[GlutenGuy36]

Ok I have been on the Gluten Free diet since I was diagnosed July 14th of 2008. I am still sick not feeling right at all. Most of the abdominal issues have resloved except for painful belching after I eat. My main issue is I am in alot of random pain. I have removed nightshades, casein from my diet and I am now working on Soy.
I went out to rake the leaves today and when I was done my heart was racing I felt like I was going to collapse. I have been taking vitamins b-12,zinc, magnesium, calcium and d3.
I have looked into Candida Albicans and am trying to cut back on the sugar intake and I am drinking coconut Kefir. Its fermented coconut milk with 10 strains of probiotic. I honestly feel like I'm getting worse. I have no clue what is going on. My doctor says I shouldn't be feeling like this.
My glands hurt from time to time the ones in my neck and under my arms. I told my doctor all of this and he ran a cbc panel, thyroid was 4.59 ( considered normal), liver and kidney panel which was also fine.
I don't know what else to do. I have been super careful about gluten and cross contamination. I'm tired of being in pain everyday.

[Ahorsesoul]

Try keeping a detailed food and feelings journal for a few weeks. I think you'll figure out what is bothering you. List all things you use that touch your body and that you eat. You may be one of those people (like me) that has to worry about even the little things in life (like shampoo, soaps and gum).

[sadeew]

I suspect you have 3 or 4 unrelated things causing the various problems you are having. You will find answers, just keep at it!
And you may want to go to a Naturopath if things don't change soon.

When I read your post a couple of things stood out:

The painful belching after you eat. You may not be producing enough hydrochloric acid (quite common, especially after the age of 30) and you may also need some digestive enzymes. If you aren't producing enough hydrochloric acid you will still have malabsorption issues. Get some HCL tablets. The way you take these is:

Take 1 with a meal (avoid taking with citrus fruit and something else I can't remeber but hyou can find if you google HCL). Do this for 2 days with each meal. If you do not get any burning...

Take 2 pills per meal.

Continue adding an extra pill every 2 or 3 days until you get a heart-burn feeling or unitl you reach 4 tablets. DO NOT take more than 4 tablets per meal.

This should alleviate the belching and improve absorption.

The other thing that stood out was the raking leaves part. Do you know what your ferretin levels are? You did not mention that you are taking iron but iron is one of the first nutrients to not be absorbed with Celiac. Your ferretin (blood iron stores) needs to be between 45 and 100. If you are lower than 45 it is very likely that you will get easily winded. My ferretin used to be at 10 but I was told I wasn't anemic. I would feel like I was going to fall over just after climbing the stairs! I suspect you are ferretin deficient. It's a simple blood test but you have to request to know your ferretin levels - GET THE NUMBER, don't just let your doc say that you are within normal ranges. Normal ranges are 10-150. I have never heard of anyone feeling good with ferretin under 40. Most men don't get ferretin checked because it is rare for a man to be anemic. But not with Celiacs!

Lastly I would say to get a food allergen blood test. Guessing which foods to eliminate on your own can take a really long time and it sounds like you are too miserable right now to be guessing. I have a friend who found out she is highly allergic to asparagus! I NEVER would have thought to eliminate asparagus. She was eating it a couple times a week and feeling horrible, not knowing it was a problem.

The fact that your glands hurt makes me think you may be dealing with an allergy still.

Recap:
take hydrochloric acid for the belching
get ferretin levels checked
get a food allergy test

My low iron (ferretin) made me in pain all the time. My muscles ached, I was tense, I was fatigued, depressed, anxious, and I got winded and wiped-out from the littlest physical exertion.

Hope something in here helps you.

All the best. Sending good luck vibes and prayers your way.

[Korwyn]

GlutenGuy36, on Nov 10 2009, 09:38 AM, said:

Ok I have been on the Gluten Free diet since I was diagnosed July 14th of 2008. I am still sick not feeling right at all. Most of the abdominal issues have resloved except for painful belching after I eat. My main issue is I am in alot of random pain. I have removed nightshades, casein from my diet and I am now working on Soy.
I went out to rake the leaves today and when I was done my heart was racing I felt like I was going to collapse. I have been taking vitamins b-12,zinc, magnesium, calcium and d3.
I have looked into Candida Albicans and am trying to cut back on the sugar intake and I am drinking coconut Kefir. Its fermented coconut milk with 10 strains of probiotic. I honestly feel like I'm getting worse. I have no clue what is going on. My doctor says I shouldn't be feeling like this.
My glands hurt from time to time the ones in my neck and under my arms. I told my doctor all of this and he ran a cbc panel, thyroid was 4.59 ( considered normal), liver and kidney panel which was also fine.
I don't know what else to do. I have been super careful about gluten and cross contamination. I'm tired of being in pain everyday.

Soy caused(causes) a number of neurological (CNS) and muscular issues for me. Also, I have a very hard time tolerating any refined sugars (sucrose, refined fructose or corn syrup in any form). Raw honey, pure maple syrup, raw agave seem to be ok, but anything else sugar wise causes problems.

Any large quantity of carbs also will cause problems.

Look for soy, lactose, milk products, starches in all your supplements and medications. One example I just found is the Kirkland brand (Costco) of generic Claritin contains lactose, and a starch binder that is normally made from wheat or corn. Yippe.

I strongly suggest you see a naturopath and get ALL of your nutritent levels checks. Iron, B's, C, D, A, E, K, magnesium, copper, molybdenum, etc. It sounds like you are suffering from a number of nutrients malabsorption issues.