Dr. Kenneth Fine (enterolab)
#1
Posted 20 October 2009 - 05:57 PM
Well, I have heard from him. He sent me an email announcing (a) a private catered open house and health lecture update at the newly expanded and renovated Enterolab facility, and (b) a celiac disease-release party and concert featuring himself and his band. More specifically, the event tales place Dec 4-5 in Dallas, and consists of (a) gluten-free hors d'oeuvres/open house and (b) an "update of research, publication submission, and a lecture titled 'The Higher truth of Health.' The next day (Dec 5) he offers, at the Lakewood Theater, (a) cocktails and cash bar, (b) a gluten-free healthy organic dinner ($25), © a concert featuring Dr. Fine and his band (wth dancing), and © and after party cash bar.
This invitation seems to say that Dr. Fine is announcing publication of his research, but it is alittle vague on this subect. Has anyone else received this invitation? Does anyone plan to attend? I live too far way or I would be there. Please let us know. Thanks.
Joe
#2
Posted 20 October 2009 - 06:08 PM
Joe G, on Oct 20 2009, 09:57 PM, said:
Yes, vague. It seems more like a promo for his band, rather than for his research.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#3
Posted 21 October 2009 - 03:26 PM
Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.
Household mostly gluten free since 3/07
Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic
#4
Posted 22 October 2009 - 04:51 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
Posted 22 October 2009 - 05:21 AM
ravenwoodglass, on Oct 22 2009, 08:51 AM, said:
I agree...I never knew that enterolab existed until I was on this forum. My belief is that there is still SO many things not understood as of yet regarding gluten sensitivities and celiac, and I believe that the medical community has a LONG way to go when it comes to diagnosing these disorders. When I look at my own family history, filled with Celiac and their related diseases, I could just cry.
So I CHOOSE to use enterolab as just ONE tool in my own personal health and wellbeing, just as I use traditional medicine as a TOOL.
I own my own body, and I make choices regarding it, so I am VERY glad that enterolab offers the services that it does.
There are many physicians that do use enterolab and endorse them...One example is below....
Health Now Medical Center
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
#6
Posted 22 October 2009 - 08:25 AM
Spruster, on Oct 22 2009, 11:54 AM, said:
I understand that she is a chiropractor...she is part of a medical team....under the supervision of MD's
Physician
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
#7
Posted 22 October 2009 - 08:29 AM
AND there are many patients that have been helped by more open minded physicians.
I believe that someday the medical profession will look back at how we diagnosed Celiac
and related disorders and will be in awe at how archaic we were....
I am not an MD, I am a patient...no more....I applaud Dr. Fine for thinking outside the box..
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
#8
Posted 22 October 2009 - 08:49 AM
Most people do not want to walk about very sick and are making it up.
Our family chose to use Enterolab and in our experience he is correct.
#9
Posted 22 October 2009 - 10:04 AM
chiroptera, on Oct 22 2009, 12:49 PM, said:
Yes, I do. If I did not, I would find another one who does.
If Enterolabs is your chosen avenue, I think that's great. For those of you with time, educate yourself and make the best informed choice for you and your family, whatever direction that may be.
My opinion is not set in concrete. I still am anxiously awaiting independent peer review of Dr. Fine's work, which has been promised for many years now. There are those who are strong supporters of Enterolabs and an equal amount of those who are not. I am not a supporter, but I try to respect those who are.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#10
Posted 23 October 2009 - 10:37 AM
Barbara
#12
Posted 23 October 2009 - 02:21 PM
Spruster, on Oct 23 2009, 06:13 PM, said:
Chiropractors have NO business diagnosing celiac disease. They can't do a small bowel biopsy to make a proper diagnosis. They might have you do a spit test or something and tell you never to eat gluten again. But that isn't a diagnosis of anything at all. It's just a twist of Kenneth Fine's angle. And Yes, I am entitled to my opinion.
If you all want to narrow your worlds based on what someone like Vikki Peterson tells you, that is just fine with me. You are adults. Please make sure your children have a proper diagnosis as they have no choice in the matter. I consider it abuse to deprive a child of gluten if they don't absoutely need to be gluten-free. By that, I mean biopsy diagnosed celiac. True villi damage!
You are entitled to your opinion....
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
#13
Posted 23 October 2009 - 02:29 PM
Spruster, on Oct 23 2009, 06:13 PM, said:
Chiropractors have NO business diagnosing celiac disease. They can't do a small bowel biopsy to make a proper diagnosis. They might have you do a spit test or something and tell you never to eat gluten again. But that isn't a diagnosis of anything at all. It's just a twist of Kenneth Fine's angle. And Yes, I am entitled to my opinion.
If you all want to narrow your worlds based on what someone like Vikki Peterson tells you, that is just fine with me. You are adults. Please make sure your children have a proper diagnosis as they have no choice in the matter. I consider it abuse to deprive a child of gluten if they don't absoutely need to be gluten-free. By that, I mean biopsy diagnosed celiac. True villi damage!
How do you explain those diagnosed celiacs like my daughter that have no villi damage? (she had two biopsies) If we went by villi damage and assumed because the negative biopsies meant gluten was not a problem she would still be suffering from chest pain, abdominal pain, constipation, rashes, and tingling in her limbs and the list goes on. She is 100% better gluten free. If she gets glutened she has severe stomach pain and is out of commission for a day or two. Her stomach became more sensitive to gluten once she was off of it. I do not know enough about Dr. Fine or Vikki Peterson to comment of them, but I just felt the need to point out that as much as some feel endoscopy and villi damage is the "gold standard", there are many that do not exhibit villi damage at least not right away.
#14
Posted 23 October 2009 - 02:44 PM
Spruster, on Oct 23 2009, 06:42 PM, said:
I respectfully disagree.
#15
Posted 23 October 2009 - 02:56 PM
No parent wants to see their child in discomfort...
I have a degree in Child Development and Family Relations and I see no abuse in a gluten-free diet...
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

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