Is This Something To Be Concerned About? strange symptom
#1
Posted 09 November 2009 - 09:38 AM
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#2
Posted 09 November 2009 - 09:42 AM
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#3
Posted 09 November 2009 - 10:20 AM
mcphena, on Nov 9 2009, 11:38 AM, said:
I'm going through this right now!
I was out for the count with a migraine yesterday, and I am experiencing much of what you described, but mine is mostly on the left side of my Head (it always is...).
I'm beginning to think I got glutened, but I can't be sure. Either that or I'm getting sick! Hopefully someone might know what causes this.
I am not anemic either, according to my last blood draw... They checked all of that, and my thyroid, etc... everything came back normal. Only thing out of the ordinary I've eaten was 2 tiny tootsie rolls Saturday night.
Allergic to gluten - or possibly Celiac, testing very soon, and many seasonal environmental allergies. Mom of 2. #1 is anaphylactic to dairy, and allergic to soy and gluten. Dx'd with Autism 1/09, and responding very well to the gluten-free diet. #2 has outgrown all food allergies, but developed seasonal allergies that vary with the season.
#4
Posted 09 November 2009 - 10:22 AM
amberlynn, on Nov 9 2009, 01:20 PM, said:
No worries about the Tootsie Rolls--they are gluten-free and the last I checked they don't use gluten in the facility at all.
Hope you feel better soon
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#5
Posted 09 November 2009 - 10:38 AM
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#6
Posted 09 November 2009 - 11:34 AM
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
#7
Posted 09 November 2009 - 12:02 PM
mcphena, on Nov 9 2009, 01:38 PM, said:
If it's the anemia, it took a little while for it to abate for me. I felt better gradually over a few months. Have you been supplementing for long? It also takes the intestine some time to heal and begin absorbing well again.
If it's happening when you haven't eaten, maybe try not going more than 3 hours or so without eating something that includes some protein.
Jestgar, on Nov 9 2009, 02:34 PM, said:
Good ideas....low blood pressure can also cause you to feel dizzy especially when standing up from sitting or laying down.
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#8
Posted 09 November 2009 - 12:58 PM
Second thing that comes to mind is low blood pressure - of course, this just means low for you, not necessarily "text book" low.
Third, though unlikely, is mini-strokes. Don't freak out; I'm no doctor, and it almost certainly isn't this, but the reason I thought of it were the following symptoms:
1) sudden vision changes including blurred vision
2) headache
3) weakness in your leg
4) forgetfulness/cognitive difficulties
5) dizziness
Given that these things go together, I would call the doctor's office, tell them your symptoms, and schedule an appointment as soon as you can get in. If you don't have a doctor, find one you can go to - recommendations from friends if possible. I'd certainly start with a GP, and certainly wouldn't panic, but I would investigate what's going on.
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
#9
Posted 09 November 2009 - 12:58 PM
#10
Posted 09 November 2009 - 01:14 PM
Mostly when I first get up in the morning....
Bloodwork Negative
Went gluten free 10/02/09
Immediate and Positive intestinal improvement with improvement in headache frequency
Enterolab results 11/23/09 (after one month gluten free)
Fecal Anti-tissue Transglutaminase IgA 10 units
Fecal Anti-gliadin IgA 9 units
Fecal Fat 1267 units
HLA-DQB1 Allele 1: 0201
HLA-DQB1 Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
#11
Posted 09 November 2009 - 01:57 PM
No I haven't been taking the iron for long, just a couple weeks.
I am probably always dehydrated because I am never thirsty and drink maybe 2 cups of liquid a day. I try to drink more but I just can't.
I dont think it's migraines because I dont always have a headache when this happens, and I used to have migraines and they were nothing like this.
Yes I do feel faint when I stand up from a sitting position, but I thought that was normal.
I do have a feeling it has someting to do with not eating or missing something but I will try to see if it ever happens when I have eaten. I know I am not eating enough but I am still gaining weight so that has me upset. I haven't been very hungry and it's been difficult for me to figure out what to eat, not because there aren't plenty of choices out there, but because I just don't seem to have the mental energy required to think about what I can eat, while trying to homeschool 3 boys, and deal with my seizure disorder, and a house on the market, and only having one vehicle for the past 3 months because some idiot screwed up our transmission and won't cover his own warranty. PHEW boy did I just run on and on! LOL. I guess I just wanted to emphasize that I am NOT feeling sorry for myself for having celiac disease, it just does require a lot of mental energy in the beginning and I dont have any to spare!!! Therefore, I am not eating enough.
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#12
Posted 09 November 2009 - 02:05 PM
with the additional information in this most recent post... blood sugar and/or blood pressure issues seem pretty likely. maybe you can make a lesson plan with the kids that includes cooking/shopping? there's some creative problem solving involved in the diet, and maybe that can both help and learn from it? (especially in the aspect of teaching nutrition, when trying to come up with *balanced*, and not carb-laden meals.)
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

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