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Does anyone ever experience getting glutened and not knowing where it came from?!? I wish we had a self blood tester so we could see if our numbers are up after we feel glutened so that we can narrow down what the culprit was! Anyway, I have had a headache for days and I dont know if I was glutened or Im just sick! Thats another thing I get frustrated about. Everytime I feel off I blame it on gluten but Im not even sure if thats what it is. If I had an allergy or intolerance to something else, like corn, soy, dairy, casein...whatever it may be...what it do damage like celiac, or would it just be something that happens and its my decision whether I want to deal with the side affects? Thanks for the help.

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Does anyone ever experience getting glutened and not knowing where it came from?!? I wish we had a self blood tester so we could see if our numbers are up after we feel glutened so that we can narrow down what the culprit was! Anyway, I have had a headache for days and I dont know if I was glutened or Im just sick! Thats another thing I get frustrated about. Everytime I feel off I blame it on gluten but Im not even sure if thats what it is. If I had an allergy or intolerance to something else, like corn, soy, dairy, casein...whatever it may be...what it do damage like celiac, or would it just be something that happens and its my decision whether I want to deal with the side affects? Thanks for the help.

I used to think I was getting glutened a lot of the time (when I really wasn't) when I first started out. Turned out I was just bloated because I wasn't properly digesting/absorbing fats. I have found that if you're pretty sure it's not gluten, it's always something else.

How long have you been gluten free? If it hasn't been that long then it's probably safe to say the gluten is messing you up. It really does effect virtually every other organ. I would definitely cut out dairy for a while, especially any lactose and casein. These can cause symptoms very similar to that of ingesting gluten. Casein has a very similar protein structure as to that of gluten and temporary lactose intolerance with Celiac is very common.

If you did have another food allergy, it is very unlikely that it too would damage your small intestine like Celiac does. If anything it would probably cause inflammation and/or irritation somewhere else in the body.

You could try keeping a food diary and try to notice when you feel like crap. I did that for a while and found out I have to take it easy on fats and no whole grains or cruciferous vegetables.

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I used to think I was getting glutened a lot of the time (when I really wasn't) when I first started out. Turned out I was just bloated because I wasn't properly digesting/absorbing fats. I have found that if you're pretty sure it's not gluten, it's always something else.

How long have you been gluten free? If it hasn't been that long then it's probably safe to say the gluten is messing you up. It really does effect virtually every other organ. I would definitely cut out dairy for a while, especially any lactose and casein. These can cause symptoms very similar to that of ingesting gluten. Casein has a very similar protein structure as to that of gluten and temporary lactose intolerance with Celiac is very common.

If you did have another food allergy, it is very unlikely that it too would damage your small intestine like Celiac does. If anything it would probably cause inflammation and/or irritation somewhere else in the body.

You could try keeping a food diary and try to notice when you feel like crap. I did that for a while and found out I have to take it easy on fats and no whole grains or cruciferous vegetables.

Thanks, Ive been gluten free since February...So Im not sure if thats long or not. I know my numbers for my ttg are really low (4)...so my doctor said Im def. staying away from gluten. As for the dairy, it doesnt seem to bother me(at least I dont think!) haha maybe I dont want it to. I love milk, yogurt, cheese! so who knows. I did do the food diary for a while and then stopped, maybe ill try it again!

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Thanks, Ive been gluten free since February...So Im not sure if thats long or not. I know my numbers for my ttg are really low (4)...so my doctor said Im def. staying away from gluten. As for the dairy, it doesnt seem to bother me(at least I dont think!) haha maybe I dont want it to. I love milk, yogurt, cheese! so who knows. I did do the food diary for a while and then stopped, maybe ill try it again!

Ive been gluten-free since feb as well, and i decided to try no dairy even though i really really did not want to! but its been 6 months and im starting to add it slowly back into my diet and honestly it helped a lot! i did not think that i t was the problem in the beginning but it really was! i started getting lactose free ice cream and almond milk and it helped i would still eat a piece of cheese here and there and i could tell! but really after a couple months you can slowly work it back in once the damage in your intestines start to heal up! hope this helps!

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Food diary is the way to go. It will show patterns that you might not think of when looking back over a few days or weeks. Just make sure to record everything including things put on your lips (chap stick), toothpaste change and gum or small breath mints.

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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