I've been kind of a slow healer after 8 mos gluten free, so I'm just trying to eliminate gluten anywhere it may lurk.
Any Woodwind Players Out There? cork grease :)
#1
Posted 22 September 2009 - 07:52 PM
I've been kind of a slow healer after 8 mos gluten free, so I'm just trying to eliminate gluten anywhere it may lurk.
#2
Posted 23 September 2009 - 05:53 PM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Posted 23 September 2009 - 07:18 PM
ravenwoodglass, on Sep 23 2009, 09:53 PM, said:
Cool - thanks! What is NIH? I'm assuming it's online somewhere?
#4
Posted 24 September 2009 - 02:18 AM
heatherjane, on Sep 23 2009, 07:18 PM, said:
The NIH is the National Institute of Health. If you do a search putting in NIH and the product name it may come up in the results if they have a listing for the product.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
Posted 24 September 2009 - 05:46 AM
#6
Posted 02 October 2009 - 10:50 AM
That being said, let us know if you find a brand you have a problem with!
#7
Posted 28 October 2009 - 08:35 PM
The one I'm using is made up of Petrolatum, synthetic wax, and tallow blends (animal fats, i guess), and wintergreen scent. The sheet for the other one, labeled "organic", says Vaseline and hydrogenated palm oil. My hunch is that other brands would be similar... basically petroleum/oil based.
So, I think we're ok on all this, but I wouldn't want to put it on my lips.
#8
Posted 29 October 2009 - 07:05 PM
#9
Posted 29 October 2009 - 08:50 PM
Daughter diagnosed 1/06 bloodwork and biopsy
-gluten-free since 1/06
Son tested negative-bloodwork (8/07), intestinal issues prompted biospy (3/08), results negative, but very positive dietary response, Dr. diagnosed Celiac disease (3/8)
Celiac.com - Celiac Disease Board Moderator
#10
Posted 30 October 2009 - 01:50 AM
However the last time I picked it up I had no idea I had a problem with gluten/wheat intolerance. I figured I'd pipe up since it's always nice knowing who played woodwinds.
Yay for woodwinds
-Diagnosed positive for Celiac 5/11/2010!!
-Vitamin D low (last year was deficient), Iodine low, Protein S low. Balance/dizziness not related to Celiac.
-Elimination diet 11-4-2009 and ended 02-28-2010. Tolerating dairy again. Highly intolerant to soy, sensitive to green peas and corn kernels.
"Oh CRAP! Are you SERIOUS??
#11
Posted 01 November 2009 - 08:10 PM
Swimmr, on Oct 30 2009, 04:50 AM, said:
However the last time I picked it up I had no idea I had a problem with gluten/wheat intolerance. I figured I'd pipe up since it's always nice knowing who played woodwinds.
Yay for woodwinds
Woodwinds rule, Brass drool.
Shortly after getting diagnosed, I threw out my old reeds that I'm sure could have absorbed gluten if I hadn't had a chance to brush before playing. I disinfected my mouthpiece too. I love to play, and there's no way I'm getting glutened from it!
#12
Posted 01 November 2009 - 10:34 PM
I really am an ISTJ (Myers-Briggs Personality Type).
Responsible pet owners spay and neuter.
Please Google prosopagnosia, a neurological deficit also called facial amnesia or faceblind. Yup, I have it.
Poor me--gluten free.
I'll have a grilled cheese sandwich--hold the bread.

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