Interests:Gardening, photograpy, painting and drawing, textile arts, glass art, reading
Location:Upstate NY
Posted 24 September 2009 - 04:28 AM
I hope you have a wonderful day!!!!
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
Interests:I love having new friends that can identify with me--I like talking to people who know what i am and have gone through and who can also share their trials with this disease with me and whom I can share mine with--my sister is also celiac, as is my father---anyone out there wanting to talk with me, feel free to email me anytime--include in the subject line that its about celiacs--I dont open just anything--thank you, Deb
Location:LONG ISLAND, NEW YORK
Posted 24 September 2009 - 04:27 PM
Quote
Phoebe Buffay & Penny Lane say "woof woof" (that's how they say Happy Birthday)!
You tell them thank you, which one is your avatar, sure is cute. Hope your birthday was good too. Thanks to everyone.
Deb
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
And further happy birthday wishage! Hey, it isn't midnight yet.
The fluffy assassin? My cat, Amelia. Just fluffy, really.
About '02, lactose intolerance hit. Quit gluten in late '07. Immediately had better energy, less anxiety.
By '09, no lactose intolerance, but I gave up dairy 7/18/09 anyway (and in August soy), trying to defeat Asperger's 47 years late.
7/24/09 Realizing I'd accidentally put myself on a low-fiber diet, I started eating more vegetables.
9/12/09 Wound up in the emergency room with what turned out to be hypothyroid symptoms. Resolved quickly when I got my iodine levels up. If you're on a whole foods diet, make sure you get enough iodine. Believe me!
1960s-had symptoms-could have been before but don't remember
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease) May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world