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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Hyperhidrosis - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   cmg4835 

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  Posted 04 November 2009 - 07:15 AM

Does anyone have Hyperhidrosis ? Is it related to Celiac ?
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#2 User is offline   Jestgar 

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Posted 04 November 2009 - 07:34 AM

I do. I don't think it's related. Mine seems to be more annoying when it's hot, or I'm stressed. It did get better after I went gluten-free, but that could have been the stress factor.
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#3 User is offline   Kylie 

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Posted 05 November 2009 - 02:39 PM

I have had hyperhidrosis ever since I hit puberty and wasn't diagnosed with Celiac until 3 or 4 years later. Hated it for years and thought nothing would work until the dr prescribed Drysol. Makes a world of difference. Hurts like hell to put on but not sweating through my clothes at any time in the year is a wonderful thing. Give it a try if you haven't, maybe it will work for you.
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#4 User is offline   tlc 

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Posted 28 November 2009 - 07:51 AM

I was diagnosed with Celiacs three months ago and do not have hyperhidrosis.

I wanted to reply though because my 19 year old daughter was diagnosed with Hyperhidrosis at least 10 years ago. We tried many topical and oral medications (Drysol included) and found absolutely no relief. She experienced hands, feet and armpits that were perpetually wet. Her hands and feet would drip moisture nearly constantly. She adapted by avoiding touching, dressing cooly year round (which isn't healthy in the midwest in January!) and she learned that wearing certain colors masked the armpit stains and evidence of moisture. She suffered with the disease and it's effects for many years, years that are challenging enough for young girls. In the spring of 2009 we discovered a potential surgical procedure that "nips" neurons in the ganglion chain, reducing the messages to the sweat glands. After exploration and pre-testing she had the surgery in May of 2009 in Rochester MN. It was quite successful. Her hands showed a 90+% improvement, her feet a 50+% and her armpits a 90+% improvement. She is greatly pleased with the surgery. It was one night in the hospital (24 hours approx. total stay), full anesthesia, three pre-surgery appts and one post. Because of the severity of her disease it was covered by our insurance.

I guess if at any point a tie is discovered with Celiacs and Hyperhidrosis I would be very insterested in the information. Per my doctor's suggestion, at this point we are not having my children tested for Celiacs because they are not symptomatic and for long term insurance purposes I don't want them labeled as "pre-existing".
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#5 User is offline   HyperGirl 

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Posted 04 January 2010 - 06:22 PM

I started getting hyerhidrosis when I was about 14/15. And I started needing to wear anti-perpirants when I was only 9!!

My doctor prescribed Driclor and it helped but its itchy and can sting :( I used it for ages then stopped (for some stupid reason) and I just keep forgetting to use it. Or I'm so wide awake that I can't sleeo and you have to put it on before you sleep, so I can't use it most of the time.

I'm not yet diagnosed with celiac but have some symptoms and I've had other blood tests which were fine, so I'm now in the process of seeing if it is celiac.

I have noticed that over the past few months my sweating/oily skin has been worse. My sweat smells really bad! And it's also been during those months that more celiac symptoms appeared.

So I'm wondering if gluten can make it worse/trigger it...although as I said I've had it for years so it can't be related to celiac/a symptom.

But if I do have celiac and I go gluten-free and find my skin goes back to normal and my sweat isn't as bad...then maybe that would suggest gluten affects sweating and oiliness of skin and hair!
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#6 User is offline   Dixiebell 

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Posted 06 January 2010 - 05:49 PM

View PostHyperGirl, on 04 January 2010 - 06:22 PM, said:

I started getting hyerhidrosis when I was about 14/15. And I started needing to wear anti-perpirants when I was only 9!!

My doctor prescribed Driclor and it helped but its itchy and can sting :( I used it for ages then stopped (for some stupid reason) and I just keep forgetting to use it. Or I'm so wide awake that I can't sleeo and you have to put it on before you sleep, so I can't use it most of the time.

I'm not yet diagnosed with celiac but have some symptoms and I've had other blood tests which were fine, so I'm now in the process of seeing if it is celiac.

I have noticed that over the past few months my sweating/oily skin has been worse. My sweat smells really bad! And it's also been during those months that more celiac symptoms appeared.

So I'm wondering if gluten can make it worse/trigger it...although as I said I've had it for years so it can't be related to celiac/a symptom.

But if I do have celiac and I go gluten-free and find my skin goes back to normal and my sweat isn't as bad...then maybe that would suggest gluten affects sweating and oiliness of skin and hair!

Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.
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#7 User is offline   Dixiebell 

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Posted 06 January 2010 - 05:54 PM

I have had hyperhidrosis since I was 14. I am now 38. Certain Dri is the only thing that works for me. It is OTC.

View PostHyperGirl, on 04 January 2010 - 06:22 PM, said:

I started getting hyerhidrosis when I was about 14/15. And I started needing to wear anti-perpirants when I was only 9!!

My doctor prescribed Driclor and it helped but its itchy and can sting :( I used it for ages then stopped (for some stupid reason) and I just keep forgetting to use it. Or I'm so wide awake that I can't sleeo and you have to put it on before you sleep, so I can't use it most of the time.

I'm not yet diagnosed with celiac but have some symptoms and I've had other blood tests which were fine, so I'm now in the process of seeing if it is celiac.

I have noticed that over the past few months my sweating/oily skin has been worse. My sweat smells really bad! And it's also been during those months that more celiac symptoms appeared.

So I'm wondering if gluten can make it worse/trigger it...although as I said I've had it for years so it can't be related to celiac/a symptom.

But if I do have celiac and I go gluten-free and find my skin goes back to normal and my sweat isn't as bad...then maybe that would suggest gluten affects sweating and oiliness of skin and hair!

Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.
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#8 User is offline   misslexi 

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Posted 08 January 2010 - 09:47 PM

yes I do, and I don't know.

I've been gluten free for almost 2 months I think and have not seen any change.

I don't think its stress related, or temperature related. Because I changed into pjs (tank top+pants) and was watching a movie with my mom and within an hour I was soaked earlier this evening. Its really gross, and upsetting (especially at school) regular deodorant doesn't make a difference (except getting all over my clothes, little black dress approved my ass) but the extra strength ones do seem to help a bit when i remember to put it on.

I saw something on Dr. Oz about these injections into the sweat glands of a girl's armpits, I'm 99% sure it was botox...I think they said it lasts a few months, and the girl didn't feel any pain during the needles. Might be worth looking in to, I don't know.
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#9 User is offline   CMCM 

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Posted 11 January 2010 - 09:34 PM

View Posttlc, on 28 November 2009 - 07:51 AM, said:

I was diagnosed with Celiacs three months ago and do not have hyperhidrosis.

I wanted to reply though because my 19 year old daughter was diagnosed with Hyperhidrosis at least 10 years ago. We tried many topical and oral medications (Drysol included) and found absolutely no relief. She experienced hands, feet and armpits that were perpetually wet. Her hands and feet would drip moisture nearly constantly. She adapted by avoiding touching, dressing cooly year round (which isn't healthy in the midwest in January!) and she learned that wearing certain colors masked the armpit stains and evidence of moisture. She suffered with the disease and it's effects for many years, years that are challenging enough for young girls. In the spring of 2009 we discovered a potential surgical procedure that "nips" neurons in the ganglion chain, reducing the messages to the sweat glands. After exploration and pre-testing she had the surgery in May of 2009 in Rochester MN. It was quite successful. Her hands showed a 90+% improvement, her feet a 50+% and her armpits a 90+% improvement. She is greatly pleased with the surgery. It was one night in the hospital (24 hours approx. total stay), full anesthesia, three pre-surgery appts and one post. Because of the severity of her disease it was covered by our insurance.

I guess if at any point a tie is discovered with Celiacs and Hyperhidrosis I would be very insterested in the information. Per my doctor's suggestion, at this point we are not having my children tested for Celiacs because they are not symptomatic and for long term insurance purposes I don't want them labeled as "pre-existing".


My 23 year old son also has hyperhidrosis, and he also had the surgery mentioned above, back in 2005. The worst for him was his hands, and that was 100% improved by the surgery. His feet still sweat, and he gets mid body "compensatory" sweating, especially in hot weather, but the surgery was all worth it to him to get rid of the hand problem. He has the celiac gene and I believe he is affected by gluten....he is currently being carefully gluten free and he feels much better in all respects. However, I don't think there is any connection....my understanding of hyperhidrosis was that it was due to a problem with overactivity in the sympathetic nerve which controls sweating within the body.

I'd also like to add that we tried virtually every possible treatment out there and nothing helped much, which is why we finally resorted to the surgery, which was done on an outpatient basis, by the way. My son is glad he had the surgery, very glad.
CAROLE

-------------
Enterolab 1/2006
IgA & tTg Positive
DQ2-0201 (celiac) and DQ1-0604 (gluten)
Casein IgA positive
Mom has 2 celiac genes
Both kids have a celiac gene.
Lots of celiac disease in my family, both sides.
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