Help
Hi
I have not been diagnosed properly for Celiac but my mom has it and it seems I may have it or at least a gluten sensitivity. My only symtoms are bloating, gurgling stomach noises, and when I do have bowel movement it is always D or at least not solid(I go once a day at night). I figured I mine as well start doing a Lactose free as well. I told my dr's numerous times that Milk and cheese are big parts of my life. I do not drink soda and other drinks, I would rather drink Milk and has so since I was younger. The first scheduled rounds of blood work were done and they never did lactose test!, then they finally did test and unknown to me they only did a genectic type of blood work. Not the test where you actually drink Lactose solution. I had Hydrogen breath test to test for SIBO not lactose but I did blow consistent hydrogen numbers throughout the 5 hours, just no spikes showing SIBO. So instead of doing more tests I figured I would start lactose free diet. I am only in day 2. but not sure when I should feel better if in fact I am LI. I was told lactose can be out of system in 6-8hrs and I have seen sites where it takes days or weeks? I also see sites where people actually suffer withdrawls during first couple of days? Any help please : )
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Lactose Free How Long Before I Feel Better?
Gluten free for a month and now lactose free
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#2
ravenwoodglass 
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Posted 14 October 2009 - 04:56 AM
You may be casien intolerant rather than just lactose. Are you avoiding casien as well as lactose? It isn't easy because it is in so much but you may want to consider dropping dairy in both forms.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
pufffee
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Posted 14 October 2009 - 06:17 AM
ravenwoodglass, on Oct 14 2009, 05:56 AM, said:
You may be casien intolerant rather than just lactose. Are you avoiding casien as well as lactose? It isn't easy because it is in so much but you may want to consider dropping dairy in both forms.
Casein seems to be more skin related and other things like fever symptoms. I do not have any of these?
#4
ravenwoodglass
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Posted 14 October 2009 - 07:14 AM
pufffee, on Oct 14 2009, 06:17 AM, said:
Casein seems to be more skin related and other things like fever symptoms. I do not have any of these?
Casein intolerance can cause a wide variety of symptoms. The best way to tell if they are causing yours is to drop it for a while and see what happens. Are you gluten free? Your symptoms could also be gluten.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
pufffee
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Posted 14 October 2009 - 07:32 AM
ravenwoodglass, on Oct 14 2009, 07:14 AM, said:
Casein intolerance can cause a wide variety of symptoms. The best way to tell if they are causing yours is to drop it for a while and see what happens. Are you gluten free? Your symptoms could also be gluten.
Yes Gluten free for over a month
#6
GFinDC
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Posted 16 October 2009 - 12:37 PM
I suggest you stay off dairy for at least a month. You would need to read labels and avoid things with casein, lactose, whey and milk. The reason I say a month is that when you make a big change in your diet, your gut basteria adjust to the changed food supply. Which can cause symptoms in itself. This is just my opinion though. Watch out for meds and probiotics with dairy also.
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
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