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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Swine Flu Vaccinations - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Swine Flu Vaccinations what is everyone experiencing? what are folks concerns Rate Topic: -----

#1 User is offline   momxyz 

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Posted 10 November 2009 - 04:10 PM

Hi all, I work in a clinical diagnostic laboratory and we are performing a huge volume of influenza testing. Our test volume has increased every week and we are significant number of positive specimens. All of them to date, are swine flu - no one has tested positive for the "seasonal" flu, although I am seeing reports of a few cases of seasonal flu in a couple of states (not ours).

My daughter (17) did not want to get the vaccination. She is a dancer, and she had stumbled across an internet report of a young woman who suffered from ataxia, 10 days after getting the swine flu inoculation. That scared the dickens out of her.

But this flu, at least in our state, does seem to be predominantly affecting the under 24 age bracket, and from what I've observed, the positives are largely from middle school and high school age. And we are seeing hospitalizations in these age groups...

I am not a big fan of drug treatment, and usually try to avoid them for myself and my family - if I can find a way to address the situation without them. Sometimes you just can't, and I feel the benefits of this vaccination outweigh the risks, at least for my daughters age group.

But, I let her make her own decision. Her high school has been holding clinics this week, offering both the Swine (H1N1) vaccination along with the seasonal flu (separate vaccination). I told her that based on the strains that are being identified, she should at least consider getting the swine flu vaccine.

Well yesterday, she did get the Swine vaccine - what was being administered was the nasal prep (live attenuated virus) not the injection. She got that first, then was offered an injection for the seasonal flu. She declined that. (I was fine with that)

They kept the students for 20 minutes afterwards, to observe for adverse reactions. She didn't confess any to the shool nurse, but leaves the building, and driving on the way home, calls me from her cell phone to say she had felt a little dizzy afterwards. Fortunately we live less than 10 minutes away from the school... but she generally felt crappy. In the evening she complained of a scratchy throat, and today some feelings like she was going to have diarhea, even though she hadn't eaten anything out of her norm. All of what she experienced is within the realm of the "normal" side effects of this vaccination. Despite this, she had a good day today and is dancing as I type.

I am glad she got the swine vaccination. I hope your kids have had the opportunity, tho I know the whole issue of vaccination is sensitve/scary because of potential adverse reactions. What is everyone else thinking, deciding on this issue for their kids?
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#2 User is offline   tarnalberry 

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Posted 10 November 2009 - 04:47 PM

I am asthmatic and pregnant, so I got both vaccines. I did not have the flu mist, since I don't qualify for the live virus. I had no adverse reactions - not even much in the way of a sore arm.
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
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#3 User is offline   Jestgar 

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Posted 10 November 2009 - 04:49 PM

Just to clarify, this is the H1N1 virus. It is not called the swine flu (anymore). That was a mis-classification in the early identification stages.
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#4 User is offline   soulcurrent 

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Posted 10 November 2009 - 06:13 PM

My dad (a physician's assistant) sent out a very strong-worded email to my brother and I and some other younger folks he knows insisting that we all get it. I thought about it and decided against it. I know 6 or 7 people who have been diagnosed with the H1N1 so far and all of them have described it as "Flu Lite" because it's easier than the regular seasonal flu.
Haikus are easy
But sometimes they don't make sense
Refrigerator.
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Diagnosed 9/28/09; Gluten free diet started 10/4/09.
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#5 User is offline   nmlove 

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Posted 10 November 2009 - 06:43 PM

My household didn't get it - my husband, me, 4 and 2 year old, 4 month old. There was no sense because the flu hit us before the vaccine was even available. I think we all experienced something but my 2 year old was the classic flu case - fever, fatigue, not eating, vomiting. He got over the cough last week and is now on to another virus. What a fall season!
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#6 User is offline   amberlynn 

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Posted 11 November 2009 - 06:08 AM

My family is not getting the vaccine (personal reasons), and when my oldest came home from school on Monday he had a fever of 102.1. He just didn't seem himself. A friend recommended I get some elderberry extract since it helps fight viruses. Sure enough, today he's fine. Yesterday he was lethargic, and crabby, and had a mild fever even with Motrin. He might have been fine either way, but it seemed to me like he might be coming down with the flu...

My best friend's family just had the H1N1 flu, and they're all doing fine. She said it really wasn't that bad - and her 8 year old had landed in the hospital with pneumonia 2 years ago from the seasonal flu. They hadn't even had a chance to get the vaccine yet.
Amber
Allergic to gluten - or possibly Celiac, testing very soon, and many seasonal environmental allergies. Mom of 2. #1 is anaphylactic to dairy, and allergic to soy and gluten. Dx'd with Autism 1/09, and responding very well to the gluten-free diet. #2 has outgrown all food allergies, but developed seasonal allergies that vary with the season.
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#7 User is offline   ryebaby0 

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Posted 12 November 2009 - 04:28 PM

We live in a University town, and 1,500+ students have been stricken with "flu-like" illness since Sept. (They don't test for H1N1 and assume that's what it is, since it's too early for seasonal flu). The school I work in had an absentee rate of about 20%, and every single teacher and most aides have had it. The severity has ranged from very mild to quite severe. My district is quite aggressive with prevention and there have only been a few hospitalizations, no deaths. Since vaccinations have increased, the spread has slowed. (and having so many kids sick-and-recovered makes them immune, too)

Something to remember is that H1N1 doesn't have to be life-threatening to be serious. Students, staff, and their families, are missing about 4-6 days plus a few more of "I feel better but not great" days. It is extremely disruptive.

My college-age son got the attentuated (flumist) vaccine with no side effects. My younger son is immune-impaired and we will get him the shot as soon as there are some here. (What was available has gone to babies and asthmatic children) His doctors have no hesitation or question, and they are at one of the nation's most respected pediatric research hospitals.
Mom/wife to celiacs dx 12/03 and 12/04


Success is never final and failure never fatal. It's courage that counts -George Tilton
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#8 User is offline   Raven's Mum 

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Posted 13 November 2009 - 01:26 PM

We are a vaccine free household, although the kids have been told if at anytime, they feel strongly about getting them, they can. We homeschool though so we have much more of a ''controlled environment'' than most people.
Mum to six year old Raven with Celiac and Cystic Fibrosis.
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#9 User is offline   GottaSki 

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Posted 13 November 2009 - 01:51 PM

Our family would like to get the vaccine, unfortunately there has not been availability here in San Diego.

My boys pediatrician had the H1N1 nasal mist in mid October, but unfortunately both boys had a flu bug with nasal issues so we missed that window.

We aren't sure but suspect the boys (14&16) and my husband have already had H1N1 - it was reported during early/mid October that the only flu strain circulating while they were sick was H1N1, no seasonal strains. Their high school had many cases of suspected H1N1.

Docs didn't test for H1N1 unless admitted for complications.

Their symptoms were quick onset sore throat/lethargy, followed by runny nose & high fever for a day or two. The sore throat never got bad enough to not eat - stayed generally sore for a week. Cough started about day 3 or 4 and hung around for a couple weeks in the lungs.

Can't believe it didn't get me...must be all the vitamins I'm on now :)
-Lisa

3/26/09 gluten-free - celiac confirmed from tTG IgA 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improved health for a few months -- then substantial deterioration (maybe one good hour per day for ~17 months)
8/10/11 - Started Elimination Diet for Autoimmune Disease
1/1/12 - Tomato, Pepper, Corn, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Seed, Shellfish and Gluten FREE
* Healthier than ever in my life. Didn't know how sick I really was until I removed all possible food intolerance *

"This is your life, are you who you want to be?" ~switchfoot
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#10 User is offline   OBXMom 

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Posted 13 November 2009 - 02:11 PM

It's a hard one, isn't it? Both my kids had the regular flumist, but neither has had the H1N1, because our schools said they were going to administer it (but haven't yet.) On the one hand, my son didn't feel well for a week after the flumist. His doctor says that wasn't the problem, but it sure looked suspicious to me. On the other hand, my 14 year old daughter recently had a virus, probably H1N1 but unverified, and it was scary. Like a lot of the other people who said their children didn't seem that sick, she didn't seem that sick, either, she just couldn't breathe. Her fingernails turned blue. We went to the doctor 3 times in a week and pumped so much medicine in her it was awful. And now 3 weeks later, her lung capacity still isn't what it should be, so she will need to be on some powerful asthma maintenance medicines for 6 months. I don't feel the H1N1 vaccine has been tested enough, but the virus can be very serious.
Jane

Son (10) diagnosed 10/07 via bloodwork and biopsy
Elimination diet resulted in avoiding dairy, soy & corn for a time
Feeling much better

Enterolab results indicate gluten sensitivity for daughter (14) and myself
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#11 User is offline   momxyz 

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Posted 13 November 2009 - 04:05 PM

"I don't feel the H1N1 vaccine has been tested enough, but the virus can be very serious."

Although the H1N1 novel virus has not been around for very long, the seasonal viruses have. The H1N1 vaccine has been prepared using the same materials and same methods as the seasonal vaccines - both the "mist" forms and the injectable form. Although the "swine flu" is a novel strain, its still an influenza virus. So we can expect the side affect profiles of these vaccines to be more alike than different.

Concern for side effects is very real, and I am not vaccine-happy myself. Case in point: I have not taken my teenage daughter in for the HPV vaccine. There have been some troubling adverse reactions reported and the incidence of these seems to be higher than "background". My jury is still out on that one.

We didn't know what form of the flu vaccines were going to be available in the highschool, And I was very happy she ended up getting the mist form for the H1N1. This does not contain any thimerasol, as does some of the injectable forms of the vaccine. Thimerasol is used as a preservative in many different vaccines and there have been concerns about association of this chemical with some significant although rare adverse affect.
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#12 User is offline   babygirl1234 

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Posted 14 November 2009 - 09:22 AM

ive had the h1n1 viurs and its horrble so if you can get the shot get it because the flu is bad
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#13 User is offline   AKcollegestudent 

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Posted 18 November 2009 - 11:51 AM

I got to deal with H1N1 last week--it quite literally ate a week of my life and energy (which I never have in excess to begin with). I'm told by friends and others who had it that while we all felt like kicked dogmeat, I had energy issues for longer than they did. I wasn't planning on getting the H1N1 vaccine, however, partially because I react badly to the regular flu vaccine. In addition, our college only received 100 H1N1 vaccines--for a school of 2000+. Those who have asthma and were immuno-compromised got the vaccine on a first come, first serve basis. (I qualified for the vaccine, had I not gotten the virus.)

I've always had problems with vaccines because I react to them. I have friends and family members who vaccinate and others who don't--and I still don't think any of us actually know what the correct thought process is.
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#14 User is offline   buffettbride 

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Posted 19 November 2009 - 02:40 PM

Both my kiddos scored the H1N1 virus before the vaccine was available. It definitely was "flu lite" and we decided to pass on the vaccine.
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#15 User is offline   sunnybabi1986 

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Posted 22 November 2009 - 09:52 AM

Although there are thousands of stories of people getting the H1N1 and describing it as milder than the seasonal flu, every person handles it differently, and I know of one young person who was in perfect health and just recently died from the H1N1 a couple weeks ago. Granted, most of the cases are milder than the seasonal flu, but I wasn't willing to take that chance.

My family (self, husband, 2 year old son) all got the H1N1 vaccine 3 weeks ago and had zero side effects. I feel much better having had the vaccine because my immune system is currently very weak and even a cold makes me so sick I can't get out of bed for a week. I wasn't going to chance it with the flu.

It basically boils down to a personal choice, but we had the vaccine and had no side effects, so good news here!
Gluten Free since October 2009

If evolution really works, how come mothers only have two hands?" - Milton Berle

"Life is 10 percent what happens to me and 90 percent how I react to it."--Lou Holtz
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