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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Any Woodwind Players Out There? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Any Woodwind Players Out There? cork grease :) Rate Topic: -----

#1 User is offline   heatherjane 

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Posted 22 September 2009 - 07:52 PM

I know this may sound a little random and weird to some, but is there any way cork grease could contain gluten? I've played clarinet for years, and realized the other day when I was putting my horn together how easy it is to get the grease on my hands, and sometimes on the mouthpiece. The ingredients aren't normally listed on the tube...the only thing I could think would be suspect is if it has vitamin E. I know the obvious step is just to call the manufacturer, but I thought I'd check and see if there was anyone who already knew.

I've been kind of a slow healer after 8 mos gluten free, so I'm just trying to eliminate gluten anywhere it may lurk. :ph34r:
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#2 User is offline   ravenwoodglass 

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Posted 23 September 2009 - 05:53 PM

The NIH has a product database. You may be able to do a search of it and see if the product is listed. If it is the database will tell you what is in it and what it is derived from. Not everything is in there and in the long run it may be easier to just call the company but figured I would suggest it.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#3 User is offline   heatherjane 

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Posted 23 September 2009 - 07:18 PM

View Postravenwoodglass, on Sep 23 2009, 09:53 PM, said:

The NIH has a product database. You may be able to do a search of it and see if the product is listed. If it is the database will tell you what is in it and what it is derived from. Not everything is in there and in the long run it may be easier to just call the company but figured I would suggest it.


Cool - thanks! What is NIH? I'm assuming it's online somewhere?
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#4 User is offline   ravenwoodglass 

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Posted 24 September 2009 - 02:18 AM

View Postheatherjane, on Sep 23 2009, 07:18 PM, said:

Cool - thanks! What is NIH? I'm assuming it's online somewhere?


The NIH is the National Institute of Health. If you do a search putting in NIH and the product name it may come up in the results if they have a listing for the product.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#5 User is offline   dilettantesteph 

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Posted 24 September 2009 - 05:46 AM

I play saxophone. One time I very absentmindedly put some cork grease on my lips thinking that it was lip balm. I was very worried that it might contain gluten. I rubbed it off right away. I am so sensitive to gluten that I have cut out almost all processed foods, yet the cork grease/lip balm did not make me sick, so I think that it is safe. The brand was the store brand for Music and Arts stores. It looks like normal cork grease.
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#6 User is offline   ilikepie 

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Posted 02 October 2009 - 10:50 AM

I've played the clarinet for about ten years, I grease my corks every time I put my instrument together, and have never noticed a problem from cork grease. I am also very sensitive to even trace amounts of gluten. I don't have much brand loyalty when it comes to cork grease either. Vandoren, Woodwind Brasswind, or any generic store brand I buy has never caused a problem.

That being said, let us know if you find a brand you have a problem with!
Your body is speaking. Are you listening?
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#7 User is offline   heatherjane 

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Posted 28 October 2009 - 08:35 PM

I emailed Yamaha, which is the brand I'm currently using, and a customer service rep emailed me two PDFs of the MSDS (material safety data sheets) for their cork greases.

The one I'm using is made up of Petrolatum, synthetic wax, and tallow blends (animal fats, i guess), and wintergreen scent. The sheet for the other one, labeled "organic", says Vaseline and hydrogenated palm oil. My hunch is that other brands would be similar... basically petroleum/oil based.

So, I think we're ok on all this, but I wouldn't want to put it on my lips. :P
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#8 User is offline   LuvMoosic4life 

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Posted 29 October 2009 - 07:05 PM

I've never had a problem and I play clarinet. Actually, I ran out of cork grees and used vaseline- works just as well :D
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#9 User is offline   celiac-mommy 

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Posted 29 October 2009 - 08:50 PM

Yeah, I just used to use my Carmex ;)
Rachelle Posted Image

Daughter diagnosed 1/06 bloodwork and biopsy
-gluten-free since 1/06

Son tested negative-bloodwork (8/07), intestinal issues prompted biospy (3/08), results negative, but very positive dietary response, Dr. diagnosed Celiac disease (3/8)


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#10 User is offline   Swimmr 

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Posted 30 October 2009 - 01:50 AM

I play flute/piccolo.

However the last time I picked it up I had no idea I had a problem with gluten/wheat intolerance. I figured I'd pipe up since it's always nice knowing who played woodwinds.

Yay for woodwinds :lol:
-Self-diagnosed gluten/wheat intolerance 2007. Negative (basic) blood test for celiac disease March 2009.
-Diagnosed positive for Celiac 5/11/2010!!
-Vitamin D low (last year was deficient), Iodine low, Protein S low. Balance/dizziness not related to Celiac.
-Elimination diet 11-4-2009 and ended 02-28-2010. Tolerating dairy again. Highly intolerant to soy, sensitive to green peas and corn kernels.
"Oh CRAP! Are you SERIOUS??
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#11 User is offline   heatherjane 

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Posted 01 November 2009 - 08:10 PM

View PostSwimmr, on Oct 30 2009, 04:50 AM, said:

I play flute/piccolo.

However the last time I picked it up I had no idea I had a problem with gluten/wheat intolerance. I figured I'd pipe up since it's always nice knowing who played woodwinds.

Yay for woodwinds :lol:


Woodwinds rule, Brass drool. :lol: Does that remind anyone of middle school band?

Shortly after getting diagnosed, I threw out my old reeds that I'm sure could have absorbed gluten if I hadn't had a chance to brush before playing. I disinfected my mouthpiece too. I love to play, and there's no way I'm getting glutened from it!
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#12 User is offline   Imanistj 

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Posted 01 November 2009 - 10:34 PM

I haven't played for years but I still consider myself a bassoonist :)
Nancy

I really am an ISTJ (Myers-Briggs Personality Type).
Responsible pet owners spay and neuter.
Please Google prosopagnosia, a neurological deficit also called facial amnesia or faceblind. Yup, I have it.

Poor me--gluten free.

I'll have a grilled cheese sandwich--hold the bread.
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