Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Another Enterolab Question


VAGuy

Recommended Posts

VAGuy Apprentice

I'm confused about what I should eat or not eat prior to returning the Enterolab kit - I'm borrowing the money so I've gotta do this right the first time.

1. I had thought a gluten-free diet prior to the Enterolab tests was OK by them, but on Feb 20 gf4life said about her children -"keep them on gluten until the tests are sent off"- should I try and eat some gluten prior to the test kit being returned?

2. I will also be tested for egg, casein, and yeast sensitivities - I'm going to email them and ask if I should ingest those items prior to test - but do any of you know? This isn't addressed in the paperwork I received.

Also - When I think about the indifference of the few doctors I've seen in the past, and read how many people on this site are treated by physicians, I think I'm going to contact the local celiac support group ($15 a year and they have dinners!) and see if they can refer me. Has anyone else gone that route?

Thanks

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VAGuy Apprentice

I'm confused about what I should eat or not eat prior to returning the Enterolab kit - I'm borrowing the money so I've gotta do this right the first time.

1. I had thought a gluten-free diet prior to the Enterolab tests was OK by them, but on Feb 20 gf4life said about her children -"keep them on gluten until the tests are sent off"- should I try and eat some gluten prior to the test kit being returned?

2. I will also be tested for egg, casein, and yeast sensitivities - I'm going to email them and ask if I should ingest those items prior to test - but do any of you know? This isn't addressed in the paperwork I received.

Also - When I think about the indifference of the few doctors I've seen in the past, and read how many people on this site are treated by physicians, I think I'm going to contact the local celiac support group ($15 a year and they have dinners!) and see if they can refer me. Has anyone else gone that route?

Thanks

Link to comment
Share on other sites
gf4life Enthusiast

Hi VA Guy,

They (at Enterolab) do not want you to go back on any of the offending foods. They will ask in the questionaire if you have already stopped eating those foods (if they don't you should mention it).

I e-mailed them regarding the egg and yeast test the other day and asked if I needed to be eating those foods to be tested for a sensitivity to them and they said NO.

I am only keeping my kids on gluten because they suggest you stay on your current diet. My kids current diet contains gluten. Yours is gluten free and you should remain gluten free. (as well as egg-free, yeast-free, etc...)

I hope this helps you and I hope you get your results back quickly. I'm waiting to hear the results. :)

God bless,

Mariann

Link to comment
Share on other sites
VAGuy Apprentice

Thanks for reply gf4life - I hope to send kit back next week and cross fingers till I get results. Am really hoping I do not lose dairy too, but am skeptical.

Hope your kids are OK, must be scary being the parent of a child with such problems.

Phil

Link to comment
Share on other sites
gf4life Enthusiast

Thanks Phil,

Yeah, it can be pretty scary, but at least now I know where to look! :) I just got their kits today and hope to send them off on Monday. So we'll both be looking for the results soon. I just want a clear cut YES or NO. The bloodtests on them keep coming back as a MAYBE. I just can't accept a maybe when it comes to my children's health!

God bless,

Mariann

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
×
×
  • Create New...