Help
Hi I am new to this ans hoping I can get a response with helping me with my condition. The past year I have been having signs of sleeplessness, energy level up and down, have had to stay with a job only up to a couple of months and would have to move on because I would always feel drained or burnt out and as a result it would become noticeable and I would have to move on to the next job so I would have a cheque coming in. This is how bad the sympthoms were and I took off 4 months because I couldn't get motivated along with issues going to the washroom and severe problems with concentration and a rash that would come occasioanal and my vision is blurring more along with my nose running at least 2-3 times day and going to the washroom is getting very worse. Here, probably like where you are, I am having problems getting a doctor plus when I get to see a doctor at the clinic they will say I have no need to send you to a specialist because the doctor feels that it is a waste of their time to see me. I explain that this what I am going through isn't fun and effecting me on so many levels and I am lost. Myself I have tried for a week now to try and do my best following product that are gluten free even lactose free and it feels like nothing is changing at all. I seen the sheet on this site for flour alternatives and substitutions for other products and slowly trying the change over but without help from a doctor or specialists I dont know where to turn or if there is medicine I should be taking or anything else related. I am going by what this site says which to a degree is very helpful, medically my symphtoms are worsening somewhat on the diet so I don't know what to do! Rob88
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Rob 88
sympthoms
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ravenwoodglass 
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Posted 13 November 2009 - 05:58 AM
Have you asked your doctors directly to do celiac screening on you? Blood test and possibly even biopsy would be your first steps to a doctor's diagnosis. Also ask them to check if you are anemic and your levels for Vit D.
You say you are trying out the diet, this is good but if you want a doctor's diagnosis you do need to be eating gluten.
In the beginning the best way to do the diet is to go with whole unprocessed foods. Also depending on where you live some countries consider Codex wheat starch to be gluten free, many of us still have issues with it so make sure any gluten-free replacement items you are using don't contain this. Also in the beginning you should also drop dairy. We usually can't digest it with the damage to our guts and after you heal a bit you can add it back in and see if you tolerate.
Read as much as you can here and ask any questions you need to. I hope you are feeling better soon. Celiac can cause brain issues which can contribute to depression, which it sounds like may be effecting you. You may also want to take some vitamins, B12 will help with energy and nerve conduction which may help the depression. Magnesium and calcium often are low also.
In addition the antibodies action in the brain can make us addicted to gluten. When that happens we often will go through a withdrawl which can make us very moody and irritable but this will pass.
I hope your feeling better soon.
You say you are trying out the diet, this is good but if you want a doctor's diagnosis you do need to be eating gluten.
In the beginning the best way to do the diet is to go with whole unprocessed foods. Also depending on where you live some countries consider Codex wheat starch to be gluten free, many of us still have issues with it so make sure any gluten-free replacement items you are using don't contain this. Also in the beginning you should also drop dairy. We usually can't digest it with the damage to our guts and after you heal a bit you can add it back in and see if you tolerate.
Read as much as you can here and ask any questions you need to. I hope you are feeling better soon. Celiac can cause brain issues which can contribute to depression, which it sounds like may be effecting you. You may also want to take some vitamins, B12 will help with energy and nerve conduction which may help the depression. Magnesium and calcium often are low also.
In addition the antibodies action in the brain can make us addicted to gluten. When that happens we often will go through a withdrawl which can make us very moody and irritable but this will pass.
I hope your feeling better soon.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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