Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Iodine Skin Patch Test
0

17 posts in this topic

So, a couple a days ago I posted about some concern for my son having DH. I decided today to try the patch test to see if he reacts to the iodine before I drag him to the dermatologist and try to get his skin biopsied... that just doesn't seem as though it would go well. :huh:

Anyway, my husband and I are also doing it. Myself moreso as the control, my husband wanted to do it to see if it caused any sort of reaction on him. Has anyone had any success with the test? I know it was the old school way of diagnosing, so I was just curious to see if anyone had done it and then used the info with the doctor.

I diagnosed myself with celiac and had a hard time getting a diagnosis, so I really am trying to do this correctly for my son, if it turns out he does have celiac. Not so much for us, but for school, etc. This is the beginning of the process, but I am trying to figure out what's up with the rash and the dark circles under his eyes.

0

Share this post


Link to post
Share on other sites


Ads by Google:

There are several posts about iodine patch tests. If you use the search box you can see all the threads that have mention of it. You may have to go from the form that they show to standard form when you click on the links. It's in the right hand side of the thread, a drop box. Hit switch to standard.

I posted the picks of my iodine patch test. I also did one on my husband... it did NOT react. He left his on a bit longer than I did. And it stained the skin, but no blister.

Mine blistered like mad! I posted a pick of that as well.

The dermatologist that I went to called it a chemical burn. Then they did a biopsy ON a lesion that I had a week later rather than beside it. The test didn't tell me anything.

I've considered going back because my skin is still rashing out. But, given that I'd have to raise hell and bring in information for them to know HOW to do the test for the DH....

not worth it.

That's just my opinion. I'm not sure what I'd do if it were my kid. I would say to use the SMALLEST band aid that you can find! If he has it, it's going to burn and sting and itch like hell! Then it will blister and scar. So, make it as easy on him as you can.

I hope you find a good dermatologist!

Good luck!

I see that you are IgA deficient. What tests did they do to confirm that?

0

Share this post


Link to post
Share on other sites
So, a couple a days ago I posted about some concern for my son having DH. I decided today to try the patch test to see if he reacts to the iodine before I drag him to the dermatologist and try to get his skin biopsied... that just doesn't seem as though it would go well. :huh:

Anyway, my husband and I are also doing it. Myself moreso as the control, my husband wanted to do it to see if it caused any sort of reaction on him. Has anyone had any success with the test? I know it was the old school way of diagnosing, so I was just curious to see if anyone had done it and then used the info with the doctor.

I diagnosed myself with celiac and had a hard time getting a diagnosis, so I really am trying to do this correctly for my son, if it turns out he does have celiac. Not so much for us, but for school, etc. This is the beginning of the process, but I am trying to figure out what's up with the rash and the dark circles under his eyes.

I can't seem to get a firm diagnoses either. My primary believes I probably have DH and told me to go gluten free and it as helped tremendesly but I think I just got glutened because I have a big hive on my knee that hurts and itchs so bad..it looks like it has fluid under it too. I want to do the past test as well but I'm afraid. If you do it and you get a reaction does that mean its definite for have DH? I'm courious to see how it goes for you. Let us know. My daughter also has had dark circles since birth and a naturopathic doc told me it looks like your daughter has some allergies....I said what are you talking about and she said see how she has those dark circles under her eyes and I said yeah and she said those are called allergic shiners. Huh, interesting. I hope you have a good doc and they will do the skin biopsy but don't get discouraged if it comes back negative. Trust your instincts. Good luck. Also I was wondering as well what is the test called to see if you are IgA deficient, because I was looking at one of my tests and there was one that said iga levels were 0. I don't understand that....shouln't it be something?

0

Share this post


Link to post
Share on other sites
There are several posts about iodine patch tests. If you use the search box you can see all the threads that have mention of it. You may have to go from the form that they show to standard form when you click on the links. It's in the right hand side of the thread, a drop box. Hit switch to standard.

I posted the picks of my iodine patch test. I also did one on my husband... it did NOT react. He left his on a bit longer than I did. And it stained the skin, but no blister.

Mine blistered like mad! I posted a pick of that as well.

The dermatologist that I went to called it a chemical burn. Then they did a biopsy ON a lesion that I had a week later rather than beside it. The test didn't tell me anything.

I've considered going back because my skin is still rashing out. But, given that I'd have to raise hell and bring in information for them to know HOW to do the test for the DH....

not worth it.

That's just my opinion. I'm not sure what I'd do if it were my kid. I would say to use the SMALLEST band aid that you can find! If he has it, it's going to burn and sting and itch like hell! Then it will blister and scar. So, make it as easy on him as you can.

I hope you find a good dermatologist!

Good luck!

I see that you are IgA deficient. What tests did they do to confirm that?

Crimson, I'm wondering as well what tests they do to confirm IgA deciency. I have read some of your other posts and I saw your pics of your patch tests and your DH blisters. Did a doc biopsy your blister or did they dismiss it?

0

Share this post


Link to post
Share on other sites

Well, he wore the bandaid patch for about 10 hours. I put it on him shortly after he went to sleep and he insisted I take the bandaid off as soon as he woke up.

His skin isn't broken out, that I can tell. He says his arm hurts, but when I ask him to tell me how it feels, he says "it hurts like brown." :huh::lol: So, I'm not really sure that I proved anything or not. The solution was 2%, but I thought it was worth a shot.

I'm trying to figure out which to pursue first: allergies, or a dermatologist. I feel that the two are related, but I'm just not sure which direction we're going yet. His pediatrician says his rash is eczema... might be, but doesn't look like eczema I've seen on anyone else.

As for the IgA test, that was done with my celiac panel. It's a blood draw and it is SUPPOSED to help the doctor interpret the results better. If you have low IgA, then the IgA based tests are not so valid.... in my case, the PA didn't pick up on that, told me my low IgA was fine and to be happy I didn't have celiac. The good thing that came out was that I found out I was IgA deficient, for future reference.

0

Share this post


Link to post
Share on other sites




When I was diagnosed with DH I did not have an active blister but I had an appointment with my Dermatologist so I went anyway. He did the Iodine patch test on me. He applied the iodine and a bandage and told me to come back in the morning. The patch itched and hurt all night long and wne I went in to the Dr. and removed the bandage I had a cluster of blisters, he biopsied and DH was confirmed.

Recently, I have been suspecting my Daughter (20) had DH so I did the patch test on her at home. To make her feel better my Husband and I did it with her. I have been gluten-free for almost a year at this point. My Husband had no response whatsoever, while the patch was on no itching or burning. My Daughter had one very large blister raise up and she complained of constant itching the whole time she had the bandage on. I (with confirmed DH being gluten-free) had a reaction of feeling like I was being burned with a cigerette the whole time the patch was on. When it was removed I had a large cluster of very tiny blisters that itched and burned. They scabbed over and it looked like I had a second degree burn, much like I had been burned by oven door or rack.

My Daughter has an appointment with our Dermatologist in a couple of weeks. She is really bummed at the thought of having DH but I'm happy she is finding out now instead of 47 years later like me.

0

Share this post


Link to post
Share on other sites
His skin isn't broken out, that I can tell. He says his arm hurts, but when I ask him to tell me how it feels, he says "it hurts like brown." :huh::lol: So, I'm not really sure that I proved anything or not. The solution was 2%, but I thought it was worth a shot.

meant to comment on this........

Watch it for a few days. If the sopt is hurting it may still develope a blisters or it my be more like a chemical burn and scab over.

The biopsy is really painless. They just scrape a few skin cells of the skin surrounding a breakout not the blister itself.

For years I had Dr's aspirating the blisters and testing the fluid with nothing ever coming back conclusive. They just weren't testing the right way or for the right thing <_<

0

Share this post


Link to post
Share on other sites

Thanks Angie :)

Since you've had it done, does it matter where it's done? I noticed the rash on his back down to the sides of his bottom, not his arm. I tested his arm b/c I figured if it did break out, it would be less irritated there.

0

Share this post


Link to post
Share on other sites

Mine was done on my arm, outside above my elbow. BUT, I have had breakouts in tha area before. I tested my Daughter in the same area because she has had breakouts in that same area.

How old is your son? I would try to test in an area that is close to his normal pattern of breakout but won't be easily scratched by little hands. THe Dermatologist explaind to me that they think (but not sure) DH travels around the body much like Herpes or shingles along the central nervous system and erupts in areas that are weak. I have had DH patches for years in one area that now hasn't had a breakout for 3 ro 4 years but have breakouts in new areas. Hard to explain but I have had DH eruptions in every place imaginable but never all at once. For a while it concentrates on my legs then move up to my hips and buttocks and then to my back and scalp and then down my arms then back to my shins.....never a rhyme or reason but when I'm breaking out on my legs I don't have breakouts on my arms....it moves.

0

Share this post


Link to post
Share on other sites
Crimson, I'm wondering as well what tests they do to confirm IgA deciency. I have read some of your other posts and I saw your pics of your patch tests and your DH blisters. Did a doc biopsy your blister or did they dismiss it?

He totally dismissed the iodine patch test. They did biopsy a lesion that did not show IgA. They had no answer directly for it. Just that it would have shown up on the pathology report if they had found it.

I currently have a new blister on the patch test area. It's been breaking out ever since I did my little experiment!

But I figure that I would have to go in with print offs of information on HOW to correctly biopsy for DH and probably fight to get it done that way.

I'm really not in the mood for it. I will however, be mentioning it to the allergist when I go on Tuesday.

lizard00, I hope you kid is doing ok!

0

Share this post


Link to post
Share on other sites
He totally dismissed the iodine patch test.

Unbelievable! My Dr used the iodine patch test to raise a blister to do a biopsy and yours totally dismisses it! I wish these Doctors would get on the same page :angry:

0

Share this post


Link to post
Share on other sites
His skin isn't broken out, that I can tell. He says his arm hurts, but when I ask him to tell me how it feels, he says "it hurts like brown." :huh::lol: So, I'm not really sure that I proved anything or not. The solution was 2%, but I thought it was worth a shot.

I've been thinking about his statement, I love how kids express themselves :D

Maybe he means it hurts like a bruise or tender to the touch, that is how mine felt before it scabed over.

0

Share this post


Link to post
Share on other sites

He is 4, which explains saying it hurts like brown! :lol::D He let me touch it about a half hour ago, still not looking blistery (but his back doesn't look blistery, either), but when I rubbed my finger over it, he said ow. (The spot where I did mine is ever so slightly sensitive, but it's from pulling the bandage off. Definitely doesn't hurt.) So, it is quite possible that it feels like a bruise or it's tender.

I hate to try it again without knowing how this is going to end. I guess maybe if nothing happens, which I'm hoping it doesn't, then I'll try an area right around where his rash is now. I was trying to avoid this area because I figured that clothes would irritate it. Guess we'll have to wait and see.

Thanks for your help. I'll keep everyone posted!!

0

Share this post


Link to post
Share on other sites

So here's how things are now with his arm.

It never really broke out or anything, that I could see. But his arm is still very dark in that patch, and I noticed it felt much rougher than the rest of his skin. But, he said it didn't hurt and it doesn't look like he was scratching it. So, today I noticed that that patch of his skin on his arm is peeling. Mine and my husband's just faded away. That area of my skin feels slightly drier than the rest, but it's not peeling.

Any thoughts on that? His rash actually seems to be clearing up. Maybe we've escaped for now.

0

Share this post


Link to post
Share on other sites
So here's how things are now with his arm.

It never really broke out or anything, that I could see. But his arm is still very dark in that patch, and I noticed it felt much rougher than the rest of his skin. But, he said it didn't hurt and it doesn't look like he was scratching it. So, today I noticed that that patch of his skin on his arm is peeling. Mine and my husband's just faded away. That area of my skin feels slightly drier than the rest, but it's not peeling.

Any thoughts on that? His rash actually seems to be clearing up. Maybe we've escaped for now.

This sounds very much like my last reaction to the iodine test. The (what I called a large patch of tiny blisters) area was about the size of a nickle because I only did a small bandage. The blisters were microscopic but scabed over quickly then when completely dried out it peeled off much like I had burned myself.

If it was not hurting or itching it might be a bit of a chemical burn but I'm not sure how often people experience a chemical burn from iodine.

0

Share this post


Link to post
Share on other sites

Yeah, I'm not so sure what it is either. I'm thinking about trying it somewhere on his back or closer to where the rash actually is. Strange...

0

Share this post


Link to post
Share on other sites
So here's how things are now with his arm.

It never really broke out or anything, that I could see. But his arm is still very dark in that patch, and I noticed it felt much rougher than the rest of his skin. But, he said it didn't hurt and it doesn't look like he was scratching it. So, today I noticed that that patch of his skin on his arm is peeling. Mine and my husband's just faded away. That area of my skin feels slightly drier than the rest, but it's not peeling.

Any thoughts on that? His rash actually seems to be clearing up. Maybe we've escaped for now.

Could it be that small blisters actually formed and popped before you removed the bandage? The fact that it's peeling is bit suspicious.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,146
    • Total Posts
      919,572
  • Topics

  • Posts

    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,178
    • Most Online
      1,763

    Newest Member
    Sarah.e.may9602
    Joined