Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Another Enterolab Question
0

5 posts in this topic

I'm confused about what I should eat or not eat prior to returning the Enterolab kit - I'm borrowing the money so I've gotta do this right the first time.

1. I had thought a gluten-free diet prior to the Enterolab tests was OK by them, but on Feb 20 gf4life said about her children -"keep them on gluten until the tests are sent off"- should I try and eat some gluten prior to the test kit being returned?

2. I will also be tested for egg, casein, and yeast sensitivities - I'm going to email them and ask if I should ingest those items prior to test - but do any of you know? This isn't addressed in the paperwork I received.

Also - When I think about the indifference of the few doctors I've seen in the past, and read how many people on this site are treated by physicians, I think I'm going to contact the local celiac support group ($15 a year and they have dinners!) and see if they can refer me. Has anyone else gone that route?

Thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm confused about what I should eat or not eat prior to returning the Enterolab kit - I'm borrowing the money so I've gotta do this right the first time.

1. I had thought a gluten-free diet prior to the Enterolab tests was OK by them, but on Feb 20 gf4life said about her children -"keep them on gluten until the tests are sent off"- should I try and eat some gluten prior to the test kit being returned?

2. I will also be tested for egg, casein, and yeast sensitivities - I'm going to email them and ask if I should ingest those items prior to test - but do any of you know? This isn't addressed in the paperwork I received.

Also - When I think about the indifference of the few doctors I've seen in the past, and read how many people on this site are treated by physicians, I think I'm going to contact the local celiac support group ($15 a year and they have dinners!) and see if they can refer me. Has anyone else gone that route?

Thanks

0

Share this post


Link to post
Share on other sites

Hi VA Guy,

They (at Enterolab) do not want you to go back on any of the offending foods. They will ask in the questionaire if you have already stopped eating those foods (if they don't you should mention it).

I e-mailed them regarding the egg and yeast test the other day and asked if I needed to be eating those foods to be tested for a sensitivity to them and they said NO.

I am only keeping my kids on gluten because they suggest you stay on your current diet. My kids current diet contains gluten. Yours is gluten free and you should remain gluten free. (as well as egg-free, yeast-free, etc...)

I hope this helps you and I hope you get your results back quickly. I'm waiting to hear the results. :)

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thanks for reply gf4life - I hope to send kit back next week and cross fingers till I get results. Am really hoping I do not lose dairy too, but am skeptical.

Hope your kids are OK, must be scary being the parent of a child with such problems.

Phil

0

Share this post


Link to post
Share on other sites

Thanks Phil,

Yeah, it can be pretty scary, but at least now I know where to look! :) I just got their kits today and hope to send them off on Monday. So we'll both be looking for the results soon. I just want a clear cut YES or NO. The bloodtests on them keep coming back as a MAYBE. I just can't accept a maybe when it comes to my children's health!

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,104
    • Total Posts
      920,371
  • Topics

  • Posts

    • You already have an autoimmune condition which does put you at a higher likelihood of developing other conditions in the future, not necessarily celiac.  At any rate, I've been reading reports-- both research articles and anecdotal experiences from AI patients-- linking a gluten free diet with relief of symptoms, particularly a lessening of joint and muscle pain in those with RA, FMS, Lupus, and Chronic Fatigue.  So my point is, even if you don't have celiac disease, if being on a gluten free diet helps you, then stay on it.  As for the digestive issues, it may be worth seeing a GI for.  Lots of things can cause tummy troubles, not just celiac disease.
    • It is absolutely possible for non-Celiac gluten intolerance and/or gluten sensitivity to cause extreme symptoms. The difference between those and Celiac is that Celiac will cause actual small intestinal damage to the villi, while NCGI/gluten sensitivity can have extreme symptoms, there is no damage to the small intestine.  Other causes of bloating can be SIBO or small intestinal bacterial overgrowth.  The title pretty much says it all and you need antibiotics to help combat that. Basically, your small intestine's bacteria is out of whack and you have more bad bacteria than good. I know there is a test but have no experience with this. You may want to google it and read up on it and maybe ask a specialist about it too?  This is something they should be testing for anyway to figure out what is going on.  You could also have food allergies, as opposed to an intolerance like Celiac.  You can see why this is so hard to figure out sometimes! Are you sure you are completely gluten free?  This diet has a big learning curve and cross contamination is important.  Please take a look, if you already have not, at this link.  It was written by a previous member of the forum and although it is a bit lengthy, it is what you need to know about following the diet and living gluten free successfully. She did a very good job on it!  Even tiny amounts in your diet can still cause symptoms. http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ Have you been tested for vitamin deficiencies or anemia?  These could offer a clue to see whether you are malnourished or not. Many people with celiac have both deficiencies and anemia.  Between testing for these and genetic testing to see if you carry a Celiac gene might help you to rule it out if you cannot have a scope done.  But you do remember that you need to be eating gluten for the scope? 
    • Celiac disease is a tricky rascal. Just when you think you've got it under control, it sneaks up and manifests into new and often unexpected problems. At least, this is what we have found over the last decade. From contacts with others who have Celiac disease, we know we're not alone. I'm in my early thirties and find that sometimes my body acts more like that of an old man's. View the full article
    • Thank you, Gemini.   Is it possible for non-celiac gluten sensitivity or intolerance to have this severe symptoms?
      I'm on gluten free diet two weeks now and no change... What are other causes of these symptoms beside food?
    • I am trying to decipher the test and it looks to me like the Total IgA is fine.  Your number appears to be in the middle of the reference range, which would be sufficient IgA for testing.  I am in America so your country's testing is a bit different from here....I really hope I got that right!  If you have severe enough symptoms of a GI problem, some doctors here would move onto a biopsy even with negative blood results.  I think if you cannot get a full Celiac panel done, then a scope with biopsy should come next. Severe bloating has a cause and they need to rule out a food problem. There can be other causes but food is usually a big trigger. Yes, keep us updated!  We are here to help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,141
    • Most Online
      1,763

    Newest Member
    Sandyblake1711
    Joined