Elimination Diet Cant Find Safe Food - Thoroughly Depressed Really Need help!
#1
Posted 16 September 2009 - 05:02 PM
I am so hungry and sick of living on steak and sweet potatoes as everything i have tried so far has been a problem.
two days ago couldnt stand it any longer and I ate gluten free sausages which i was told was 100% organic meat, and the same day i had salmon thinking seafood was definately safe so i would be fine, i did notice a sore tummy after eating the salmon.
This morning i have really really bad dirrehea. So i rang the company and found the organic sausages have white rice flour in them (20%). And i googled salmon to check and some people have an allegy to salmon but i am not sure if there is a food intorance to it. I am so down today, and so hungry and i just dont know what to do.
I cant get the tests i need to get until I can get to the specailst and i have been waiting 6 months already to see the specialist. (in New Zealand it is free but a long wait). I dont have the money to pay for it myself either.
Any ideas as to what foods may be safe will be a great help.
Deana
#2
Posted 16 September 2009 - 05:06 PM
Northland Lady, on Sep 16 2009, 05:02 PM, said:
I am so hungry and sick of living on steak and sweet potatoes as everything i have tried so far has been a problem.
two days ago couldnt stand it any longer and I ate gluten free sausages which i was told was 100% organic meat, and the same day i had salmon thinking seafood was definately safe so i would be fine, i did notice a sore tummy after eating the salmon.
This morning i have really really bad dirrehea. So i rang the company and found the organic sausages have white rice flour in them (20%). And i googled salmon to check and some people have an allegy to salmon but i am not sure if there is a food intorance to it. I am so down today, and so hungry and i just dont know what to do.
I cant get the tests i need to get until I can get to the specailst and i have been waiting 6 months already to see the specialist. (in New Zealand it is free but a long wait). I dont have the money to pay for it myself either.
Any ideas as to what foods may be safe will be a great help.
Deana
Before I started the elimation diet I reacted to a lot of foods that could have been 2 or three things i had that day. My aunt has a problem with frutose (honey rasions etc). I thought i had reacted to honey and cooked carrots, green beans, tomartoes, lettuce. but i am not sure until i test it properly, and if i think i might react i dont want to try that food again because it is taking so long to recover from each "bad Bout"
I cant keep living ont his diet of no vegs and i cant work out what i can eat that will be safe.
#3
Posted 16 September 2009 - 05:09 PM
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#4
Posted 16 September 2009 - 05:43 PM
Duck?
Goose?
Is there anything you've never eaten before?
Tapioca?
Yams?
mushrooms?
Wild rice? (which is not rice)
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
#5
Posted 16 September 2009 - 05:55 PM
Northland Lady, on Sep 16 2009, 05:02 PM, said:
I am so hungry and sick of living on steak and sweet potatoes as everything i have tried so far has been a problem.
two days ago couldnt stand it any longer and I ate gluten free sausages which i was told was 100% organic meat, and the same day i had salmon thinking seafood was definately safe so i would be fine, i did notice a sore tummy after eating the salmon.
This morning i have really really bad dirrehea. So i rang the company and found the organic sausages have white rice flour in them (20%). And i googled salmon to check and some people have an allegy to salmon but i am not sure if there is a food intorance to it. I am so down today, and so hungry and i just dont know what to do.
I cant get the tests i need to get until I can get to the specailst and i have been waiting 6 months already to see the specialist. (in New Zealand it is free but a long wait). I dont have the money to pay for it myself either.
Any ideas as to what foods may be safe will be a great help.
Deana
Your experience shows why elimination diets can't easily determine delayed reaction food allergies. People can have alllergies to almost any food. (My husband is allergic to many foods which are considered 'healthy' like almonds, sesame, grapes and blueberries as well as lamb.) I agree that if your intestines are inflamed, eating almost anything may cause pain.
Blood tests are a better way to diagnose food allergies. My naturopath uses the ELISA (enzyme linked immunosorbent assay) test for over 100 commonly eaten foods. There is also a vegan and spice and herb version of the ELISA test. I needed to take all 3 versions before I determined my allergies to cane sugar, eggs, vanilla and nutmeg. I used Enterolab's stool test for IgA antibodies to determine my other allergies to dairy and soy.
Look for a specialist who uses blood tests to diagnose food allergies. (Skin tests won't work for delayed reaction food allergies.) Good Luck!
SUE
#6
Posted 16 September 2009 - 06:49 PM
I did an elimination diet and found it very helpful. One thing to keep in mind is that you need to eliminate anything that you consume, including vitamin pills, sodas, coffee, tea, spices etc. Medications are also suspect.
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
#7
Posted 16 September 2009 - 10:33 PM
Jestgar I like the idea of eating stuff i havnet eaten before, that is why i tried the salmon (and it was on specail! wild rice goose and lamb i will try
thanks Momma Goose I think you are right, its going to take a while to heal
burdee my Dr told me the only way to know for sure if a food effects you is the elimination diet. I had blood tests done but they all came back fine. The Dr said false negetives are common. I have a major gluten problem but it came back that wheat is fine! It is diarrhea that is the worse problem. If i go to a naturopath then how can i be certain their tests are accurate? I have o wait to see a specailist.
GFinDC thanks for that, I have eliminated all of those. I react to tea, i am not sure about coffee i drink decaf, swiss method treatment not the added chemical one
I think you are all right about the intestines needing to heal. I think the rice in the sausages did hurt my tummy so much that i cant tell if the salmon effected me. (i tested rice already and had the same reaction, rice flour seems to be worse than the rice itself . I had a bout of making shortbread with white rice flour about 2 months ago and had dirrehea for two weeks!
Any tips on finding a naturopath?
Thanks
Deana
#8
Posted 17 September 2009 - 07:15 AM
Northland Lady, on Sep 16 2009, 11:33 PM, said:
Jestgar I like the idea of eating stuff i havnet eaten before, that is why i tried the salmon (and it was on specail! wild rice goose and lamb i will try
thanks Momma Goose I think you are right, its going to take a while to heal
burdee my Dr told me the only way to know for sure if a food effects you is the elimination diet. I had blood tests done but they all came back fine. The Dr said false negetives are common. I have a major gluten problem but it came back that wheat is fine! It is diarrhea that is the worse problem. If i go to a naturopath then how can i be certain their tests are accurate? I have o wait to see a specailist.
GFinDC thanks for that, I have eliminated all of those. I react to tea, i am not sure about coffee i drink decaf, swiss method treatment not the added chemical one
I think you are all right about the intestines needing to heal. I think the rice in the sausages did hurt my tummy so much that i cant tell if the salmon effected me. (i tested rice already and had the same reaction, rice flour seems to be worse than the rice itself . I had a bout of making shortbread with white rice flour about 2 months ago and had dirrehea for two weeks!
Any tips on finding a naturopath?
Thanks
Deana
Which blood tests did you take to diagnose food allergies? Some blood tests are more reliable than others. Also some labs have better quality control standards in handling and interpretting tests than others.
Likewise there are naturopaths who are very knowledgable and naturopaths who just do lots of guessing. The first naturopath I saw told me I couldn't have celiac disease because I didn't have diarrhea. The second one I saw told me I didn't feel pain in my gut because the intestines don't have pain sensors. The third naturopath, who has also celiac disease and dairy allergy, listened intently to my symptoms, accepted my Enterolab diagnoses of celiac disease and dairy allergy, and tested me for food allergies with the ELISA test and bacterial dysbiosis with stool tests. The third NP was a winner for me. He helped me find 4 of my 7 allergies and diagnosed and treated me for 3 bacteria infections, a parasite and candida (yes, treatment eliminated my candida). I avoided mainstream docs, because they had misdiagnosed me for 20 years. I'm glad you found a mainstream doc and specialist whom you trust.
SUE
#9
Posted 17 September 2009 - 10:59 AM
With regards to salmon, many people react to the Mercury content in fish as much or more than the fish. Mercury sensitivity is fairly common and the Mercury content of wild caught fish rises yearly
burdee, on Sep 17 2009, 07:15 AM, said:
Likewise there are naturopaths who are very knowledgable and naturopaths who just do lots of guessing. The first naturopath I saw told me I couldn't have celiac disease because I didn't have diarrhea. The second one I saw told me I didn't feel pain in my gut because the intestines don't have pain sensors. The third naturopath, who has also celiac disease and dairy allergy, listened intently to my symptoms, accepted my Enterolab diagnoses of celiac disease and dairy allergy, and tested me for food allergies with the ELISA test and bacterial dysbiosis with stool tests. The third NP was a winner for me. He helped me find 4 of my 7 allergies and diagnosed and treated me for 3 bacteria infections, a parasite and candida (yes, treatment eliminated my candida). I avoided mainstream docs, because they had misdiagnosed me for 20 years. I'm glad you found a mainstream doc and specialist whom you trust.
SUE
as long as you put it back where you got it when you're done with it."
#10
Posted 17 September 2009 - 03:03 PM
VioletBlue, on Sep 17 2009, 10:59 AM, said:
With regards to salmon, many people react to the Mercury content in fish as much or more than the fish. Mercury sensitivity is fairly common and the Mercury content of wild caught fish rises yearly
I'm uncertain why you addressed your comment to me. I only commented on food allergies (mine were diagnosed by ELISA blood tests) in my last post. When I took the ELISA test, I had already abstained from gluten for 2 years. So I had no reaction to wheat on that test. Maybe you meant to address your comments to someone else???
SUE

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