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Struggling...


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6 replies to this topic

#1 Evie4

 
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Posted 06 October 2009 - 09:29 AM

So I am 100% gluten and dairy free now since I got my labs results Sep 18th and this round of my cyclic IBS is worse than it has been in years. I've had so much pain and fatigue and just feeling crappy that I missed a couple days of work this week—and I can’t say I remember ever missing two days in the same week. I had to resort to my Donnatal for a few days just to help manage my gut pain.

I've read posts in the past that some folks do worse for a while then get better. I was doing much better when I went MOSTLY gluten free. I have been eating even less baked gluten-free foods lately and sticking with mostly whole foods. I know I'm at my worst during ovulation anyway...but I'm kinda bummed that I'm feeling THIS crappy. A few more days and I should be pulling out of it (I’m starting to get a hormone headache). Sheesh!
Thanks for reading.

I guess I just have to stick it out, but I thought I come here to my friends and whine a little :unsure:

Evie
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#2 mommida

 
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Posted 06 October 2009 - 09:51 AM

Just want to let you know, My cyber should is here to lean on. Whine away! ;)
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Michigan

#3 ang1e0251

 
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Posted 06 October 2009 - 12:56 PM

I'm sorry you're feeling bad! My cycles are the worst too. My dr finally put me on continuous birth control to stop them.

You could be one of those people who starts out crappy then gets better over time. You might want to lay off the gluten-free processed foods for a bit. Those alternate grains can be rough on your digestion while you're healing. Back off to basic whole foods for a bit and see if things don't improve.
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#4 tarnalberry

 
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Posted 06 October 2009 - 01:57 PM

Outside of removing gluten and dairy, how has your diet changed?

Are you now consuming soy milk where you weren't before?
Are you now eating significantly more corn or rice than you were before?
Are you getting less fiber because you used to get fiber primarily through whole wheat/oats/etc.?
Are you eating more of any particular foods?

You may have other intolerances - either foods that you really can't eat without feeling bad, or foods that you have to limit how much you have in order to avoid symptoms. (Soy, for instance, I think affects many people this way. How much soy generates symptoms varies significantly, of course.)
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#5 Evie4

 
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Posted 06 October 2009 - 02:52 PM

Outside of removing gluten and dairy, how has your diet changed?

Are you now consuming soy milk where you weren't before?
Are you now eating significantly more corn or rice than you were before?
Are you getting less fiber because you used to get fiber primarily through whole wheat/oats/etc.?
Are you eating more of any particular foods?

You may have other intolerances - either foods that you really can't eat without feeling bad, or foods that you have to limit how much you have in order to avoid symptoms. (Soy, for instance, I think affects many people this way. How much soy generates symptoms varies significantly, of course.)



Thanks for responding everyone. I have been careful to not introduce new foods into my diet and I actually decided to stay away from gluten-free baked goods for now for the very reason that I read of other people having problems with gluten-free flours. I probably have eaten more fruit than usual and likely more rice. I'm avoiding soy--I think it can cause issues with me. Very little corn and been avoiding legumes just to be safe. I cut down coffee comsumption to one cup and do a rice milk/coconut milk mix for "cream". I've cut tea out for months now. Nothing with yeast in the past few weeks. No prepared foods. I did have potato chips week before last, but I decided I'd give those up for now too (don't really need those calories and I only get them a couple times a year anyway).

I guess maybe the coconut milk could be a no-no. I sure hope not. I use it in cooking occasionally, so it isn't new to my system. I'll keep my eye on it. My capuccino is my one indulgence...I'll be so sad if I can't have at least that.
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#6 Evie4

 
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Posted 06 October 2009 - 02:56 PM

I'm sorry you're feeling bad! My cycles are the worst too. My dr finally put me on continuous birth control to stop them.

You could be one of those people who starts out crappy then gets better over time. You might want to lay off the gluten-free processed foods for a bit. Those alternate grains can be rough on your digestion while you're healing. Back off to basic whole foods for a bit and see if things don't improve.


I thought about the pill before...hoping it might help. But when I did take it in my twenties, even the lowest doses made me sick in the morning. I nailed my symptoms to the hormone fluctuation...not fair! :angry: Heaven only knows what might happen when "the change" comes!!!!!!
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#7 ang1e0251

 
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Posted 07 October 2009 - 04:52 AM

I actually am on the Nuva Ring now. I resisted but it's actually the best I've been on. It's gentle with low doses of hormones and you insert it once a month. Now that I'm getting older, dr wants me to have a vaginal ablation to stop my periods. I'm wondering what will happen to my hormones if I'm off all the stuff. Past experience has not been good!

Oh well, don't have to worry about it now. Can't afford it.

Take a look at the thread for the SCD diet. I'm not on it but I do follow some of it's ideas that have helped me. Maybe something on there will jump out at you and help you. I hope it does!
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