Daughter had a igg neg and iga positive (strong).
Her doctor wanted further specific celiac blood tests which all came back neg.
What's that mean?
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Celiac Pros, Can You Weigh On This?
#2
Posted 10 November 2009 - 08:33 PM
imracin68j, on Nov 10 2009, 09:25 AM, said:
Daughter had a igg neg and iga positive (strong).
Her doctor wanted further specific celiac blood tests which all came back neg.
What's that mean?
Her doctor wanted further specific celiac blood tests which all came back neg.
What's that mean?
Blood tests are notoriously unreliable. My son and I both tested IGA positive, with negative IGG and TTG, yet we both have Celiac. IGA positive is a "less reliable" indictor for Celiac, because many kinds of inflammation can cause elevated IGA. Does your daughter have symptoms?
Gluten free is not so bad! If you are new, hang it there, it gets easier!
#3
Posted 11 November 2009 - 02:12 AM
It means you should try the diet after all testing is finished. If she is having a biopsy wait until the day that is done and start the diet the minute the test is completed. You don't need to wait on the results and may have your answer by her response to the diet before you even go to the return visit to get them.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#4
Posted 11 November 2009 - 09:37 PM
Symptoms of my daughter:
when we first got her onto food it was diarhea overload
SHe was/is very skinny. She use to have a pot belly
She looks anemic sometimes
She wakes up in the morning with stomach aches that seem to subside with breakfast
She has had bad allergies that seem to linger
My mom's symptoms - undiagnosed
Just passed away of intestinal cancer at 55
horrible migranes and long sleep patterns
histerectomy at 40
cold sores
bad dental issues (lots of brushing)
lots of tiredness
My symptoms (celiac panel came back normal)
looked like a 6th grader in 10th grade
skinny with belly most of life
Stomach issues
high blood pressure / heart palpulations
crazy headaches
crazy food poisoning or I thought
bad collar bone pain
crazy gerd
when we first got her onto food it was diarhea overload
SHe was/is very skinny. She use to have a pot belly
She looks anemic sometimes
She wakes up in the morning with stomach aches that seem to subside with breakfast
She has had bad allergies that seem to linger
My mom's symptoms - undiagnosed
Just passed away of intestinal cancer at 55
horrible migranes and long sleep patterns
histerectomy at 40
cold sores
bad dental issues (lots of brushing)
lots of tiredness
My symptoms (celiac panel came back normal)
looked like a 6th grader in 10th grade
skinny with belly most of life
Stomach issues
high blood pressure / heart palpulations
crazy headaches
crazy food poisoning or I thought
bad collar bone pain
crazy gerd
#5
Posted 12 November 2009 - 03:53 AM
imracin68j, on Nov 11 2009, 10:37 PM, said:
Symptoms of my daughter:
when we first got her onto food it was diarhea overload
SHe was/is very skinny. She use to have a pot belly
She looks anemic sometimes
She wakes up in the morning with stomach aches that seem to subside with breakfast
She has had bad allergies that seem to linger
My mom's symptoms - undiagnosed
Just passed away of intestinal cancer at 55
horrible migranes and long sleep patterns
histerectomy at 40
cold sores
bad dental issues (lots of brushing)
lots of tiredness
My symptoms (celiac panel came back normal)
looked like a 6th grader in 10th grade
skinny with belly most of life
Stomach issues
high blood pressure / heart palpulations
crazy headaches
crazy food poisoning or I thought
bad collar bone pain
crazy gerd
when we first got her onto food it was diarhea overload
SHe was/is very skinny. She use to have a pot belly
She looks anemic sometimes
She wakes up in the morning with stomach aches that seem to subside with breakfast
She has had bad allergies that seem to linger
My mom's symptoms - undiagnosed
Just passed away of intestinal cancer at 55
horrible migranes and long sleep patterns
histerectomy at 40
cold sores
bad dental issues (lots of brushing)
lots of tiredness
My symptoms (celiac panel came back normal)
looked like a 6th grader in 10th grade
skinny with belly most of life
Stomach issues
high blood pressure / heart palpulations
crazy headaches
crazy food poisoning or I thought
bad collar bone pain
crazy gerd
I hope you are getting on the diet as well despite those negative blood tests. It sure does look like you are both in the right place. I am sorry about the early loss of your Mom. Since I was finally diagnosed I often think of mine and wonder if she might still be with me if they had figured out how strongly celiac runs in our family. I think a couple of months into the diet both you and your daugther will feel like new people.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#6
Posted 12 November 2009 - 06:50 PM
We are gluten free from here on out. One thing I've really gotten into as well is PH. I had no idea that a lower PH in the body actually mimics IBS symptoms and can lead to all diseases and cancer. I went to Lowes and picked up a pool test kit. My PH was in the gutter. Even though I was glutten free , I was still eating 100% acid. I'm changing that as well. I think some people who test neg but feel better after losing gluten is because gluten is PEGGED on the acid chart which lowers the PH and makes people sick. The reason everyone feels tired after a thanksgiving meal isn't the turkey, it's the fact that every item on the table is an acid, including the canned veggies.
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