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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Dr. Kenneth Fine (enterolab) - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Dr. Kenneth Fine (enterolab) Rate Topic: -----

#1 User is offline   Joe G 

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Posted 20 October 2009 - 05:57 PM

Almost a year ago, Dr. Fine was a major topic of this board, and a "group letter" was sent to him requesting information about his research. Has anyone (other than me) heard from him since that time?

Well, I have heard from him. He sent me an email announcing (a) a private catered open house and health lecture update at the newly expanded and renovated Enterolab facility, and (b) a celiac disease-release party and concert featuring himself and his band. More specifically, the event tales place Dec 4-5 in Dallas, and consists of (a) gluten-free hors d'oeuvres/open house and (b) an "update of research, publication submission, and a lecture titled 'The Higher truth of Health.' The next day (Dec 5) he offers, at the Lakewood Theater, (a) cocktails and cash bar, (b) a gluten-free healthy organic dinner ($25), © a concert featuring Dr. Fine and his band (wth dancing), and © and after party cash bar.

This invitation seems to say that Dr. Fine is announcing publication of his research, but it is alittle vague on this subect. Has anyone else received this invitation? Does anyone plan to attend? I live too far way or I would be there. Please let us know. Thanks.

Joe
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#2 User is offline   Lisa 

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Posted 20 October 2009 - 06:08 PM

View PostJoe G, on Oct 20 2009, 09:57 PM, said:

This invitation seems to say that Dr. Fine is announcing publication of his research, but it is alittle vague on this subect.


Yes, vague. It seems more like a promo for his band, rather than for his research.
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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#3 User is offline   JennyC 

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Posted 21 October 2009 - 03:26 PM

Wow. He sounds very "well off" to be able to afford such events. I bet he got that way by selling tests for unvalidated assays. That's just sad.
Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.
Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic
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#4 User is offline   ravenwoodglass 

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Posted 22 October 2009 - 04:51 AM

Anyone who has used Enterolab likely got this invite. I would go if I could as it sounds like fun and I would be interested in hearing him speak on his research. The only difference between this invite and the ones I get from folks like the GIG is that his band is playing during the event. I am thankful for Dr. Fine and his tests. I just wish I knew he existed during the many, many years I was misdiagnosed. It would have saved myself and my family a lot of pain and wasted years.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#5 User is offline   homemaker 

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Posted 22 October 2009 - 05:21 AM

View Postravenwoodglass, on Oct 22 2009, 08:51 AM, said:

Anyone who has used Enterolab likely got this invite. I would go if I could as it sounds like fun and I would be interested in hearing him speak on his research. The only difference between this invite and the ones I get from folks like the GIG is that his band is playing during the event. I am thankful for Dr. Fine and his tests. I just wish I knew he existed during the many, many years I was misdiagnosed. It would have saved myself and my family a lot of pain and wasted years.

I agree...I never knew that enterolab existed until I was on this forum. My belief is that there is still SO many things not understood as of yet regarding gluten sensitivities and celiac, and I believe that the medical community has a LONG way to go when it comes to diagnosing these disorders. When I look at my own family history, filled with Celiac and their related diseases, I could just cry.
So I CHOOSE to use enterolab as just ONE tool in my own personal health and wellbeing, just as I use traditional medicine as a TOOL.
I own my own body, and I make choices regarding it, so I am VERY glad that enterolab offers the services that it does.
There are many physicians that do use enterolab and endorse them...One example is below....
Health Now Medical Center
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
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#6 User is offline   homemaker 

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Posted 22 October 2009 - 08:25 AM

View PostSpruster, on Oct 22 2009, 11:54 AM, said:

:huh: Dr. Vikki Peterson is a chiropractor.

I understand that she is a chiropractor...she is part of a medical team....under the supervision of MD's
Physician
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
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#7 User is offline   homemaker 

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Posted 22 October 2009 - 08:29 AM

There are many schools of thinking regarding Celiac Disease and gluten sensitivity...
AND there are many patients that have been helped by more open minded physicians.
I believe that someday the medical profession will look back at how we diagnosed Celiac
and related disorders and will be in awe at how archaic we were....
I am not an MD, I am a patient...no more....I applaud Dr. Fine for thinking outside the box..
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
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#8 User is offline   chiroptera 

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Posted 22 October 2009 - 08:49 AM

If we all knew how the medical insurance industry works from a doctors viewpoint (esp HMO's) I think people would be less likely to criticize Dr. Fine. Does everyone really think their traditional doctor has their best interest in mind? Seriously..????? Most, but not all, do not. Think about all the terrible times people on these forums have had with doctors... the thing that bothers me the absolute most is doctors saying it's all in people's head. Esp the children!

Most people do not want to walk about very sick and are making it up.

Our family chose to use Enterolab and in our experience he is correct.
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#9 User is offline   Lisa 

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Posted 22 October 2009 - 10:04 AM

View Postchiroptera, on Oct 22 2009, 12:49 PM, said:

. Does everyone really think their traditional doctor has their best interest in mind? Seriously..????? .


Yes, I do. If I did not, I would find another one who does.

If Enterolabs is your chosen avenue, I think that's great. For those of you with time, educate yourself and make the best informed choice for you and your family, whatever direction that may be.

My opinion is not set in concrete. I still am anxiously awaiting independent peer review of Dr. Fine's work, which has been promised for many years now. There are those who are strong supporters of Enterolabs and an equal amount of those who are not. I am not a supporter, but I try to respect those who are.
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Celiac.com - Celiac Disease Board Moderator
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#10 User is offline   sixtytwo 

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Posted 23 October 2009 - 10:37 AM

HOMEMAKER----I just looked at all of those bits on U-Tube. Thanks. I have never heard a more thorough explaination of gluten sensitivity before. RESULTS...........doesn't make a lot of difference if you are celiac or gluten sensitive, you must stay off the gluten totally. I am one that thought that if you are gluten sensitive, then you could have a little bit here and there. I have so many of the ailments that he was talking about like thyroid, headaches and he didn't mention it as fibromyalgia, but he did say muscle/joint aches and pains. All considerably better when I am gluten free. My stomach hurts today so I am wondering what I ate yesterday that caused it. Thought I was being really good. Again, thanks for the tip, everyone should watch those videos.


Barbara
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#11 User is offline   TrillumHunter 

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Posted 23 October 2009 - 01:50 PM

View PostSpruster, on Oct 22 2009, 11:54 AM, said:

:huh: Dr. Vikki Peterson is a chiropractor.


What's your point with this?
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#12 User is offline   homemaker 

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Posted 23 October 2009 - 02:21 PM

View PostSpruster, on Oct 23 2009, 06:13 PM, said:

I don't go to a gastoenterolosist for a backache and I don't go to a chiropractor for a belly ache.

Chiropractors have NO business diagnosing celiac disease. They can't do a small bowel biopsy to make a proper diagnosis. They might have you do a spit test or something and tell you never to eat gluten again. But that isn't a diagnosis of anything at all. It's just a twist of Kenneth Fine's angle. And Yes, I am entitled to my opinion. ;)

If you all want to narrow your worlds based on what someone like Vikki Peterson tells you, that is just fine with me. You are adults. Please make sure your children have a proper diagnosis as they have no choice in the matter. I consider it abuse to deprive a child of gluten if they don't absoutely need to be gluten-free. By that, I mean biopsy diagnosed celiac. True villi damage!

You are entitled to your opinion....
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
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#13 User is offline   wildwood 

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Posted 23 October 2009 - 02:29 PM

View PostSpruster, on Oct 23 2009, 06:13 PM, said:

I don't go to a gastoenterolosist for a backache and I don't go to a chiropractor for a belly ache.

Chiropractors have NO business diagnosing celiac disease. They can't do a small bowel biopsy to make a proper diagnosis. They might have you do a spit test or something and tell you never to eat gluten again. But that isn't a diagnosis of anything at all. It's just a twist of Kenneth Fine's angle. And Yes, I am entitled to my opinion. ;)

If you all want to narrow your worlds based on what someone like Vikki Peterson tells you, that is just fine with me. You are adults. Please make sure your children have a proper diagnosis as they have no choice in the matter. I consider it abuse to deprive a child of gluten if they don't absoutely need to be gluten-free. By that, I mean biopsy diagnosed celiac. True villi damage!

How do you explain those diagnosed celiacs like my daughter that have no villi damage? (she had two biopsies) If we went by villi damage and assumed because the negative biopsies meant gluten was not a problem she would still be suffering from chest pain, abdominal pain, constipation, rashes, and tingling in her limbs and the list goes on. She is 100% better gluten free. If she gets glutened she has severe stomach pain and is out of commission for a day or two. Her stomach became more sensitive to gluten once she was off of it. I do not know enough about Dr. Fine or Vikki Peterson to comment of them, but I just felt the need to point out that as much as some feel endoscopy and villi damage is the "gold standard", there are many that do not exhibit villi damage at least not right away.
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#14 User is offline   wildwood 

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Posted 23 October 2009 - 02:44 PM

View PostSpruster, on Oct 23 2009, 06:42 PM, said:

Your daughter is legally an adult. She had a very positive ttg. Everything was done by the book. I also feel she does have a proper diagnosis. I do understand the damage is spotty. I just don't believe in making a minor child gluten-free unless there is overwhelming evidence of celiac disease.

I respectfully disagree.
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#15 User is offline   homemaker 

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Posted 23 October 2009 - 02:56 PM

I do not think it is abusive to put a child on a gluten free diet without a diagnosis. A parent knows his or her child, and they are entitled to make decisions for that child....If the child improves, then what more proof would a parent need...
No parent wants to see their child in discomfort...
I have a degree in Child Development and Family Relations and I see no abuse in a gluten-free diet...
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
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