Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Just Cant Put On Weight! Steriods Or Weightgainers
0

5 posts in this topic

I was diagnosed last year around October after being misdiagnosed for at least 5 years with IBS.

Some of my symptoms have subsided but alot are still present. I think i was probobly stage 3 or 4 upon reading other posts. I still have daily and weekly pains and symptoms and have felt that i have been really careful not to get glutenized!

I lost 50 lbs and CANNOT seem to put the weight back on!

I was 220lbs and thick and pretty fit.

Now i fluctuate between 176-180.....

I am 6'3" and look skinnier than i did when i was in my prime in high school!

Are there any "safe" weight gain powders or supplements?

OR are steroids the answer?

( i wasnt aware steroids where prescribed until reading some other posts..)

Any advice would be very appreciated!

0

Share this post


Link to post
Share on other sites


Ads by Google:

HI nailehead,

my husband has been put on steroids but not primarily to put on weight.

My husband has 'refractory' coeliac disease (meaning it's not getting better on a gluten free diet).

The steroids are prescribed to dampen down the immune system,by dampening down the immune response,this allows the bowel to heal(hopefully).

Of course a side effect of the steroids can be a huge appetite-helping with the weight gain.

My husband is around 120 pounds at 6ft tall ,so any weight gain would be a bonus!

However,these are extremely strong drugs,and should not be taken lightly.They can also have some nasty side effects-so I don't think you should be thinking of steroids just yet.Do you have a gastro doctor?.I would discuss your symptoms with him/her.Did you have a biopsy yet?.Maybe after a year gluten-free you should ask for a repeat biopsy to work out if your bowel is healing.

I believe my husband has had this disease for a long time undiagnosed,so I think that there is a lot of damage to undo,& will take a while(he's been gluten-free for 8 months.)

Another thing you may want to consider is other food allergies causing your symptoms i.e.lactose,casein,soy,yeast.

Do you see a dietician?.They would be able to advise on suitable gluten-free build up additives(my husband has enlive &ensure drinks packed with vitamins & calories).

I hope this is some help!

0

Share this post


Link to post
Share on other sites

Thanks Nikki!

I was diagnosed by my "primary care" doctor, which pretty much means an all around family physician, but at least she finally found it ( Celiac ) after 5 years and 5 other docs telling me it was IBS and to "live with it"!

I was referred to a specialist here in San Diego that i will be contacing today..hopefully and set up an appt.

I have been conversing with a nutritionis/celiac specialist over the phone, and she feels that i have a severe case of Celiac and DEF need to go see a specialist!

working on that now!

thanks for your input!

i am in pain and discomfort EVERYDAY even being on the gluten-free diet!

it is really frustrating and affecting my attitude mentally, and still my body physically...very depressing...

0

Share this post


Link to post
Share on other sites

First, have you made sure nothing is sneaking into your diet? Have you checked things like shampoos and stuff you put on your hands, face, or head that could possibly get into your mouth?

I lost close to 20 pounds before going gluten free but after I gained it back.

Ensure Plus (chilled) is really good to get some calories into you. They have 350 calories for 1 bottle= to 1 cup. Ensure Plus is made to help people gain weight. My favorite is the butter pecan...chilled always taste better. Ensure and Ensure Plus drinks are gluten free.

Sunflower seeds, peanuts, cashews, apples or a fruit with peanut butter. These are a few things that are good for gaining weight because they are high calorie.

You need to eat more calories then you burn. I know I have a fast metabloism on top of everything so I had to eat alot more in order to gain weight. Eat about 500 more calories then you usually eat.

Here is a link with a calorie counter...what you can do is put in your ideal weight and it will tell you how many calories you need to have to reach that goal.

http://www.cancer.org/docroot/PED/content/...sp?sitearea=PED

Here is another site for it as well...this one is a bit more in depth

http://www.dietitian.com/ibw/ibw.html

0

Share this post


Link to post
Share on other sites

It's hard going isn't it, to finally find out why you feel so bad-but to not feel any better with the 'cure'(gluten-free diet).

I think I also understand what you mean by all of this is affecting your 'mental attitude'.

My husband has been gravely ill with this disease,and he does get very down about it.Since diagnosis in the last 8 months he has been mostly bedridden,& it's affected us all as a family(we have 3 kids too).

It is so very frustrating when despite your best efforts you're not getting better,however,hopefully-you'll have a better idea of what's going on after seeing your specialist.

Hang in there-hope you feel better soon.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,647
    • Total Posts
      921,596
  • Topics

  • Posts

    • Tell your medical doctor that you want a full Celiac panel before you go gluten-free.  The stool tests aren't considered medically valid, so they probably won't accept those.  
    • Sure, if you are feeling better from the Celiac, now you might notice other things you didn't before.     a very real possibility is that you have changed your diet and are now eating something you didn't eat much of before.  Or you are eating larger or smaller amounts of protein or fiber....that sort of thing
    • This board is quite old but I'm hoping someone can continue on this topic. I am 61 years old and in all my life and doctors' visits, I have never had a western doctor ask me if I have a family history of celiac or suggest a gluten free diet. In all honesty, I have only started having what could be considered "gluten sensitive" symptoms within the past 2 years - chronic, unexplained bouts of diarrhea, mainly. Although bloodwork has shown in the past 2 years I now have high cholesterol, blood sugar, blood pressure and a bone density scan showed osteopenia. My PCP put me on meds for everything, of course. I recently began seeing a naturopath - and when I was running down my health history and list of symptoms she immediately asked about the family history of celiac. My father was positively diagnosed, through biopsy, with celiac sprue about 25 years ago, when nobody talked about gluten sensitivity. Anyway, she had me do the full panel testing at Enterolab. I have one celiac gene and a gene that indicates neurological manifestations of gluten sensitivity (I have long been plagued with panic attacks and depression). I also showed extremely high (215 units, below 10 is normal) for fecal anti-gliadin and varying high results for dairy, eggs and soy. My fat malabsorption stool test also tested high (431 units and normal is less than 300). The interpretation from Enterolab and my naturopath both strongly advised I eliminate gluten from my diet for the rest of my life. Naturopath said after a year or two I may be able to try introducing limited dairy, eggs and soy back; but not until the glutin response is completely under control. I am really struggling with this. Everyone I've talked to (including adult children, spouse, other family members, friends) is skeptical about me making such a radical change in my (our) diets based on these results. They seem to view gluten sensitivity as a "fad" and think I am going off the deep end. "Get a second opinion" - or "talk to your PCP about it". I've read enough to know that my PCP will not be of much help. And since I really only had one irritating symptom that could be related to gluten sensitivity, it's not like my life will be radically improved by going gluten free. I guess I could choose to ignore the test results - for now. I'm trying to view going gluten, dairy, egg and soy free as preventative and something that will contribute to a healthier life as I age. But it's so hard ... especially when the people who mean the most to me think I'm over-reacting and kind of cuckoo. Can anyone help me out here? I feel so alone ...  
    • Hello everybody, I'm new to the forum but am so happy to have found somewhere where people living with coeliac can share their thoughts! I've only been gluten-free for two weeks.  About three days in, I started experiencing awful heartburn which hasnt let up and I'm wondering if anyone else had this after giving up gluten? It wasn't a typical symptom for me before so feeling very uncomfortable.  I am not due to see my gastro consultant again until December and my GP (who was about as helpful as a chocolate teapot!) just gave me lansoprazole (its a PPI) which isnt even touching it.  Just wondering if giving up gluten is unmasking other symptoms or if this is a normal or common withdrawal effect?  I feel like burping/belching could help but its something I've never been able to physically do. Im in my early 30s so hoping its not another thing... Any advice would be appreciated A
    • O sorry. Negative biopsy. But this was months ago but i have no energy. My teeth are rotting i feel sick all the time. And i was told by someone who has celiac that it can also be difficult to have a diagnosis cause you would have to eat 6 pieces of bread for 6 weeks in order to get a proper diagnosis. And i just know that something is up
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined