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4 replies to this topic

#1 Nicole H.

 
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Posted 27 September 2009 - 01:17 PM

Does anyone ever experience getting glutened and not knowing where it came from?!? I wish we had a self blood tester so we could see if our numbers are up after we feel glutened so that we can narrow down what the culprit was! Anyway, I have had a headache for days and I dont know if I was glutened or Im just sick! Thats another thing I get frustrated about. Everytime I feel off I blame it on gluten but Im not even sure if thats what it is. If I had an allergy or intolerance to something else, like corn, soy, dairy, casein...whatever it may be...what it do damage like celiac, or would it just be something that happens and its my decision whether I want to deal with the side affects? Thanks for the help.
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#2 Gfresh404

 
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Posted 28 September 2009 - 12:45 AM

Does anyone ever experience getting glutened and not knowing where it came from?!? I wish we had a self blood tester so we could see if our numbers are up after we feel glutened so that we can narrow down what the culprit was! Anyway, I have had a headache for days and I dont know if I was glutened or Im just sick! Thats another thing I get frustrated about. Everytime I feel off I blame it on gluten but Im not even sure if thats what it is. If I had an allergy or intolerance to something else, like corn, soy, dairy, casein...whatever it may be...what it do damage like celiac, or would it just be something that happens and its my decision whether I want to deal with the side affects? Thanks for the help.


I used to think I was getting glutened a lot of the time (when I really wasn't) when I first started out. Turned out I was just bloated because I wasn't properly digesting/absorbing fats. I have found that if you're pretty sure it's not gluten, it's always something else.

How long have you been gluten free? If it hasn't been that long then it's probably safe to say the gluten is messing you up. It really does effect virtually every other organ. I would definitely cut out dairy for a while, especially any lactose and casein. These can cause symptoms very similar to that of ingesting gluten. Casein has a very similar protein structure as to that of gluten and temporary lactose intolerance with Celiac is very common.

If you did have another food allergy, it is very unlikely that it too would damage your small intestine like Celiac does. If anything it would probably cause inflammation and/or irritation somewhere else in the body.

You could try keeping a food diary and try to notice when you feel like crap. I did that for a while and found out I have to take it easy on fats and no whole grains or cruciferous vegetables.
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#3 Nicole H.

 
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Posted 28 September 2009 - 06:29 AM

I used to think I was getting glutened a lot of the time (when I really wasn't) when I first started out. Turned out I was just bloated because I wasn't properly digesting/absorbing fats. I have found that if you're pretty sure it's not gluten, it's always something else.

How long have you been gluten free? If it hasn't been that long then it's probably safe to say the gluten is messing you up. It really does effect virtually every other organ. I would definitely cut out dairy for a while, especially any lactose and casein. These can cause symptoms very similar to that of ingesting gluten. Casein has a very similar protein structure as to that of gluten and temporary lactose intolerance with Celiac is very common.

If you did have another food allergy, it is very unlikely that it too would damage your small intestine like Celiac does. If anything it would probably cause inflammation and/or irritation somewhere else in the body.

You could try keeping a food diary and try to notice when you feel like crap. I did that for a while and found out I have to take it easy on fats and no whole grains or cruciferous vegetables.



Thanks, Ive been gluten free since February...So Im not sure if thats long or not. I know my numbers for my ttg are really low (4)...so my doctor said Im def. staying away from gluten. As for the dairy, it doesnt seem to bother me(at least I dont think!) haha maybe I dont want it to. I love milk, yogurt, cheese! so who knows. I did do the food diary for a while and then stopped, maybe ill try it again!
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#4 GFgirlGF

 
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Posted 03 October 2009 - 03:07 PM

Thanks, Ive been gluten free since February...So Im not sure if thats long or not. I know my numbers for my ttg are really low (4)...so my doctor said Im def. staying away from gluten. As for the dairy, it doesnt seem to bother me(at least I dont think!) haha maybe I dont want it to. I love milk, yogurt, cheese! so who knows. I did do the food diary for a while and then stopped, maybe ill try it again!



Ive been gluten-free since feb as well, and i decided to try no dairy even though i really really did not want to! but its been 6 months and im starting to add it slowly back into my diet and honestly it helped a lot! i did not think that i t was the problem in the beginning but it really was! i started getting lactose free ice cream and almond milk and it helped i would still eat a piece of cheese here and there and i could tell! but really after a couple months you can slowly work it back in once the damage in your intestines start to heal up! hope this helps!
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#5 Ahorsesoul

 
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Posted 03 October 2009 - 03:30 PM

Food diary is the way to go. It will show patterns that you might not think of when looking back over a few days or weeks. Just make sure to record everything including things put on your lips (chap stick), toothpaste change and gum or small breath mints.
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1960s-had symptoms-could have been before but don't remember
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world




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