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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Thinking Of College.
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9 posts in this topic

I am 16 and was diagnosed with celiac disease about a year and a half ago. I am not there yet but I am curious about how you go about eating correctly in college. I also need to know if there are any killer cookies you like, the kind I loved are not carried by my health food store anymore. Thanks.

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I have my own house so it really makes things easy as far as food goes. I don't have roomates to contaminate anything. I am a great cook so cooking is a breeze, the only trouble I have is finding the time to cook. I have a SUPER busy semester right now and hardly any time to cook. What I attempt to do is cook on sunday and monday and then eat leftovers the rest of the week. I also have meals in the freezer that I can just pull out and heat up (put leftovers in glad or ziploc containers, label, date and freeze).

If you are thinking of living in the dorms, go and talk to the person in charge of the food program and explain to them your situation. They MUST work with you. Celiac disease is covered by the Americans with Disabilities Act. They have to provide adequate food for you.

You have pleanty of time to figure out all your questions. Great idea to get a head start on them now so you aren't rushing around to find answers later.

Best of luck.

-Jessica :rolleyes:

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Those are some really informative tips thank you! I just want to have an idea what to do. Since I have been diagnosed I have become a pretty good cook myself and cookbooks help me with that. The freezing idea is great!

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I've been dealing with the gluten-free diet in college for about a month now. I no longer live on campus but I've found there are options. I usually have a salad and fruit for lunch when I dine on campus. I'm at a larger university, so there are a number of cafeteria options. Be sure to consider your proximity to gluten-free food when you choose a dorm if you decide to live on campus. I say this because on my campus there is only 1 cafeteria style restaurant that serves fresh vegetables and meats that are gluten-free. On the other areas of campus you have your greasy spoons which don't have many options. If you live off-campus, even if you aren't the best cook, life goes on. I'm a guy, so I get by with my George Foreman and the ability to boil pasta and still manage to have a decent variety.

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I was diagnosed with celiac disease when I was 18 months old. Coming to college having to deal with different eating habits made me a little nervous. Now I am a sohomore and it hasnt been a huge change for me. Last year I lived in the dorms and I just lived on salads and baked potatoes for about a year and never got sick of them. Now I live off campus in an apartment, I just learned how to cook and I am still experimenting with different foods to see what I like and dislike.

If anyone has any questions about dealing with celiac disease while in college, please ask me. I love to talk about this with anyone

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Where do you all go to college? Do any of you go to college on the west coast and have had successes with food options? I'm starting to seriously think about colleges and I'm more than a little concerned about the food situation. Thanks!

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Shanmac,

You will find that most college towns have terrific health food stores. I

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You're going to A&M? That's cool, I live in the Woodlands, about 2 hours away from College Station. I'm actually going to a community college right now because of my disease so i can live at home and watch what I eat. I was diagnosed as a senior in high school, so going off to college in my condition would have been extremely difficult. I'm going to apply to UT and A&M for the spring of 2005 semester. Hopefully I'll get into one of them, I've got a lot of the basic classes out of the way. I want to major in Nutrition and be a dietician, for obvious reasons. How long have you been in College Station? and do you like it?

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Just a piece of advice. Don't go to a small college. I'm in Kenosha, WI and their idea of health food is whole wheat. Thankfully the grocery store has started carrying more gluten-free products, but half the time I have to drive home every two weeks to get food that is microwaveable. Just make sure that when looking at schools see if there is somewhere to cook. And if you have to go to the cafe, make sure that they understand your needs because the place that I went doesn't get the whole gluten-free thing and half the time I ended up sick. Thank God I'm graduating in May.

Raven

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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