[pufffee]

Hi

I have been gluten free for about two months. I cheated once on purpose about two weeks ago with a couple slices of pizza after 10 days of dairy free diet as well. My stomach immediately got bloated pretty bad, not painful just bloated. I had D not any different from before. Next morning and day’s later I was fine when back on gluten-free diet but continued limited diary. I still was bloated each day(whats new, nine months now) and bowel movements are not always solid, but I only go and have to go once a day. I find it impossible to believe I have IBS or anything like that, I can control my movements just fine and really only go once. My concerns, can this just be lactose intolerance all this time?(problems since Jan) Biopsy and blood negative for celiac, chrons, uc, no vitamin defiencies what so ever and thyroid is fine. Cholesterol is 160 combined. I had Hydrogen blood test, no SIBO or any other issues there. I have lost 12lbs through since going gluten-free. I was told I am the healthiest sick person they have seen in a while! One underlying issue though, after two failed lactose tests(they were supposedly lost) they finally did one and it was negative, come to find out, it was only a hereditary marker test. Means nothing! So next week I am going for Absorption lactose test and allergy test for Soy, milk, wheat, rye, and various other things( do not think anything will come from this one, just doing as well)
Sorry to ramble, last night glutened as well. With three pcs of wheat bread and then three tacos(not a good choice lol) and only noticed some gurgling in stomach and I think that was because of taco seasonings. Reading most of everyone’s comments on here after getting glutened even buy CC, I seemed to have eaten WAY more gluten and on purpose and do not get what anyone else is?

Any suggestions, Scared, tired, and just want to be better! oh ya, I take fennel for about two weeks now, no improvements yet, next is PB8 probiotic

[AKcollegestudent]

First off, you're not going to be magically better in two months. It doesn't work like that. And it does take a while to get over a glutening, even though your body might not have recovered enough to give you really fun reactions to gluten. Secondly, I'm confused by what you mean by limited dairy--are you doing only "lactose free" dairy items? If so, how is that working out for you? Because it sounds like, at the very least, you should probably go off of dairy completely again--there are actually more proteins than just lactose that the body reacts to. I react to casein, as do many of the people on this board.

I think you want me to tell you that this sounds like you don't have celiac and I'm not going to do that. Because you very well could still have issues with things, even if you were negative on all the tests.

[pufffee]

AKcollegestudent, on Nov 18 2009, 08:08 AM, said:

First off, you're not going to be magically better in two months. It doesn't work like that. And it does take a while to get over a glutening, even though your body might not have recovered enough to give you really fun reactions to gluten. Secondly, I'm confused by what you mean by limited dairy--are you doing only "lactose free" dairy items? If so, how is that working out for you? Because it sounds like, at the very least, you should probably go off of dairy completely again--there are actually more proteins than just lactose that the body reacts to. I react to casein, as do many of the people on this board.

I think you want me to tell you that this sounds like you don't have celiac and I'm not going to do that. Because you very well could still have issues with things, even if you were negative on all the tests.

Hi There,

I mean limited dairy by low intakes of dairy and I also will take a lactaid as well. This is just until my blood results. I am not looking for anyone on here to tell me I am not Celiac or not. I was looking for some help on reactions. It seems every single person I have seen on here that has expressed they were glutened has way more severe reactions, Basically noticable reactions. To be gluten free for months and Splurge on gluten not just accidently or CC. and not notice anything is to me a big sign, at least for now. If I left decisions up to Dr's I would not be Celiac candidate as of Biopsy and blood work back in June. I do not have allergy to casein, that is something completley different and related issues are with skin among other things. But I agree with you that there are many other possibilites.

Have you been glutened? WHat happens?

[Swimmr]

pufffee, on Nov 18 2009, 11:19 AM, said:

Hi There,

I mean limited dairy by low intakes of dairy and I also will take a lactaid as well. This is just until my blood results. I am not looking for anyone on here to tell me I am not Celiac or not. I was looking for some help on reactions. It seems every single person I have seen on here that has expressed they were glutened has way more severe reactions, Basically noticable reactions. To be gluten free for months and Splurge on gluten not just accidently or CC. and not notice anything is to me a big sign, at least for now. If I left decisions up to Dr's I would not be Celiac candidate as of Biopsy and blood work back in June. I do not have allergy to casein, that is something completley different and related issues are with skin among other things. But I agree with you that there are many other possibilites.

Have you been glutened? WHat happens?

My reactions are usually bloating and/or D and the occasional inability to "go" for a day or two. Staying bloated was one of the ONLY noticeable reactions...to begin with (besides migraines and irritability, which I rode off as I was just a .

Then I learned that my anxiety and migraines were a reaction and that was after I started having them more.

Now any time I ingest anything with regular salt in it, I get DH. I went through what I thought was an acne stage when I hit 24...when really it was my body progressing with gluten/wheat intolerance. I have been tested, it's negative. My lipids, thyroid, etc are all fine EXCEPT vitamin D...which I'm low on. So I have to take supplements. But I also think that is because I also never really drank much milk...not ONLY because I have an intolerance. Alot of people with Celiac share a vitamin deficiency. But not ALL. Also if you go even two weeks (correct me if I'm wrong) without gluten and have a test done, it will come back negative. You have to have it in your system for it to show positive. And I'll be damned if I'm going to purposely eat gluten just to have a piece of paper saying I have what I already know I have.

Also take into consideration that while you may not be having a noticeable reactions, your body still is getting damaged.

The longer I go without gluten/wheat, the worse I react when I do get ahold of it. Don't attempt to purposely gluten yourself...it's damage and the more damage you do, the longer it's going to take to recover. Try your best NOT to get glutened and when you do accidently get ahold of it, I assure you, you will more than likely notice it...BIG time.

Good Luck

[ravenwoodglass]

If you want to do a challenge then you should do a true challenge rather than eating mixed foods once and then deciding that the food is fine because you don't think your reacting or think that you are unable to tolerate either when only one is the problem. Drop both the dairy, in all forms, and gluten for a week or two. During this time eat only unprocessed whole gluten and dairy free foods. When your feeling okay then get some triscuits or cream of wheat and eat that 3 times a day for a week but don't add the dairy back in. If you react you will then know that gluten is bothering you. If you get ill drop the gluten and wait till the effects subside and then do the same with dairy. It can take a while to heal and if you have only been gluten-free for 2 months unless you are eating a fresh unprocessed foods diet and nothing else it is hard to avoid getting CC or outright glutened. That can make the first few months touch and go for a bit and make folks question if they may have other issues or if gluten really isn't a problem.
You may want to consider Enterolab testing for antibodies to gluten, casien, soy, eggs and perhaps yeast. You haven't been gluten-free long and they may be able to pick up the antibodies to the foods that you are reacting to. We don't make antibodies to stuff our bodies will accept so even though they do not diagnose celiac they can help us figure out what we need to avoid.

[pufffee]

ravenwoodglass, on Nov 18 2009, 09:35 AM, said:

If you want to do a challenge then you should do a true challenge rather than eating mixed foods once and then deciding that the food is fine because you don't think your reacting or think that you are unable to tolerate either when only one is the problem. Drop both the dairy, in all forms, and gluten for a week or two. During this time eat only unprocessed whole gluten and dairy free foods. When your feeling okay then get some triscuits or cream of wheat and eat that 3 times a day for a week but don't add the dairy back in. If you react you will then know that gluten is bothering you. If you get ill drop the gluten and wait till the effects subside and then do the same with dairy. It can take a while to heal and if you have only been gluten-free for 2 months unless you are eating a fresh unprocessed foods diet and nothing else it is hard to avoid getting CC or outright glutened. That can make the first few months touch and go for a bit and make folks question if they may have other issues or if gluten really isn't a problem.
You may want to consider Enterolab testing for antibodies to gluten, casien, soy, eggs and perhaps yeast. You haven't been gluten-free long and they may be able to pick up the antibodies to the foods that you are reacting to. We don't make antibodies to stuff our bodies will accept so even though they do not diagnose celiac they can help us figure out what we need to avoid.

Thanks Raven, I did 10 days of gluten-free and and dairy free and noticed nothing. My mother has confirmed Celiac and with that I knew what I am getting into and doubt I had any CC during my 2 month diet. I am going Weds for Dairy Absorbtion test and what you suggested allegery test for wheat, milk, caisen, eggs and yeast. People on this site have really bad issues with D and I know everyone is different but I hope what I have is just lactose intolerence and a sensitive stomach and digestive system. I will see. I had all my blood work and Biopsys for Celiac while on a gluten diet so they would be as accurate as possible. I will figure it I guess.