Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Sudden Insomnia After Going Gluten Free
1 1

39 posts in this topic

I've never had issues with sleep in the past (unless I was particularly stressed about something, then I might lay awake for an hour) but since going gluten free a couple of weeks ago I've been having trouble every single night. I'm having trouble getting to sleep then staying that way (but part of that is my cats who prefer my bedroom for their mischief at night) and I am feeling less rested as a result. Not that I normally feel rested after a night's sleep, even if I get a full night. I attributed that to full time work and school but I hear that celiac can be to blame also.

So what's with with insomnia now that I don't have gluten? Actually I can't say I don't have it.. I *think* I don't have it but I'm just learning that I should get a new toaster and things like that to avoid cross contamination so there could be traces but I'm making a valiant effort.

*yawn*

0

Share this post


Link to post
Share on other sites


Ads by Google:

Many people experience low blood sugar in the night which messes with their "sleeping clock". You may need a high protein snack before bed. Have you been extra hungry? If so, you will need some hunger killing food to sleep through the night.

0

Share this post


Link to post
Share on other sites
Many people experience low blood sugar in the night which messes with their "sleeping clock". You may need a high protein snack before bed. Have you been extra hungry? If so, you will need some hunger killing food to sleep through the night.

Wow, I have not heard of this...I too seem to wake up around 3pm feeling that sort of weak in the knees blood sugar thing...

How strange, I wonder why that is?

0

Share this post


Link to post
Share on other sites
Many people experience low blood sugar in the night which messes with their "sleeping clock". You may need a high protein snack before bed. Have you been extra hungry? If so, you will need some hunger killing food to sleep through the night.

I've noticed some extra hunger but nothing that's kept me up at night. I usually eat several small meals throughout the day at the advice of the nutritionist. I'll try adding something closer to bedtime.

0

Share this post


Link to post
Share on other sites

My sleep pattern goes thru spurts.

Meaning I can go to bed, sleep about 4 hrs and then I'm up.......the longer I'm up, the more apt I am to have coffee.

If I try to go back to sleep, I just lay there with my eyes closed and mind wide awake.

I've never had the coffee issue before going gluten-free - I could go to sleep after a POT of coffee!

Now it's all different.

I am not always tired when I know I have to get sleep.....so I usually end up having a drink (mixed or wine) before bed to 'relax' me....and I've never been a lightweight on that either.

But it does the trick.

There's times that my sleep is good and then times that it is restless or limited......due to dreams or nightmares or noises.

I do notice that the sleep patterns have definitely changed.....along with my senses.

I'm guessing my hightened senses has something to do with the sleep issues.

The only time I really get tired is at work after I've eaten a lunch that was bigger than I'm used to.

Maybe there is some truth to what was said about eating and sleep.

But I'm not one to eat before bed.

It just doesn't seem normal..........but then again, I'm learning to be abnormal compared to the gluten life.

0

Share this post


Link to post
Share on other sites




I've never had issues with sleep in the past (unless I was particularly stressed about something, then I might lay awake for an hour) but since going gluten free a couple of weeks ago I've been having trouble every single night. I'm having trouble getting to sleep then staying that way (but part of that is my cats who prefer my bedroom for their mischief at night) and I am feeling less rested as a result. Not that I normally feel rested after a night's sleep, even if I get a full night. I attributed that to full time work and school but I hear that celiac can be to blame also.

So what's with with insomnia now that I don't have gluten? Actually I can't say I don't have it.. I *think* I don't have it but I'm just learning that I should get a new toaster and things like that to avoid cross contamination so there could be traces but I'm making a valiant effort.

*yawn*

I will get insomnia with diet changes. Because I like to travel there are times when my dietary habits change pretty drastically.

Before going on a Gluten-Free diet I had read that eating a whole grain snack, and something high in calcium helps with sleep.

With my last dietary change, traveling to Texas, I used rice crackers and Tums with good success as a nighttime snack before sleep.

Because my trip to Texas was to visit with people I had been talking to for years on the internet, I did quite a bit of eating out in restaurants, plus their home cooked meals. Talk about a change in diet! None of the people I visited had Celiac Disease (around 10 destinations), but they knew to try and keep Gluten out of the meals.

0

Share this post


Link to post
Share on other sites

I have had the same thing happen to me. I recently went gluten free and it takes me forever to fall asleep.

0

Share this post


Link to post
Share on other sites

I didn't experience exactly insomnia, but after going gluten-free and every time after major glutening I got into a kind of 'hyperactive mode'. It felt as if somebody slipped a few extasy pills into my meal. I wouldn't be able to fall asleep before 1-2am and even like that I would wake up at 5am, I wouldn't feel a tiny bit tired working all day non-stop until late at night... (almost feels worth getting glutened :ph34r: ). It always lasted a few days/a week, then after a few lazy days I would be 'normal' again.

0

Share this post


Link to post
Share on other sites

I'm going through the exact same thing. I could have written your title.

0

Share this post


Link to post
Share on other sites

I'm glad that you posted this. I am one week gluten free today and every night I turn this way, then turn that way, get up, drink some milk, lay back down, get up again.

I've never been like this my whole life. I sleep fine once I fall asleep, but it takes a long time to feel asleep.

Then, when Im trying to fall asleep, here come the jimmy legs. I get the jimmy legs awful. Have to start turning my ankles and stretching my legs. I don't know if that's what you all call it, the jimmy legs. Do you know what I mean?

0

Share this post


Link to post
Share on other sites

Same here! For years I have had either a toasts or cereal before bed. I thought it was the carbs that were making me sleepy (I was eating pretty much low carb all day). But no! I realised when I went gluten-free that it was actually the bad stuuf that was knocking me out. I have noticed how sleepy I get when I come in contact with the tiniest amount of gluten.

Since going gluten-free (2 years ago) I have tried about every trick and remedy. I good snack seems to help, I also found some natural herbal mix that is quite effective and sometimes some yoga helps. But every night I have to keep the same relaxing routine and I make sure I only go to bed when I'm quite sleepy.

I am now realising I was "using" gluten as a sleeping peel and was quite addicted...

It's frustrating at first but my now sleep (and without a doubt my health) is constantly getting better. :)

Hope you also find tricks that work for you. ;)

0

Share this post


Link to post
Share on other sites

After I get glutened I suffer from insane insomnia. I have to literally force myself to sit still or even go to sleep. It's like I'm a little kid again who's had way to much sugar or something :P I tried tylonal PM but even it doesn't help much. I'm only getting a couple hours of sleep at a time falling asleep at 4 or 5 am and waking up at 9am :P

0

Share this post


Link to post
Share on other sites

After I get glutened I suffer from insane insomnia. I have to literally force myself to sit still or even go to sleep. It's like I'm a little kid again who's had way to much sugar or something :P

I agree with this. I am a night person anyway, but when I get glutened I will be tired but I cannot settle down. I'll get a lot of stuff done though. ;)

0

Share this post


Link to post
Share on other sites

Doesn't wheat and dairy products generally make you or help you sleep better and easier before going to bed?

0

Share this post


Link to post
Share on other sites

Wow, looks like we all have the same kind of problem. Just under two weeks gluten free, and suddenly awake around 2 or 3am, can't lie on one side for more than a few moments.

Strange thing though, I'm not as tired as what I would have been if still eating gluten products and only had four hours sleep. So, besides that the tossing and turning wakes my husband, its not been too bad!

Would love a solution though. One other than sleeping tablets.

0

Share this post


Link to post
Share on other sites

if you are not already doing so, you should try taking sublingual methylcobalamin (b12) everyday, make sure that all of it dissolves in your mouth (under your tongue), instead of chewing it up

i found that it definately had some positive effects on my sleep

1

Share this post


Link to post
Share on other sites

if you are not already doing so, you should try taking sublingual methylcobalamin (b12) everyday, make sure that all of it dissolves in your mouth (under your tongue), instead of chewing it up

i found that it definately had some positive effects on my sleep

How long did the B12 take to work for you? I started taking it about five weeks ago an feel no different yet. My insomnia is severe (due to an extremely painful back injury) and is only helped by prescription drugs. Wonder if B12 would help in my case??!!

0

Share this post


Link to post
Share on other sites

THE BEST thing I could have gotten because of this same problem was Bach's Sleep Remedy Spray and Peter Gilhams Calcium/Magnesium Natural Calm. Those 2 things by night 1 knocked me out!Slept 8+ hours and wasn't graggy at all the next day. I found that I wasn't absorbing minerals well which in turn messed up A LOT of things in my body and being deficient in Cal/Mag which can be a HUGE part of relaxing my nerves and my stress which kept me up "thinking" and my brain staying awake all night it seemed.(Bach's helped with that too) Hopefully you find something that will help you. I got both of those from a Natural food/Supplement store.Good luck!

*Magnesium alone is responsible for helping in over 200 functions in the body, so if your body is lacking, it causes all sorts of chaos. Calcium is up there too!

0

Share this post


Link to post
Share on other sites

Wow, looks like we all have the same kind of problem. Just under two weeks gluten free, and suddenly awake around 2 or 3am, can't lie on one side for more than a few moments.

Strange thing though, I'm not as tired as what I would have been if still eating gluten products and only had four hours sleep. So, besides that the tossing and turning wakes my husband, its not been too bad!

Would love a solution though. One other than sleeping tablets.

After I went gluten and milk free, I found I didn't need as much sleep as I did before. I think it's great!!!!

0

Share this post


Link to post
Share on other sites

My 10.5 year old had been complaining he can't fall asleep for the past few nights and that he is tired after school. He is currently doing a trial of gluten free and has been completely gluten free since Monday. Not sure if it is related or not...hmm

0

Share this post


Link to post
Share on other sites

Might try elininating dairy. I always thought that dairy would be gut issues, but am finding out differently. I stopped dairy a couple weeks ago, thinking it might help another symptom, (cracking, rough skin on fingers) Have found that my sleep has greatly improved. It helped by going gluten free, but it is so much better without dairy.

0

Share this post


Link to post
Share on other sites

I have chronic sleep-maintenance insomnia and I've been gluten-free for a little over a month now. After the first week I did notice that my insomnia (which is "normal" for me) suddenly got worse, which I think must have been related to going gluten-free. I had other gluten withdrawal symptoms as well like vertigo/ataxia and abdominal pains, which were different than the normal IBS abdominal cramps I usually get. Most of that disappeared in about a week though.

0

Share this post


Link to post
Share on other sites

Wow, looks like we all have the same kind of problem. Just under two weeks gluten free, and suddenly awake around 2 or 3am, can't lie on one side for more than a few moments.

Strange thing though, I'm not as tired as what I would have been if still eating gluten products and only had four hours sleep. So, besides that the tossing and turning wakes my husband, its not been too bad!

Would love a solution though. One other than sleeping tablets.

Yeah since I went gluten free I wake up very early in the morning, 3-4AM and cannot go back to sleep. Snacking before bed seems to help a little, but I am not able to sleep longer than 5-6 hours at the most and a lot of times it is less than that. I ordered B12 sub-lingual supplements, will give them a try, but I am wondering how you all have been coping with this.

0

Share this post


Link to post
Share on other sites

Yeah since I went gluten free I wake up very early in the morning, 3-4AM and cannot go back to sleep. Snacking before bed seems to help a little, but I am not able to sleep longer than 5-6 hours at the most and a lot of times it is less than that. I ordered B12 sub-lingual supplements, will give them a try, but I am wondering how you all have been coping with this.

I have exactly the same issue, lately I've been waking up two to three times in a night where as before it was only about 5 hours in. I'm not as tired as I would have been but I hate laying in bed the last two hours of the night unable to fall back asleep. Eating also helps me a bit. And I know I shouldn't but I generally wake up and have a cigerette, sometimes I feel really shaky and need to vomit but that's usually only the first few days.

BTW My name is also Kara :P

0

Share this post


Link to post
Share on other sites

I have exactly the same issue, lately I've been waking up two to three times in a night where as before it was only about 5 hours in. I'm not as tired as I would have been but I hate laying in bed the last two hours of the night unable to fall back asleep. Eating also helps me a bit. And I know I shouldn't but I generally wake up and have a cigerette, sometimes I feel really shaky and need to vomit but that's usually only the first few days.

BTW My name is also Kara :P

Thank you Kara :) So how long have you been gluten free? What do you mean by first few days wrt feeling shaky? I guess when you first went gluten free? I have been gluten free just about couple of months and my sleep has not improved much since it started.

BTW my username is derived from two words, Kara and Boga, in English it would be Black Bull :) I am a new member, have been lurking for a while. When I discovered other gluten free folks are having similar sleep problems I was relieved in some way and decided to write and try to get more info.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,568
  • Topics

  • Posts

    • I was only asking because when ferritin is low that you can experience hair loss/fatigue etc. even if your other iron levels are in range. This just happened to me so I thought I would share just in case it helps you. Ferritin should be above 50 to be optimal, not just "in range."  I've been on iron supplements and much better now. This may not be your problem at all, but I would have them check your ferritin levels. Low iron or anemia is common with celiac. The ferritin test is measuring how much iron is stored in your body. FYi: Iron binding capacity is really telling you how much protein your liver is making in order to carry that iron around. Usually, iron binding capacity will be higher in the range when iron is low. Edit: Also my blood pressure was low when my ferritin level got very low.
    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,648
    • Most Online
      3,093

    Newest Member
    Mileenabug
    Joined