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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Endo Question - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   FixedGear 

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Posted 11 November 2009 - 05:54 PM

Hi new to this forum great info.

I was wondering what I should do. I had blood work done and like most people it came back with no conclusive results. So the Endoscope was ordered and its not for 2 weeks. I started eating gluten free two days ago and feel a ton better I have been suffering symtoms with no relief for years. Question is should i even do the Endoscope? I don't want to go back eating gluten if its going to make me feel like i did. If i go gluten free until the test will the test even be accurate?
Thanks.
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#2 User is offline   Lisa 

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Posted 11 November 2009 - 06:28 PM

Hello and welcome!

It is recommended that you continue with a gluten diet until all tests are exhausted. To continue on with the endo, is up to you.

Many people here are self diagnosed and they feel quite comfortable with that choice. A positive dietary response can also be diagnostic of a gluten intolerance or Celiac Disease.
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Celiac.com - Celiac Disease Board Moderator
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#3 User is offline   mcphena 

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Posted 11 November 2009 - 06:29 PM

if I were you, I would keep eating gluten, get the endo, and then go gluten free after. The reason I say this is, even though we feel better not eating gluten, the gluten free diet is VERY HARD at times, and without a solid diagnosis, it would be so much easier to cheat, and if you do have celiac disease, you can NEVER cheat, so, for me personally, it helps immensely to have a diagnoses and know without a doubt that I CAN NOT HAVE gluten. You could just use these 2 weeks to eat the foods that you will never eat again, even though you might feel crappy, they still taste good and you will have a chance to say goodbye to them ;) This is just my opinion of course so feel free to disregard it. I am just very glad I got the endo, and got a solid diagnoses, you'd be surprised how many times you will be asked if you have an official diagnosis and it's nice to be able to say "YES, I DO, so, don't give me any crap!" LOL :) And honestly the endo wasn't a big deal at all. In fact, it's nice to go to sleep for a little while and relax!
38 year old homeschooling mom of 3, currently pregnant with #4!
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage

diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
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#4 User is offline   FixedGear 

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Posted 12 November 2009 - 01:49 PM

Thanks for your imformation
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