[willabec]

Ok, I have been gluten-free for 7 years now (i'm 39 yrs. old). last year had issues with loose stool. went to gi dr. and told me to lay off dairy and take fiber supplement. I did that for a little bit and things got better. I am now back to the same issue. Sorry for being so graphic, but sometimes it's explosive. went back to Gi dr. a couple of weeks ago. i have been writing down what i eat, when i go to the bathroom and what it's like and i can't come up with a pattern, although there probably is one. the dr. told me to take a pancreatic enzyme...seemed to help only a little, also stayed away from too much fat in diet. his office just called and wants me to have a CT scan. I am getting nervous b/c it could be so many other issues. has anyone ever had this problem, being on a gluten-free diet and it not really working? i am going to take the fiber supplement again tomorrow just to see. can a person with celiac also have ibs? i am just concerned that it could be something serious. any help would be appreciated. thanks.

[Ahorsesoul]

1. Are you really sure your diet is gluten free? As a nurse I thought I was doing ok until I found this site!
2. Is the fiber supplement gluten free?
3. Are you having problems with another food intolerance?

If you keep a diary of everything that goes into your mouth you should find our what is bothering you.

[JillianLindsay]

Of course, the obvious is to make sure 100% you are not somehow getting glutened.

Has your DR done a lactose intolerance test? A food allergies test?

As you know, many people with celiac disease also have lactose intolerance or casein allergy (or other food allergies or intolerances).

Stress and poor diet can also cause D.

I'm sure other people can contribute further ideas The best thing is to try not to worry too much (easy to say, tough to do, I appreciate that) and wait to see what your DR says. I went through every test in the book over the last year when I started having seizures and it ended up being celiac disease, a perfectly manageable condition! Hopefully you'll find out it's nothing serious and something within your control.

Good luck!
Jillian

[ang1e0251]

Does this seem like a typical gluten response to you? What are your normal reactions to gluten? You could have developed a secondary food sensitivity but it's tough to pinpoint it with your food diary. Have you had a celiac disease blood panel recently? It might be good to check on your antibodies and see if you're getting sneaky gluten anywhere.

[willabec]

Ahorsesoul, on Oct 1 2009, 03:59 PM, said:

1. Are you really sure your diet is gluten free? As a nurse I thought I was doing ok until I found this site!
2. Is the fiber supplement gluten free?
3. Are you having problems with another food intolerance?

If you keep a diary of everything that goes into your mouth you should find our what is bothering you.

I am 99% sure my diet is gluten free, especially with the list i have been making. i have not started the fiber supplement and many are gluten free. i cancelled my ct scan...want to try to see if it is a food that is making me like this. i must say that the past few days have been much better. i have been trying to stay away from higher fat foods (not that i really ate alot of them anyway) and not using butter and trying not to eat ice cream. i am thinking maybe lactose sensitivity. if i do eat ice cream, i don't notice anything until the next day. i know each person has a different response time with that. I did reschedule my ct scan for next week. we shall see. i guess what makes me a little nervous is that the dr. did a stool sample and it came back with undigested food in it. i know there are times when this does happen, but i am not sure if i should be concerned, not sure if it's always like that.

[willabec]

ang1e0251, on Oct 2 2009, 07:47 AM, said:

Does this seem like a typical gluten response to you? What are your normal reactions to gluten? You could have developed a secondary food sensitivity but it's tough to pinpoint it with your food diary. Have you had a celiac disease blood panel recently? It might be good to check on your antibodies and see if you're getting sneaky gluten anywhere.

i am not sure....i try very hard not to eat gluten, so i don't know what my typical response is. i am going to try to cut out as much dairy as possible ( i really don't eat alot of it, mostly cheese and ice cream and butter and take some fiber and see if that helps). the past few days i have been better. i asked the dr. about blood work, he said to wait. not sure why, i would think that would be a less invasive proceedure!

[mommida]

Keep up with monitoring your diet.
By any chance are your falling into the gallbladder risk zone? The four "F" 's Female, Fair, Fat (sorry this is not my wording, and please don't take offense) Forty/Fertile.
Please find a doctor you feel comfortable with and continue testing.

[willabec]

mommida, on Oct 6 2009, 10:35 AM, said:

Keep up with monitoring your diet.
By any chance are your falling into the gallbladder risk zone? The four "F" 's Female, Fair, Fat (sorry this is not my wording, and please don't take offense) Forty/Fertile.
Please find a doctor you feel comfortable with and continue testing.

i am going to keep monitoring, trying the fiber and lactaid, you never know! i am near forty, not fat, female and fair...could be gallbladder? i will do more testing soon, just to be on the safe side. thanks!

[Ahorsesoul]

Before I went gluten-free I always had undigested food in my stool.

[willabec]

Ahorsesoul, on Oct 6 2009, 05:22 PM, said:

Before I went gluten-free I always had undigested food in my stool.

i really have been gluten free (at least 99.9%) for 7 years....any ideas?

[ravenwoodglass]

willabec, on Oct 7 2009, 03:09 AM, said:

i really have been gluten free (at least 99.9%) for 7 years....any ideas?

Have you checked with companies to make certain that every med and supplement OTC and script are gluten-free? How about non food items, craft items, household repair materials, pet foods and litters, lotions, shampoos everything you come in contact with?

[nasalady]

ravenwoodglass, on Oct 7 2009, 05:04 AM, said:

Have you checked with companies to make certain that every med and supplement OTC and script are gluten-free? How about non food items, craft items, household repair materials, pet foods and litters, lotions, shampoos everything you come in contact with?

I concur with ravenwoodglass, you should double-check everything.

I truly believed I was OK in the non-food department (I've been gluten free for nearly one year now)....until last week when my husband found that both my shampoo and conditioner had WHEAT in them! I absolutely do not know how I missed it but I did. I'm normally very careful; for example I spent days calling and emailing companies to check every one of my meds (and I take a LOT of meds).

Good luck!

[willabec]

Anyone out there....with regard to my previous post and "problem"- i never had the ct scan b/c my symptoms got better, better stools, ache or burning sensation in belly was better. this all got a little better before taking lactaid (just wanted to see if it would help) and a fiber supplement to help bind stool. however, now it seems like my problems is coming back....any suggestions/thoughts as to what it might be? i have a somewhat constant "ache" in the lower left abdominal area that sometimes goes to the lower left of my back, the loose stool seems to be back, although the frequency of how often i go has gotten better as well. i am going to my PCP for my annual check up on friday. will be having routine bloodwork- GI dr. said to have a standard celiac serology done...any other tests you think? food allergy blood test? i am very concerned that it is colon cancer. i know the internet can be good but it can also be bad- but almost all the symptoms for colon cancer is what i have. help= anyone??

[Wolicki]

Ask your doc to check your gallbladder. Also, couldn't hurt to have your"baseline" colonoscopy. I had my first at forty because my dad had colon cancer. I think it's good for anyone over 40 to have one.

[willabec]

Wolicki, on Oct 25 2009, 12:46 PM, said:

Ask your doc to check your gallbladder. Also, couldn't hurt to have your"baseline" colonoscopy. I had my first at forty because my dad had colon cancer. I think it's good for anyone over 40 to have one.

thanks for your advice...what is involved with checking the gallbladder? i had read that gallbladder problems/pain were felt more in the upper portion of the "stomach/belly region". mine is lower left. so of course when i typed in lower left abdomen pain, etc. it came up with colitis, which of course it could be, it could be alot of things. i am getting stressed over this whic of course doees not help either! i will have whatever blood work on friday and then go from there i guess. thanks again!