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History...and Can These All Be Causes


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#1 Sniffy911

 
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Posted 23 September 2009 - 07:04 PM

First off, I'm newly diagnosed Celiac Disease patient for about a month now, and I'm also new to the fourms.

Now....IDK how much of this history may relate, or cause other problems that lead up to when i began having problems, but I have been assured it hasn't added to my Current situation, and just want to get some feedback from the general public and people who have coped with problems...

Last year, In September one night, I layed down to go to sleep and instantly got this pain in my left arm...and all of a sudden, I lost my breath and started to become really gassy, burping, everything. During this time I was also undergoing a Sinus Infection. I started to have a panic attack and went to the E.R. They just said I had a sinus infection and sent me home with some meds to clear it up. My sinus infection Cleared up, but I still had this shortness of breath that would get on my nerves...Later on I would start to experience stomache pains, and some heart burn. I would also feel this thing like a lump sitting in the back on my throat all the time. This became very uncomfortable for the face that my throat hurt, I have a constant shortness of breath, and heart burn and burping. I was miserable. I was put on Omeprazle being told it was probably Acid Reflux....

This medication seemed to dull the pain for a little, but not for long. I started having all the chest pains come back....Which includes a feel of bloading, where my stoache feels so tight but and the same time, hurts when you just let it hang. Also my chest has always been really tight, and I always have phlegm or a sensation of mucus in my throat and chest. One of the doctors gave me the "Its all in your head" speech. I was not convinced though...So i'v was sent nemerous places...Ent, Pulminary, both saying they can't find anything wrong....I had Throat Xrays, Chest xrays, Chest CT scans, upper and lower GI xrays, Sinus CT scans...All came out fine...So i finally got sent to a GI doctor about 11 months while all these problems were reoccuring.

He gave me a massive list of bloodwork to get done. I got the results of everything coming back clear, but traces of Celiac Sprue in my blood. I then got an endoscopy scheduled about 2 weeks later. From that they took biopsies, but from the initial search he said I was fine. When the biopsies were tested it was confirmed I had Celiac Sprue, and I have been on a diet for about a month with no changes as of yet....

This all occured when I was 17, and shorly turned 18 about 4 months after the symptoms I have started. My senior year of High School was a wreck and I missed a lot of classes, but managed to graduate. I'm in college now and It just seems like the worst time to lose that feeling of being invincible, its making life just that much tougher....

So could Celiac Disease randomly come on like that, which is my question...Can it cause the lump in the throat, the constant tightness in the cheast, and not being able to breathe amazingly. Can it cause all these symptoms ? I also get stinging eyes where I have to shut them as they water and I feel almoster a tremor and my ears beging to feel pressure as well...and my ears will randomly feel plugged. I'v had allergy testing and I'm on a lot of allergy medication and getting shots for them. I am also scheduled to get a lung functioning test to see if asthma is a cause of my shortness of breath. I'v always have had horrible shoulder and back pain...I feel some Days that I'm going to die because its so horrible.

Just a month before all these problems though...I was depressed and went through a drug deal, where I digested morning glory seeds (which have mercury on them) and are susppose to give a LSA affect...I was told the poison would pass though from poison control, I threw it all up anyways. For a month after though I was fine....The same ole me how I always was feeling good ! My other friends that experienced this too are also all healthy, but it scares me because i feel like maybe I ruined my life from it....but I feel as if I had problems they wouldn't suddenly occur a month later, and I was diagnosed with Celiac Disease...

I just feel alone, and need some encouragement. I really don't feel anxiety, but I do feel trapped when I go places with my problems, because sometimes they act up or sometimes I could be having a good day. The constant shortness of breath though is constant...that really is my biggest concern because my lungs and etc are fine !Could I also be having some problems to other substances like Soy, that i'v heard a lot about ? Is there testing I can do that could distinguish problems from others ?

Plz help me !
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#2 mushroom

 
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Posted 23 September 2009 - 08:45 PM

First off, I'm newly diagnosed Celiac Disease patient for about a month now, and I'm also new to the fourms.

Now....IDK how much of this history may relate, or cause other problems that lead up to when i began having problems, but I have been assured it hasn't added to my Current situation, and just want to get some feedback from the general public and people who have coped with problems...

Last year, In September one night, I layed down to go to sleep and instantly got this pain in my left arm...and all of a sudden, I lost my breath and started to become really gassy, burping, everything. During this time I was also undergoing a Sinus Infection. I started to have a panic attack and went to the E.R. They just said I had a sinus infection and sent me home with some meds to clear it up. My sinus infection Cleared up, but I still had this shortness of breath that would get on my nerves...Later on I would start to experience stomache pains, and some heart burn. I would also feel this thing like a lump sitting in the back on my throat all the time. This became very uncomfortable for the face that my throat hurt, I have a constant shortness of breath, and heart burn and burping. I was miserable. I was put on Omeprazle being told it was probably Acid Reflux....

This medication seemed to dull the pain for a little, but not for long. I started having all the chest pains come back....Which includes a feel of bloading, where my stoache feels so tight but and the same time, hurts when you just let it hang. Also my chest has always been really tight, and I always have phlegm or a sensation of mucus in my throat and chest. One of the doctors gave me the "Its all in your head" speech. I was not convinced though...So i'v was sent nemerous places...Ent, Pulminary, both saying they can't find anything wrong....I had Throat Xrays, Chest xrays, Chest CT scans, upper and lower GI xrays, Sinus CT scans...All came out fine...So i finally got sent to a GI doctor about 11 months while all these problems were reoccuring.

He gave me a massive list of bloodwork to get done. I got the results of everything coming back clear, but traces of Celiac Sprue in my blood. I then got an endoscopy scheduled about 2 weeks later. From that they took biopsies, but from the initial search he said I was fine. When the biopsies were tested it was confirmed I had Celiac Sprue, and I have been on a diet for about a month with no changes as of yet....

This all occured when I was 17, and shorly turned 18 about 4 months after the symptoms I have started. My senior year of High School was a wreck and I missed a lot of classes, but managed to graduate. I'm in college now and It just seems like the worst time to lose that feeling of being invincible, its making life just that much tougher....

So could Celiac Disease randomly come on like that, which is my question...Can it cause the lump in the throat, the constant tightness in the cheast, and not being able to breathe amazingly. Can it cause all these symptoms ? I also get stinging eyes where I have to shut them as they water and I feel almoster a tremor and my ears beging to feel pressure as well...and my ears will randomly feel plugged. I'v had allergy testing and I'm on a lot of allergy medication and getting shots for them. I am also scheduled to get a lung functioning test to see if asthma is a cause of my shortness of breath. I'v always have had horrible shoulder and back pain...I feel some Days that I'm going to die because its so horrible.

Just a month before all these problems though...I was depressed and went through a drug deal, where I digested morning glory seeds (which have mercury on them) and are susppose to give a LSA affect...I was told the poison would pass though from poison control, I threw it all up anyways. For a month after though I was fine....The same ole me how I always was feeling good ! My other friends that experienced this too are also all healthy, but it scares me because i feel like maybe I ruined my life from it....but I feel as if I had problems they wouldn't suddenly occur a month later, and I was diagnosed with Celiac Disease...

I just feel alone, and need some encouragement. I really don't feel anxiety, but I do feel trapped when I go places with my problems, because sometimes they act up or sometimes I could be having a good day. The constant shortness of breath though is constant...that really is my biggest concern because my lungs and etc are fine !Could I also be having some problems to other substances like Soy, that i'v heard a lot about ? Is there testing I can do that could distinguish problems from others ?

Plz help me !

Hi, Sniffy, and welcome to the forum. I don't know how much help I can be to you, but will give you some thoughts.

First off, most of us who develop celiac disease are born with a predisposition to it. Some babies are born with it, but most of us who are diagnosed later have some trigger event which sets it off. For some it is pregnancy, for others it is trauma, stress, surgery, whatever. It is entirely possible that your system reacted adversely to the depression/morning glory/mercury but if that is true you just have to accept it and move on and deal with the now, because you can't take it back.

Celiac can cause excessive mucous and phlegm, certainly gas, bloating and burping, heartburn and GERD, and some neurological symptoms.(neuropathies, tingling, numbness, ataxia etc.) Have you been checked for mercury poisoning from the morning glory? Because I have no idea other than the suggested asthma what is causing your breathing problems. Others might be able to help you with this. Gluten can also cause body aches and pains, arthritis, so-called fibromyalgia -- there are hundreds of symptoms and illnesses that can be attributed to gluten including many other autoimmune diseases.

Please don't feel bad about the morning glory, because if that hadn't triggered your celiac something else probably would have; but do get the mercury aspect checked out. "Probably" passing through your system doesn't sound good enough to me, although it well may have. Keep pushing your doctors until you get to the bottom of your symptoms because doctors are all too ready to send you on your way with platitudes.

Keep asking questions here and everybody will help you as much as we can. {{{{Hugs}}}}
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#3 Sniffy911

 
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Posted 23 September 2009 - 09:20 PM

Hi, Sniffy, and welcome to the forum. I don't know how much help I can be to you, but will give you some thoughts.

First off, most of us who develop celiac disease are born with a predisposition to it. Some babies are born with it, but most of us who are diagnosed later have some trigger event which sets it off. For some it is pregnancy, for others it is trauma, stress, surgery, whatever. It is entirely possible that your system reacted adversely to the depression/morning glory/mercury but if that is true you just have to accept it and move on and deal with the now, because you can't take it back.

Celiac can cause excessive mucous and phlegm, certainly gas, bloating and burping, heartburn and GERD, and some neurological symptoms.(neuropathies, tingling, numbness, ataxia etc.) Have you been checked for mercury poisoning from the morning glory? Because I have no idea other than the suggested asthma what is causing your breathing problems. Others might be able to help you with this. Gluten can also cause body aches and pains, arthritis, so-called fibromyalgia -- there are hundreds of symptoms and illnesses that can be attributed to gluten including many other autoimmune diseases.

Please don't feel bad about the morning glory, because if that hadn't triggered your celiac something else probably would have; but do get the mercury aspect checked out. "Probably" passing through your system doesn't sound good enough to me, although it well may have. Keep pushing your doctors until you get to the bottom of your symptoms because doctors are all too ready to send you on your way with platitudes.

Keep asking questions here and everybody will help you as much as we can. {{{{Hugs}}}}



Thank you so much for your words !!! They really did mean a lot. Its nice to get clear information, because sadly, most doctors don't even know the symptoms of Celiac Disease. I do feel very bummed about what happened....being in a depressed state is never a good situation, and following others when you can't think clearly for yourself. I for one do not think I would have been mercury poisoned...I was in the ER and watch all night during the situation hooked up to an IV, and the seeds I digested all came out very shorty after upsetting my stomache. Also Mercury is illegal and there would be very little traces on the seeds. I also don't know how Mercury poisoning works though, but I would think I would have it cleansed out of my body by now. I can definately ask for a Mercury test though, it wouldn't hurt. I would think they'd be able to tell through other tests I'v had though, like the urine, which came out fine, and all the other thousands of blood work tests I'v been through ! My loss of breath also came a long with the gas, and the sinus infection which you stated I could be having problems from celiac disease, so maybe its all related to respiratory problems followed by celiac disease ?
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#4 Sniffy911

 
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Posted 24 September 2009 - 11:47 AM

Any other help from people would be greatly appreciated here !!! Don't be afraid to post even if you don't think it'll help, cause believe me...anything and everything helps me get through each day easier !

I read in a book on Celiac Disease, that it can cause upper respitory problems...Could this be causing my shortness of breath ? Or has anyone else experienced this while having celiac disease ? All help is appreciated !
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#5 OliveBranch

 
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Posted 24 September 2009 - 02:26 PM

Hi Sniffy,

I'm not an expert and am still new to all this myself (and not yet healed), but I can definitely relate to your shortness of breath problem. This has been a big issue for me--I've had my lungs listened to repeatedly and had an asthma test (though in the healthy years of my life I NEVER had a breathing problem before), and all was apparently normal. Nonetheless, I often have felt like I couldn't get a deep breath; this was almost always accompanied by gas and burping. It has gotten a lot better since going gluten free two months ago, but it still pops up when I eat something that doesn't agree with me. It is frightening to feel like you can't breathe properly, but I just remind myself that it has never gotten serious enough to be dangerous. I have seen other threads here discussing shortness of breath, and it seems to be fairly common among celiacs.

Also, I have had sinus issues -- I even had an unnecessary sinus surgery last spring because I was hoping that it would clear up my more systemic symptoms (it made no difference at all, ultimately). And one of my other most distressing symptoms is a dull pain that I feel in my back and shoulders -- almost not even pain, but a deep, aching fatigue and misery, which sounds a little like what you describe.

So you are NOT alone! I'm definitely praying that my symptoms will continue to fade as I stick to the gluten-free diet (and eliminate other foods that are not agreeing with me), and I hope this will work for you, too. Be very careful to avoid ALL sources of gluten -- you'll find lots of advice about how to do that here on these forums. I also agree with Mushroom that you should have the mercury thing checked out, just to be safe.

Good luck!

Any other help from people would be greatly appreciated here !!! Don't be afraid to post even if you don't think it'll help, cause believe me...anything and everything helps me get through each day easier !

I read in a book on Celiac Disease, that it can cause upper respitory problems...Could this be causing my shortness of breath ? Or has anyone else experienced this while having celiac disease ? All help is appreciated !


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#6 ang1e0251

 
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Posted 25 September 2009 - 10:08 AM

SNIFFY911!! Welcome to the forum!

I'm very excited because I was just reading the soy thread under this same topic heading and a couple of the people there said soy causes them breathing problems. Go read through that right now and see if you can relate to any of them. Maybe that's your answer.
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#7 Sniffy911

 
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Posted 25 September 2009 - 12:47 PM

Thanks for the advice !!! Being new to this sort of thing is hard...cause all I was basically told was to stay on a gluten free diet, and to shop at places like Henry's, Trader Joes, Fresh and Easy, etc...All I have majorly been doing is buying food products that are gluten free, and making sure they're not processed in a wheat factory as well. When I read these fourms though....it looks like celiac can take many directions, its almost frightening. I'v never been tested for food allergies, should I look into it ? Would it even necessary show if I had a soy intolerance or anything else of the sort ? How could I even tell though on my diet....cause so far I'm just doing gluten free and I don't know how long that could take to show results, and if there may be that soy hiding in with it. How can a person tell !?!?!?!

My main problems that I deal with are A lot of the phelgm and Mucous causing a lot of congestion. I also cough and spit up this goopyness in my stomache, and almost feels like maybe that causes some of my breathing issues...I also formulate a lot of saliva in my mouth and feel like I constantly have to spit, which feels like it dries my mouth and sorta makes me feel the heart burn and burning in my chest and throat area which also comes with the burping that causes problems too.

From what people have said though, I shouldn't be suprised that Celiac Disease can cause these problems...so i'm crossing my fingers.

I'm on a gluten free diet....but where should I go from there !?!?!
these problems are devestating to an 18 year old....and feel like they'll never disappear !
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