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How Long Have U Had Cd?
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22 posts in this topic

hey i was diagnosed with celiac disease april 1999 and i wanted to know how long you ppl have been diagnosed

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I was diagnosed with celiac disease in December of 2004, but I was sick for about 3 years prior

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I was diagnosed in January of 2004 but I was sick 2 years prior to that. I have been gluten free about 16 months

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I figured it out in 2003, but I don't have many symptoms and I don't think I had it as a child....

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Diagnosed in Feb. 2004, so I've been gluten-free for about 14 months...... I've had celiac disease much longer.

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So I was diagnosed when I was 20 montsh old in 1992 so that would be 13 years+ :) Long time:)

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I'm with Kaiti at 16 months but I was sick on off through my childhood.

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Diagnosed 9/27/04 but had a few symptoms ever since i was about 3 or so...all the docs said I'd grow out of it....ha--sure ;)

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I am almost 18, have been gluten-free since I was 9.

The funny thing is that I always think about the last gluten thing I ate intentionally when I think about how long I have been gluten-free. I was in fourth grade. I ate some animal crackers. Never again did I intentionally eat gluten. What a lame thing to end my gluten-filled life with huh?

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I have always had Celiac Disease.

I was diagnosed 2 years ago, though.

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I know I'm not a teenager, but I was diagnosed in November of 1997, right in the middle of college.

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Hello i am almost 17 and was diagnosed when i was 2 by my mother so that is about 15 years

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OK, I'm not a teenager either. Does it count, when you look like one??? :P (hugs to all the baby-faces out there) I'm kind of self-diagnosed. My doc still doesn't really believe it. He's like: 'Ok, you're blood-levels were just slightly elevated and didn't show much and you had no biopsy. But, heck, if you feel better... just do what you want...and when you feel bad come back'. Other than the "Amstel light"-mistake I never felt bad again :P . So this "diagnosis" I got 07/21/04. But I suffered really severe for 7 years until anything came out. I also think, I had it all my life, but not as severe.

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I had symptoms that would come and go all of my life. In my mid-20's they started to become really severe. I didn't learn what was wrong until early 2004 at the age of 36 when I tried the Atkins diet. Dozens of doctors never once suggested a food intolerance. Since then my life has changed dramatically for the better. I am not the man I used to be at all and that is a GOOD thing.

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I was diagnosed in 1999. I am also dairy intolerant, and have some problems with fruits as well

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This is my first post on the site, but I've been reading for a while. I live in Wyoming and feel like pretty much a loner up here. I am 20 years old and was diagnosed on my 14th birthday <_< , so... Gluten-Free for almost 7 years.

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hey guys i just got diagnosed for celiac today, it kinda sucks because my parents cooked a big meal and i couldnt have it. :blink:

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I don't think it sucks. You will have to start cooking for yourself then.

My family would ahve their meals and I would make my own. I still make my own but now that my Mom and borther were diagnosed they eat glutenfree, too. I just prefer to cook my own food because I did before.

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hey guys i just got diagnosed for celiac today, it kinda sucks because my parents cooked a big meal and i couldnt have it. :blink:

We don't have it that bad..we can still have alot of really good foods..you'll get used to it and realize it's not so bad.

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sorry for having the rude account name before as "dyingboy" i found it a little offensive

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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