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Hello all,

I recently found out that I have Celiacs Disease. I was worried at first because I had no idea what that was and thought right away that it was over. Well as you can imagine , i am relieved somewhat to know that the only thing that is over is my past eating life. I started this past saturday Gluten free and I am still trying to wrap my head around this disease, and I am slowly getting to understand it. It is a difficult thing to become gluten free over night as y'all know.

I am from central Wisconsin and have lived here for the past 2 years. For years I was misdiagnosed as Lactose intollerant. My wife and kids are being very supportive with the change in our lives, and I hope that I can return the favor 10 fold someday when they need me for more than a father and husband.

This website has been very helpfull and I hope y'all don't mind if I ask alot of questions.

Thank you and remeber, Life is good...

K Dog

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Hello all,

I recently found out that I have Celiacs Disease. I was worried at first because I had no idea what that was and thought right away that it was over. Well as you can imagine , i am relieved somewhat to know that the only thing that is over is my past eating life. I started this past saturday Gluten free and I am still trying to wrap my head around this disease, and I am slowly getting to understand it. It is a difficult thing to become gluten free over night as y'all know.

I am from central Wisconsin and have lived here for the past 2 years. For years I was misdiagnosed as Lactose intollerant. My wife and kids are being very supportive with the change in our lives, and I hope that I can return the favor 10 fold someday when they need me for more than a father and husband.

This website has been very helpfull and I hope y'all don't mind if I ask alot of questions.

Thank you and remeber, Life is good...

K Dog

Welcome to the forum, K Dog. I hope you will find this place to be a home away from home and it is certainly an excellent place to find answers to lots of questions. Our members have varying levels of knowledge about different things from genetics to testing results, with lots of personal experience of the kinds of things you are likely to encounter.

The first thing, as you obviously understand, is that we all make many mistakes at first. All we can do is educate ourselves and learn where to look for gluten. It most certainly is hidden in a lot of processed foods, it pops up in places we are least likely to expect it, like marmalade and ham (WIH, why is there gluten in these things??) and more obviously in sauces, in marinades (soy sauce, e.g.). It can be found in ice cream, but if you are lactose intolerant you will not be eating that anyway :(

The first thing that is hard is that you have to read every label, which means grocery shopping takes 2-3 times as long as it used to and you need good eyesight :P The second part is looking for gluten in all your personal care products and in your medications. Unfortunately, the FDA does not require pharmaceutical manufacturers to identify which products contain gluten, so you will have to ask your pharmacist or check with each drug company yourself whether or not their product contains gluten. I can honestly say the only times I have been glutened is from prescription medications. Many of our forum members take their cellphone shopping and dial the companies' 800 numbers to help determine whether or not a product is gluten free.

It is recommended by forum members to replace toasters,scratched teflon pans, wooden spoons, colanders, all kitchen utensils that cannot be completely free of gluten. If you are going to be having a shared kitchen, as it seems you will, you need a dedicated gluten-free working space that no gluten food touches and a gluten free corner of the refrigerator for your gluten-free items as well as your own utensils. Your family needs to be educated that these are no-go zones for them. And you will need your own jars of spread, jams, etc., that will not have any gluteny knives or spoons dipping into them because of the cross-contamination issue. Your family may think this is a bit extreme at first but you can educate them that this is necessary. While we are on the subject of family, since celiac is a genetically inherited disorder, it is recommended that all first degree relatives should be tested (this means yhour children should be tested too).

Good luck on your new gluten free lifestyle and feel free to pop back in with any question you may have. Our members are very obliging. :D

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Wow, so I guess my OCD will come in handy here with clean prep place...lol Is it safe to assume that beef ,pork and chicken prepared by me in my smoker as well as my grill will be gluten free? I dont use sauces on the meets, just salt and pepper. And Fish as well is Gluten free as long as it isnt coated in the junk from restaurants :D . I believe my oldest son has the same thing and I will adress that issue shortly with him.

Thanks for the usefull info. ( didnt think that vitamins and deo would have gluten in it ,but I now know I need to check everything that is associated with me ) :huh:

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Welcome K Dog,

Did you live anywhere near Madison? I moved here from Lake Kegonsa, which is just south of Madison.

Mushroom has given you a lot of good advice that I can't really add much to, but feel free to ask question, or just talk, or if you feel the need to vent, this is the place to be. There's always someone who can help you out.

Again, welcome.

Susan

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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