.

Feel better soon and hang in there :D

0

Share this post


Link to post
Share on other sites

What you are experiencing is typical, I think.....

Keep on reminding yourself that it took years of gluten damaging your system to get you to this point and it is not going to turn around overnight..... There will be good days, bad days, days where you wonder if it is worth the hassle, days where you will thank your lucky stars you went gluten free, and a myriad of different feelings in between.

Everybody's bodies heal differently,some quicker than others......

Hang in there! ;)

Karen

0

Share this post


Link to post
Share on other sites

I think it's also possible (not like we need to make matters worse, but hey, we're human!) that as the first few days go by on a gluten-free diet, first few weeks and months as well, we tend to by SO hypervigilant about how we are feeling physically that we no longer overlook small things we may have overlooked in the past. So, because we're looking so very closely, we may feel worse sometimes, than we might otherwise. Essentially, becoming hypersensitive to how we're feeling. (I don't necessarily use hypersensitive in a bad sense though. While it's possible to take it too far, I would argue that most of us - well, most Americans in general, I don't know... once you've got celiac disease and go down that path, I don't think it's true any longer - are not sensitive/aware enough of how our bodies are feeling.

0

Share this post


Link to post
Share on other sites

It seems that the average time to start feeling better is 3 months and a year to reach the healthy point. That is the way it was for me too. It is so worth it to follow this path. You will make mistakes along the way and get nailed with gluten from time to time. The only thing you can do is keep yourself as healthy as possible so that you can weather the storm better.

I have been gluten-free for over a year and last night I accidently used my sons Teenage Mutant Ninja Turtles toothpaste, with gluten of course. Fortunately the amount must have been really small and the only reaction I had was a tingling sensation in my mouth and a nightmare. The only time I dream is when I get nailed with gluten. Even us veterans slip up sometimes.

0

Share this post


Link to post
Share on other sites




I can relate to what Tiffany said about being hypersensitive to what's going in our bodies. Shortly after learning about celiac disease two months ago, I noticed how sore/irritated by gut actually was. I am observant about everything that goies on with my body to the point that it has become obsessive. I am trying to get over this and hopefully as my GI symptoms improve I will also put my thoughts on the back burner.

Patience is the key.

Ally

0

Share this post


Link to post
Share on other sites

Thanks to all of you for your replies. I think I figured out the culprit!!! I helped clean out an old barn yesterday and all the dust and mold did a number on me!!!

I am going to persevere no matter what. There are too many great stories on this site to give me the inspiration that I need. Thanks everyone!

fritzicurls

0

Share this post


Link to post
Share on other sites

In the future you should wear a good particle mask when cleaning dirty area. I have to wear one just cleaning out my garage because the dirt and dust makes me rather ill.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,421
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined