[nmlove]

We just got home from my four year old's upper endoscopy. He did GREAT! The doctor came out to us within ten minutes of us leaving him with results. He took 4 biopsies and felt pretty positive about a celiac diagnosis as he could see some damage during the scope. But everything else looked good, no additional problems. So now we wait for results (5-7 days) and then we go in as family for an educational appointment - going gluten-free, testing the rest of the family, etc. I'm so glad it's a definitive diagnosis!

And I just have to say we have such a great pediatrician and Children's as been so good with our son (we were there in the spring for something else). We're lucky to live so close to such a great resource.

[chiroptera]

I am so glad you little one came through the procedure so well!!! I can imagine you were very nervous throughout it.

I hope he feels better very soon on his new diet! It gets a lot easier over time!


GOOD LUCK!

[nmlove]

chiroptera, on Oct 19 2009, 06:21 PM, said:

I am so glad you little one came through the procedure so well!!! I can imagine you were very nervous throughout it.

I hope he feels better very soon on his new diet! It gets a lot easier over time!


GOOD LUCK!

Thanks! We were nervous before hand, especially my husband but once he was in, we barely had time to be nervous, the doctor was so quick! I'm sure once we're over this initial hump of rehauling the kitchen and navigating the grocery aisles, it'll be easier. Still wish I could skip that part.

[Bud's Mom]

nmlove, on Oct 19 2009, 08:51 AM, said:

We just got home from my four year old's upper endoscopy. He did GREAT! The doctor came out to us within ten minutes of us leaving him with results. He took 4 biopsies and felt pretty positive about a celiac diagnosis as he could see some damage during the scope. But everything else looked good, no additional problems. So now we wait for results (5-7 days) and then we go in as family for an educational appointment - going gluten-free, testing the rest of the family, etc. I'm so glad it's a definitive diagnosis!

And I just have to say we have such a great pediatrician and Children's as been so good with our son (we were there in the spring for something else). We're lucky to live so close to such a great resource.

Glad to hear you and your son had a good experience. Our son had the procedure at 15 mos and did well, too. I also am grateful for our Children's hospital and pediatrician. I was disapointed however when we met with Children's nutritionist. First it took 2 weeks before we could see her. When we did meet, I assumed she would have loads of information for me as a parent of a young child (such as lists of art supplies that are gluten free or how to ensure your child's preschool/daycare is gluten-free (art supplies, snacks, etc). She had some weekly sample gluten-free menus for adults (hummus, etc). Hopefully your appointment will be personalized to your child's age. You may want to consider calling the nutritionist or whomever your educational appointment is with. Enquire if he/she can gather these types of information for you to give to you at your meeting.
I just remember feeling totally overwhelmed because my son was starting a co-op preschool one month after his diagnosis and I didn't even know what to tell the teacher. After struggling together and looking many late nights on-line, we figured it out. If you have any questions about ensuring your preschool/daycare is gluten free, go ahead and e-mail me.

Bud's Mom
(son diagnosed in summer of 2008 when he was 15 months)

[nmlove]

Bud's Mom, on Oct 22 2009, 05:45 PM, said:

Glad to hear you and your son had a good experience. Our son had the procedure at 15 mos and did well, too. I also am grateful for our Children's hospital and pediatrician. I was disapointed however when we met with Children's nutritionist. First it took 2 weeks before we could see her. When we did meet, I assumed she would have loads of information for me as a parent of a young child (such as lists of art supplies that are gluten free or how to ensure your child's preschool/daycare is gluten-free (art supplies, snacks, etc). She had some weekly sample gluten-free menus for adults (hummus, etc). Hopefully your appointment will be personalized to your child's age. You may want to consider calling the nutritionist or whomever your educational appointment is with. Enquire if he/she can gather these types of information for you to give to you at your meeting.
I just remember feeling totally overwhelmed because my son was starting a co-op preschool one month after his diagnosis and I didn't even know what to tell the teacher. After struggling together and looking many late nights on-line, we figured it out. If you have any questions about ensuring your preschool/daycare is gluten free, go ahead and e-mail me.

Bud's Mom
(son diagnosed in summer of 2008 when he was 15 months)

Thanks Bud's Mom! I wonder how our nutritionist will be? Even the GI doctor was talking about shampoos, lotions, how some gluten-free foods aren't necessarily gluten-free, etc. We'll see. I have to figure out how to approach his preschool. I'm waiting the next doctor visit so I have all the facts before I go to his teachers. Right now I'm just cleaning out the kitchen and starting to make lunch/dinner gluten-free. It's taking a bit with three little ones at home - and the flu hitting us, yuck! I'll definitely ask if I run into any preschool snags. The good thing about his school is that food is limited to birthday treat bags (parents bring in for kids to take home) and a once-a-month party that involves cookies/treats. Maybe play-doh but I don't think they've even used it yet.