[Wendy Cohan R.N.]

Hi,

I'm a nurse writing a book on the bladder and other uninary health areas. In my research I ran across a link between chronic prostatitis and gluten intolerance or celiac disease. I've also written extensively in the past on a link between gluten intolerance/celiac disease and bladder symptoms, and am including this informaiton in my book. Adding in some anecdotal evidence on another link, to chronic prostatitis, would strengthen this correlation. I've seen a post or two on the forum about chronic prostatitis, but what I'm really looking for is a first hand story or two or a hundred telling me that going gluten free helped your chronic prostatitis or other urinary problem, in men. I have lots of stories for the book regarding women.

Can you let me know what your experience has been? All confidentiality would be protected. I may not even "tell" your story, but just include it in the category of "anecdotal evidence" of a link.

Thanks a bunch in advance for anyone willing to tell me their story. It will have the potential to help a lot of other men.

Wendy Cohan, RN

[trents]

Wendy,

Thanks for your hard work with regard to this book. I am a 58-year-old male celiac but I do not suffer from prostititis that I know of.

I notice there are no other replys to your post. I think the overwhelming majority of participants on this forum are female and this could be the reason.

[kyle1957]

Dear Wendy,
am a 52 year old male, one year post celiac dx. 2 years post colectomy. For the prior few years I would get low grade fever, lymphocytes and blood in urine, slightly elevated wbc. Regular doc assumed prostatitis, I was male and had lower quadrant and thigh pain. I would take cipro for a while and be ok. I Then ended up in hospital very ill. Gastro dx diverticulitis hospitalized 6 days, IV antibiotics and scheduled for colectomy in 1 month. Made it three weeks and was back in the hospital. I was given IV antibiotics for 5 days then surgery. I was going to be a new man. I never got completely healthy. I believe that I had both the prostatitis and diverticulitis because of the closeness of my bowel issue to my prostate. I defiantly displayed the symptoms of both issues. My wife is a Family Dr. and suggested that we run a celiac panel on a hunch. All came back positive. Gastro did an endoscopy and my biopsy showed flattening and destruction of the villa of the small intestine, barrettes (having a Laparoscopic Nissen in Dec), and pre cancers cells in stomach. He theorized that undigested food flowing to the large intestine contributed to the diverticulitis. Typical finding for someone of my age with long term celiac undiagnosed. This summer I had a serious case of Prostatitis. Received Outpatient IVs and am now on 90 days leviquin. (Good reason to marry a Doctor) Because of the celiac I have Malabsorption syndrome. Urologist ran test for zinc, b-12, vita D, folic acid ect... I was low on all the aforementioned even though I am taking b-12 shots and supplements. I asked him if there was a connection between Celiac and prostatitis. His answer was not that I am aware. He did state there is a connection between low zinc, magnesium and other vitamins along with the ph factor in urinary tract. Uro has me take a vitamin C 1000 and a cranberry tablet night and morning, along with zinc at lunch time. Seeing how a lot of celiacs have Malabsorption issues I would conclude that there is a connection whether directly or indirectly.
Strictly Anecdotally,
Kyle Johnson

[lovegrov]

No urinary problems here.

richard

[Wendy Cohan R.N.]

Thanks for your reply, Kyle. I'm sorry for all you've been through. My mother had colon cancer after years of having diverticulitis. Hopefully you've avoided any cancer, which does unfortunately occur at a higher rate in celiacs. I'm glad your wife is a doctor, too.

Wendy

kyle1957, on Oct 6 2009, 01:14 AM, said:

Dear Wendy,
am a 52 year old male, one year post celiac dx. 2 years post colectomy. For the prior few years I would get low grade fever, lymphocytes and blood in urine, slightly elevated wbc. Regular doc assumed prostatitis, I was male and had lower quadrant and thigh pain. I would take cipro for a while and be ok. I Then ended up in hospital very ill. Gastro dx diverticulitis hospitalized 6 days, IV antibiotics and scheduled for colectomy in 1 month. Made it three weeks and was back in the hospital. I was given IV antibiotics for 5 days then surgery. I was going to be a new man. I never got completely healthy. I believe that I had both the prostatitis and diverticulitis because of the closeness of my bowel issue to my prostate. I defiantly displayed the symptoms of both issues. My wife is a Family Dr. and suggested that we run a celiac panel on a hunch. All came back positive. Gastro did an endoscopy and my biopsy showed flattening and destruction of the villa of the small intestine, barrettes (having a Laparoscopic Nissen in Dec), and pre cancers cells in stomach. He theorized that undigested food flowing to the large intestine contributed to the diverticulitis. Typical finding for someone of my age with long term celiac undiagnosed. This summer I had a serious case of Prostatitis. Received Outpatient IVs and am now on 90 days leviquin. (Good reason to marry a Doctor) Because of the celiac I have Malabsorption syndrome. Urologist ran test for zinc, b-12, vita D, folic acid ect... I was low on all the aforementioned even though I am taking b-12 shots and supplements. I asked him if there was a connection between Celiac and prostatitis. His answer was not that I am aware. He did state there is a connection between low zinc, magnesium and other vitamins along with the ph factor in urinary tract. Uro has me take a vitamin C 1000 and a cranberry tablet night and morning, along with zinc at lunch time. Seeing how a lot of celiacs have Malabsorption issues I would conclude that there is a connection whether directly or indirectly.
Strictly Anecdotally,
Kyle Johnson