Help
I have just been told by my Dr that there is a good chance that I have Celiac. Can anyone tell me if my results could be false positives and just what they mean?
Endomysial Iga = Positive (normal is negative) Could this be a false positive?
Endomysial Iga Titer = 1:160 (normal is <1:10)
Tissue Transglutaminase Ab, Iga, S= >100 H (normal is <4.0)
Can these results be an indication of anything else besides Celiac? Can the results be wrong? I am just confused and I don't understant why this would become an issue now that I am in my late 30's.
Please help me understand all of this. Are there other tests that I should have done?
Page 1 of 1
So Confused By Results! Please Help!
Rate Topic:
#2
ravenwoodglass 
- Advanced Community Member
-
- Group: Advanced Members
- Posts: 12,491
- Joined: 17-April 04
Posted 11 November 2009 - 07:23 AM
Welcome to the board and the gluten free lifestyle. With those results chances that you are not celiac are slim. IMHO. Your doctor may want you to have an endoscopy and if so don't go gluten free until after that test is done. With results that high your doctor may not feel the need for an endo, some do some don't.
Usually celiac has a trigger. That is a stressor either physical or mental such as an illness, emotional stress etc.
It may seem hard at first and there is a lot to learn. Be sure to read lots of posts here and ask any questions you need to.
Usually celiac has a trigger. That is a stressor either physical or mental such as an illness, emotional stress etc.
It may seem hard at first and there is a lot to learn. Be sure to read lots of posts here and ask any questions you need to.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
tarnalberry
- Advanced Community Member
-
- Group: Advanced Members
- Posts: 9,100
- Joined: 30-December 03
Posted 11 November 2009 - 08:27 AM
Yep, those are fairly convincing test results that you do indeed have celiac.
Celiac is NOT a "born with it or never get it" issue. You are born with the genes that *could* cause celiac, but they often need a trigger in order to be expressed. (Not all functional genes in the body are always expressed. What is expressed varies from part of the body to part of the body and varies based on environmental exposure.) So, some variety of stress to the body - be it physical trauma, chemical stressors, or pyshcological stressors (which, to the body, is essentially chemical stress) - can activate the gene. Boom, you go from having celiac to not having celiac.
Celiac is NOT a "born with it or never get it" issue. You are born with the genes that *could* cause celiac, but they often need a trigger in order to be expressed. (Not all functional genes in the body are always expressed. What is expressed varies from part of the body to part of the body and varies based on environmental exposure.) So, some variety of stress to the body - be it physical trauma, chemical stressors, or pyshcological stressors (which, to the body, is essentially chemical stress) - can activate the gene. Boom, you go from having celiac to not having celiac.
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
Share this topic:
Page 1 of 1
