Help
I called about the rice cakes. I knew they were going to say there was cross contamination likely, but they told me they have a new product coming out that will be marked gluten free! I asked if that meant it was going to be made in a gluten free facility and she indicated that it was (I'm not believe it 100% yet though because she seemed just a tad uncertain). She said to watch the shelves for packages of rice cakes marked gluten free, so when I see them I will probably call again to see about the facility.
Called Quaker Today
new gluten-free product coming!
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#1
mcphena 
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Posted 30 October 2009 - 09:48 AM
38 year old homeschooling mom of 3, currently pregnant with #4!
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#2
Ahorsesoul
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Posted 30 October 2009 - 04:03 PM
You get 5 stars for researching and Reporting. This helps so much.
1960s-had symptoms-could have been before but don't remember
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world
#4
soulcurrent
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Posted 30 October 2009 - 05:46 PM
Hooray! Am I to understand then that the rice cakes currently out there are in danger of having gluten? That would explain some things.. I had the apple cinnamon and the caramel flavors here the last couple of weeks.
Haikus are easy
But sometimes they don't make sense
Refrigerator.
-------------------------
Diagnosed 9/28/09; Gluten free diet started 10/4/09.
But sometimes they don't make sense
Refrigerator.
-------------------------
Diagnosed 9/28/09; Gluten free diet started 10/4/09.
#5
ravenwoodglass
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Posted 31 October 2009 - 03:29 AM
soulcurrent, on Oct 30 2009, 05:46 PM, said:
Hooray! Am I to understand then that the rice cakes currently out there are in danger of having gluten? That would explain some things.. I had the apple cinnamon and the caramel flavors here the last couple of weeks.
At the present time those rice cakes would not be safe. Unless I know for sure that the new gluten-free line is processed in a dedicated plant I wouldn't touch them. Way to much of a CC risk.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#6
soulcurrent
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Posted 31 October 2009 - 10:47 AM
Aww i love those 
Haikus are easy
But sometimes they don't make sense
Refrigerator.
-------------------------
Diagnosed 9/28/09; Gluten free diet started 10/4/09.
But sometimes they don't make sense
Refrigerator.
-------------------------
Diagnosed 9/28/09; Gluten free diet started 10/4/09.
#7
homemaker
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Posted 31 October 2009 - 12:20 PM
soulcurrent, on Oct 31 2009, 02:47 PM, said:
Aww i love those
soulcurrent have you tried Lundberg Rice Cakes?
Lundberg Rice Cakes
They claim Gluten Free on their website....
Lundberg Gluten Free Statement
Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
#8
soulcurrent
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Posted 31 October 2009 - 01:48 PM
Nope, I'd never heard of them. Maybe I can find them at Whole Foods. (edit) My local store's site has them listed. I'll give them a shot.. hopefully not too expensive.
Haikus are easy
But sometimes they don't make sense
Refrigerator.
-------------------------
Diagnosed 9/28/09; Gluten free diet started 10/4/09.
But sometimes they don't make sense
Refrigerator.
-------------------------
Diagnosed 9/28/09; Gluten free diet started 10/4/09.
#9
ravenwoodglass
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Posted 01 November 2009 - 03:04 AM
soulcurrent, on Oct 31 2009, 01:48 PM, said:
Nope, I'd never heard of them. Maybe I can find them at Whole Foods. (edit) My local store's site has them listed. I'll give them a shot.. hopefully not too expensive.
They are pretty good and if memory serves me not too out of line price wise. There are also some corn based gluten-free 'rice cakes' around, I wish I could remember their name but you may find them in the same area of Whole Foods as the Lundberg. Those were good also and thinner, to me they tasted like popcorn.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#10
Roda
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Posted 01 November 2009 - 03:20 AM
ravenwoodglass, on Nov 1 2009, 06:04 AM, said:
They are pretty good and if memory serves me not too out of line price wise. There are also some corn based gluten-free 'rice cakes' around, I wish I could remember their name but you may find them in the same area of Whole Foods as the Lundberg. Those were good also and thinner, to me they tasted like popcorn.
I think raven might be talking about cornthins and they are very good. I perfer them over rice cakes. It is to bad about the quaker because I liked those better than the lundburg ones. The lundburg, in my opinion were too hard and I did not care for the taste.
Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
DS2(age 7):
celiac disease(positive IgA tTG, no biopsy- 11/2010)
DS1(age 11):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
DS2(age 7):
celiac disease(positive IgA tTG, no biopsy- 11/2010)
DS1(age 11):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
#11
Fiddle-Faddle
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Posted 02 November 2009 - 01:51 PM
Thank you so much for researching and posting this!
The only trouble I foresee is unfortunately a big one: Quaker probably knows that under the proposed labeling laws, they can label their product "gluten-free" even if it contains up to 20 ppm gluten. But currently, no legal definition seems to exist for "gluten-free." At this point, all "gluten-free" labeling is voluntary, anyway.
We've seen this kind of thing already with Rice Dream (processed with barley enzymes, but they are not listed in the ingredients, and sensitive celiacs notoriously react to it).
The only trouble I foresee is unfortunately a big one: Quaker probably knows that under the proposed labeling laws, they can label their product "gluten-free" even if it contains up to 20 ppm gluten. But currently, no legal definition seems to exist for "gluten-free." At this point, all "gluten-free" labeling is voluntary, anyway.
We've seen this kind of thing already with Rice Dream (processed with barley enzymes, but they are not listed in the ingredients, and sensitive celiacs notoriously react to it).
#12
taweavmo3
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Posted 02 November 2009 - 03:55 PM
Fiddle-Faddle, on Nov 2 2009, 04:51 PM, said:
Thank you so much for researching and posting this!
The only trouble I foresee is unfortunately a big one: Quaker probably knows that under the proposed labeling laws, they can label their product gluten-free" even if it contains up to 20 ppm gluten. But currently, no legal definition seems to exist for "gluten-free." At this point, all "gluten-free" labeling is voluntary, anyway.
We've seen this kind of thing already with Rice Dream (processed with barley enzymes, but they are not listed in the ingredients, and sensitive celiacs notoriously react to it).
The only trouble I foresee is unfortunately a big one: Quaker probably knows that under the proposed labeling laws, they can label their product gluten-free" even if it contains up to 20 ppm gluten. But currently, no legal definition seems to exist for "gluten-free." At this point, all "gluten-free" labeling is voluntary, anyway.
We've seen this kind of thing already with Rice Dream (processed with barley enzymes, but they are not listed in the ingredients, and sensitive celiacs notoriously react to it).
Yep, this worries me too. I personally think things are going to get worse before they get better for Celiacs....we are seeing more and more mainstream products come out with products that say "gluten free", which have up to (or more I believe) 20ppm of gluten. That leaves us going in circles trying to figure out what is making us sick, b/c we don't think the products labeled "gluten free" could be the source.
It took me 6 months to figure out Chex was making us all sick! I know some can handle it fine, but I'm finding more and more people who are reacting. This frustrates me to no end, when I am trying like mad to keep my daughter well so she can grow and not have so many learning challenges. I don't need trend hopping companies making a dime at my daughter's expense.
So sorry, didn't mean to rant on your post! Thanks for posting about the rice cakes, it is good to know about new products! After Rice Dream, Chex, the Wellshire Farms nuggets, etc...I'm just a wee bit skeptical these days,
Tamara, mom to 4 gluten & casein free kiddos!
Age 11 - Psoriasis
Age 8- dx'd Celiac March 2005
Age 6- gluten-free/cf, allergy related seizures
Age 4 - reflux, resolved with gluten-free/cf
Age 11 - Psoriasis
Age 8- dx'd Celiac March 2005
Age 6- gluten-free/cf, allergy related seizures
Age 4 - reflux, resolved with gluten-free/cf
#13
skinnyminny
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Posted 13 November 2009 - 06:57 PM
I found the gluten free quaker rice cakes at kroger tonight! The big rice cakes say gluten free, the chocolate flavor and apple cinnamon! I hope the small quakes become gluten free as well. I will call tom to make sure they are on seperate lines but I feel like they would be. Because if you call they warn you about cross containimation but ingridents are gluten free. So if they have decided to label them I would think they have gone the extra mile to make them safe.
#14
haleym
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Posted 13 November 2009 - 11:18 PM
WOW amazing research. And Im so happy they will make these gluten free! I got glutenized by these, so I will have to try the new ones. YAY!
YAY!
I
gluten free since 9/09... enjoying excellent digestion ever since! :)
happily practicing massage therapy since 08/08
ive given up on gluten-free baking for the time being... kinnikinnick makes excellent bread-products and I'd honestly rather pay than tear up my kitchen and make failed loaves. I have waaaaay too much cubed bread in my freezer from all of that failed baking!
gluten free since 9/09... enjoying excellent digestion ever since! :)
happily practicing massage therapy since 08/08
ive given up on gluten-free baking for the time being... kinnikinnick makes excellent bread-products and I'd honestly rather pay than tear up my kitchen and make failed loaves. I have waaaaay too much cubed bread in my freezer from all of that failed baking!
#15
skinnyminny
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Posted 16 November 2009 - 10:57 AM
So I called quaker about the gluten free labeling on the rice cakes I purchased the other night. I asked if they were produced on seperate lines or just gluten free ingridents. The kind representative told me that they are produced seperately, she said if there was a chance it was cross containimated the product would say either produced on lines that contain wheat, or may contain wheat. Just thought Id pass this along. The only flavors I have seen marked gluten free are the chocolate and apple cinnamon rice cakes.. the normal size cakes not the small ones. The chocolate ones are pretty good:) She did say they are in the process of reviewing their products, ingridents, and production and are looking for more products to be labeled gluten free!
