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- cristiana replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Waiting for urgent referral.
Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot. It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana- 1
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- Denise I posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Celiac Dietician
I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with. Can you possibly give some guidance on this? Thank you! -
- Posterboy commented on Posterboy's article in Spring 2020 Issue23How Low Thiamine Can Thin Villi: Old Research Rediscovered and its Clinical Significance in Celiac Disease
Celiac16, It is good to hear the article is still helping people even after 4+ years after I wrote it! It is a blessing to know it helped you! Speaking about Schizophrenia here is an article that theorized that Schizophrenia's rooted in a Vitamin deficiency. https://scitechdaily.com/some-people-with-schizophrenia-may-simply-have-a-vitamin...- celiac disease
- niacin
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- Posterboy replied to Nacina's topic in Related Issues & Disorders6
14 year old with Celiac & EOE still suffering...
Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results. The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal...- 1
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- trents replied to Anmol's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Recently Diagnosed Celiac- Need advice
I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives...
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Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot. It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
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I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with. Can you possibly give some guidance on this? Thank you!
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Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results. The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up. His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
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I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.
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Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever? what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working .
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