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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Swine Flu Shot - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Swine Flu Shot Who is getting one? Rate Topic: -----

#1 User is offline   twe0708 

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Posted 29 September 2009 - 01:34 PM

Can you please say yes or no if you are getting the shot.
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#2 User is offline   ENF 

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Posted 29 September 2009 - 01:38 PM

Is a poll like this really necessary on a Celiac/Gluten-Free board?
Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)
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#3 User is offline   twe0708 

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Posted 29 September 2009 - 01:47 PM

View PostENF, on Sep 29 2009, 01:38 PM, said:

Is a poll like this really necessary on a Celiac/Gluten-Free board?


Why not? Aren't we the ones with an underlying health condition that they are saying should get the shot. Just wondering what others think and I am sure I'm not the only one.
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#4 User is offline   ranger 

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Posted 29 September 2009 - 03:12 PM

View PostENF, on Sep 29 2009, 01:38 PM, said:

Is a poll like this really necessary on a Celiac/Gluten-Free board?


I think that this thread is for anything but celiac. So, it is absolutely appropriate to ask that question.
No, I am not going to get the swine flu shot. I have never gotten a flu shot, but I do get the pnuemonia ( SP) shot.

Susan
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#5 User is offline   ENF 

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Posted 29 September 2009 - 03:53 PM

View Postranger, on Sep 29 2009, 07:12 PM, said:

I think that this thread is for anything but celiac. So, it is absolutely appropriate to ask that question.
Susan

It belongs on this forum area, where it was moved to, but was originally placed in the Celiac Disease -Coping With forum. That was what I was referring to. Most people that have Celiac, and are on a gluten-free diet, are probably not going to be eligible to get the Swine Flu vaccine unless they have other issues that the CDC recognizes.
Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)
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#6 User is offline   Jestgar 

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Posted 29 September 2009 - 03:55 PM

View PostENF, on Sep 29 2009, 04:53 PM, said:

Most people that have Celiac, and are on a gluten-free diet, are probably not going to be eligible to get the Swine Flu vaccine.

Why would you say that?
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#7 User is offline   psawyer 

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Posted 29 September 2009 - 04:03 PM

View PostENF, on Sep 29 2009, 07:53 PM, said:

It belongs on this forum area, where it was moved to, but was originally placed in the Celiac Disease -Coping With forum. That was what I was referring to.

Yes, it was in the wrong place, and I moved it here. In the future, if you think a post is inappropriate or in the wrong place, please use the REPORT button to alert a moderator.
Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#8 User is offline   ENF 

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Posted 29 September 2009 - 04:11 PM

View PostJestgar, on Sep 29 2009, 07:55 PM, said:

Why would you say that?

Just having Celiac Disease would be related to the last category below, and if you're on the diet your immune system probably isn't compromised enough anymore to warrant the Swine Flu vaccination. I'd like to know what doctors like Peter H. Green and Alessio Fasano are advising their patients to do, and if they are giving Swine Flu shots at the Celiac Disease Center of Columbia University and the University of Maryland Center for Celiac Research.

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According to guidelines drafted by the Centers for Disease Control and Prevention (CDC), there are five key populations that should be vaccinated against the H1N1 virus:

*Pregnant women

*People who live with or care for children younger than 6 months of age

Children and young people between the ages of 6 months and 24 years

*Health care workers and emergency medical service providers

*People between 25 and 64 years of age who have chronic medical disorders or compromised immune systems

Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)
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#9 User is offline   ranger 

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Posted 29 September 2009 - 04:13 PM

I understand that the priorities for the H1N1 shot are :

Healthcare workers
people that care for young children
Pregnant women
Persons under 24
Persons whose autoimmune systems have been compromised

There is no mention of celiacs in any list that I have seen, one way or the other. And, it could be argued, that a celiac on a gluten free diet has not got an autoimmune system that has been compromised. But a celiac not on the gluten free diet has an autoimmune systom that is compromised. I don't think the CDC has gotten into those nuances. And, all the rumors!

Susan
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#10 User is offline   lizard00 

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Posted 29 September 2009 - 04:23 PM

I'm supposed to get one because of my daughter, who was 5 1/2 weeks early and has a brother in daycare... I probably would not otherwise. But, I also have to get a flu shot for the same reason.
Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09

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#11 User is offline   ENF 

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Posted 29 September 2009 - 04:25 PM

View Postranger, on Sep 29 2009, 08:13 PM, said:

I understand that the priorities for the H1N1 shot are :
Healthcare workers
Pregnant women
Persons under 24
Persons whose autoimmune systems have been compromised
There is no mention of celiacs in any list that I have seen, one way or the other. And, it could be argued, that a celiac on a gluten free diet has not got an autoimmune system that has been compromised. But a celiac not on the gluten free diet has an autoimmune systom that is compromised. I don't think the CDC has gotten into those nuances. And, all the rumors!

Susan
Since I've been on a gluten-free diet I rarely even catch a cold, and when I do it's usually mild and ends very fast. I believe that my formerly-belabored immune system has returned from the maelstrom with a vengeance, lol, and I hope that others with celiac disease have similar results when they go gluten-free.
Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)
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#12 User is offline   tarnalberry 

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Posted 29 September 2009 - 04:30 PM

As I am pregnant AND have asthma, I will probably be getting both flu vaccines. It has nothing to do with celiac for me.
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
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#13 User is offline   ravenwoodglass 

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Posted 30 September 2009 - 02:58 AM

I won't, never have and never will. I haven't even had a cold since I was diagnosed and see no need for it. My answer would likely be different before I was diagnosed since my immune system was so busy fighting gluten that I caught every bug there was then and was constantly sick with something. Now that gluten is not an issue my immune system seems to do a very good job of fighting off any bugs that are around.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#14 User is offline   lovegrov 

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Posted 30 September 2009 - 05:52 AM

I will get the regular flu shot (as I always do) but probably not the swine flu (I'm 54 and apparently have some resistance as a result). Neither decision has anything to do with celiac.

richard
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#15 User is offline   celiac-mommy 

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Posted 30 September 2009 - 06:26 AM

View Posttarnalberry, on Sep 29 2009, 05:30 PM, said:

As I am pregnant AND have asthma, I will probably be getting both flu vaccines. It has nothing to do with celiac for me.



I didn't know yo0u were preggers-Congratulations!!!


I will get the shot. I am a healthcare worker, and although my 2 Celiac children are very healthy while on their diet, I will not take the chance of bringing something home to them. I've had multiple patients in the last week with KNOWN H1N1 and I'm sure many more who haven't been diagnosed yet. I'm already showering before I leave the hospital, it's been that bad here!!

My kids will get the regular flu shot, and I will discuss more at lenth with their pediatrician at that time regarding them getting the H1N1 vaccine.
Rachelle Posted Image

Daughter diagnosed 1/06 bloodwork and biopsy
-gluten-free since 1/06

Son tested negative-bloodwork (8/07), intestinal issues prompted biospy (3/08), results negative, but very positive dietary response, Dr. diagnosed Celiac disease (3/8)


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