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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Rice Dream? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Rice Dream? confused it says gluten free on box Rate Topic: -----

#1 User is offline   clarkje20 

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Posted 28 October 2009 - 07:45 AM

Ok can somebody help me with the Rice dream???? It states on the box that its gluten free but people on here says its not and it contains barley??? So is Rice dream safe for celiacs?????
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#2 User is offline   climbmtwhitney 

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Posted 28 October 2009 - 07:53 AM

Hi.

Rice Dream is processed with a barley enzyme. I suppose for some that's too minor an amount of gluten. However, my daughter & I have personally gotten very sick 2x from it. Once was early in the diet when I didn't know and made french toast with it. The second time someone else made us cornbread with it not realizing. Now we use Pacific brand.
Jillian

*******
I was dx Celiac 2008 + casein, soy, legume, nightshade, and chicken intolerant; dx hypothyroid 2006

13 yr. old daughter dx Celiac + plus casein intolerant 2008
11 yr. old daughter dx gluten intolerant 2008
8 yr. old son dx gluten + casein intolerant 2008; also artificial food dye/preservative/flavor intolerant 2009; suspect Celiac rash
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#3 User is offline   Lisa 

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Posted 28 October 2009 - 08:23 AM

The legal standard for what can be called "gluten free" is not established at this point. The gluten in Rice Dream may be below the suggested 20ppm, which some consider a safe level of gluten for people with Celiac to consume.

http://celiacdisease.about.com/od/glutenfr...ng/a/FALCPA.htm
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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#4 User is offline   mcphena 

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Posted 28 October 2009 - 08:44 AM

I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water
organic brown rice
organic expeller pressed safflower and/or sunflower oil and/or canola oil
Tricalcium Phosphate
Sea Salt
Vitamin A Palmitate
Vitamin D2
Vitamin B12

Is anything in that gluten? I don't see anything.
38 year old homeschooling mom of 3, currently pregnant with #4!
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage

diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
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#5 User is offline   jerseyangel 

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Posted 28 October 2009 - 08:52 AM

View Postmcphena, on Oct 28 2009, 11:44 AM, said:

I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water
organic brown rice
organic expeller pressed safflower and/or sunflower oil and/or canola oil
Tricalcium Phosphate
Sea Salt
Vitamin A Palmitate
Vitamin D2
Vitamin B12

Is anything in that gluten? I don't see anything.

The barley enzyme is used in the processing of the milk, not added to it, so it doesn't have to be listed as an ingredient. It's always been prepared the same way, and the label used to disclose this--the label has changed but they still use the barley (I verified this with a phone call to the company). I reacted to it, as many others here. I'm sure that the amount is so low that many will also be able to tolerate it fine. :)
Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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#6 User is offline   mcphena 

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Posted 28 October 2009 - 09:06 AM

Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"
38 year old homeschooling mom of 3, currently pregnant with #4!
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage

diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
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#7 User is offline   clarkje20 

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Posted 28 October 2009 - 11:10 AM

View Postmcphena, on Oct 28 2009, 12:06 PM, said:

Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"




This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... uggg I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....
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#8 User is offline   Lisa 

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Posted 28 October 2009 - 11:25 AM

View Postclarkje20, on Oct 28 2009, 03:10 PM, said:

This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... ug I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....


I would recommend that you read this article:

http://www.celiac.com/articles/21655/1/How...ease/Page1.html

The progress I have seen over the past five years had been tremendous! And I expect that the next five will even exceed that.

If a product does not sit well with you, put it on your "don't go there again" list. Trust your instincts. And what may not work for you, might be okay for others. Sometimes you have to individualize your gluten free choices.
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Celiac.com - Celiac Disease Board Moderator
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#9 User is offline   ksymonds84 

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Posted 28 October 2009 - 01:27 PM

I am one that does NOT react to Rice Milk and can't wait for the egg nog rice dream to hit the shelves! :) I agree with Lisa that everyone is different especially with their level of sensitivity.
Kathy

Gluten free 3/08
Negative blood work/positive endoscopy
Fructose Malabsorption
Soy free
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#10 User is offline   KristaleeJane 

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Posted 31 October 2009 - 09:42 AM

I agree that it should not be labeled gluten free, I also bought and had to return it after having a reaction, but I am very sensitive. I believe that even the smallest amount of gluten can harm you. I have been drinking Ryza Rice Milk, which is Gluten Free. Its really good and no Reaction.
Gluten Free since Apr 14-08
Mar 08.....Blood work-Positive for Celiac Results were High (92)
Apr 08....Biopsy Results indicating abnormalities associated with celiac disease & Villi atrophy.
May-08.... Appendicitis
July 08.....X-ray indicates Degenerative Disc Disease
Symptoms that the gluten free diet has helped: All Stomach Problems, Bloating, Vomiting, Heartburn & D, Energy, overall feeling of health again, Migraine, Degenerative disc Disease, and Infertility.
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#11 User is offline   OptimisticMom42 

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Posted 31 October 2009 - 05:00 PM

Any problems with Westsoy Rice Milk?
Dx Celiacs March '09
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#12 User is offline   clarkje20 

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Posted 10 November 2009 - 05:45 PM

I have recently purchased Hemp Milk and it taste great and is dairy free and gluten free with NO barley!!! Im sooo excited!!!
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#13 User is offline   earthtoneNJ 

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Posted 21 November 2009 - 06:47 PM

this is what i got from the company. I didn't realize the same company made so many different products (arrowhead mills, deboles, celestial). I'll be taking everything they say with a grain of salt now:


Thank you for taking the time to contact us regarding our Rice Dream Beverage. We strive to maintain the highest quality products and appreciate your patronage.

Analytical testing methods and detection limits have improved over the years. Recent testing shows that the Rice Dream Beverages, as well as the barley protein used to make the product, meet gluten free requirements. We have always maintained a conservative stance regarding gluten in the beverages. The same rigorous standards now allow us to declare them gluten free.

Thank you for your continued support. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time.

Sarah
Consumer Relations Representative


...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.
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#14 User is offline   grainfree 

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Posted 22 November 2009 - 09:06 AM

The percentage barley protein printed on the Rice Dream rice milk box I purchased is .002. I had a reaction.
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#15 User is offline   ksymonds84 

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Posted 23 November 2009 - 09:43 AM

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.
[/quote]


Here's my take on why I don't react. Everyone has their own personal threshold on gluten. The codex has set 20 parts per million (20 ppm) to be safe for most celiacs which is whats in rice dream. However, some individuals will react at 10 ppm and others won't react as high as 40 ppm. For me, I make everything from scratch and rarely eat processed foods so I'm betting that I am okay with up 20ppm per day, but what if I went out to eat and got cc and my ppm goes up further? Then perhaps I would react. I do react if I accidentally eat something with gluten such as last year the reeses holiday bells. I don't do the rice dream everyday, and never drink it straight up , except a half cup of the nog if I can find it. But mostly I use it in recipes such as 4 tbs for pizza crust or 2tbs for scrambled eggs) I just like that it doesn't have soy lecithin, guar gum ect. My last biopsy shows that i am healing and my IgA is low as well so I know I am doing okay.
This is one of those things that is a personal decision. However you are correct it should say on box that it is tested to be below 20ppmwith the barely enzyme removed so that sensitive celiacs can be informed and make a decision that is best for them.
Kathy

Gluten free 3/08
Negative blood work/positive endoscopy
Fructose Malabsorption
Soy free
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