Help
I want to see if any one here can help me. I was diagnosed last November by a positive biopsy with the upper endoscopy. Then the blood work followed.
My sister has been having some bad health issues since her husband of 40 years died last year and I suggested she get a celiac panel run. Her results are: Trans glu was 28.6 with <4 as
normal. My Endomysial AB was positive when it should be negative.
My question is this? Does that mean she has Celiac or she COULD have Celiac disease.
Thank you for your help
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Blood Tests Alone Over A Biopsy
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#1
SandyStPeteFL 
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Posted 17 November 2009 - 08:59 AM
Celiac Disease diagnosed as of November, 2008
I have the DQ 2 gene.
That that does not kill you....just makes you stronger!
I have the DQ 2 gene.
That that does not kill you....just makes you stronger!
#2
ravenwoodglass
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Posted 17 November 2009 - 01:24 PM
Celiac can run very strongly within families. If your sister is going to biopsy she should stay on gluten until that is done. The day of the biopsy should be her first gluten free day. Please accept my condolences on your families loss. It is not unusual for this type of stress to trigger celiac. I hope she does well after she has a bit of time to heal. Positive bloods are now being seen as pretty certain that celiac is present. Negative blood tests should always be questioned if folks are symptomatic as should a negative biopsy. False negatives are all too common in both. No matter what the test results are a gluten free trial should be done after testing is finished.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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