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Hi Everybody! I just had a intestinal biopsy which showed "latent celiac disease". The doctor ordered more blood work to test for the genetic marker and nutritional deficiences before she recommends a gluten free diet. I'm confused. If the genetic test is positive and there are no nutritional deficiences, should i go gluten free anyway? I guess gluten can't be good for you if you have the potential to become celiac. The doc said the villi looked flattened when examined, but the biopsy said latent. Has anyone else had this diagnosis?
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Latent Celiac Disease
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#1
Teddy's mom 
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Posted 18 November 2009 - 02:09 PM
#2
Lisa
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Posted 18 November 2009 - 02:14 PM
[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.
Did you have the blood panel for Celiac?
Did you have the blood panel for Celiac?
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#3
Teddy's mom
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Posted 18 November 2009 - 03:33 PM
Lisa, on Nov 18 2009, 05:14 PM, said:
[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.
Did you have the blood panel for Celiac?
Did you have the blood panel for Celiac?
Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?
#4
ravenwoodglass
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Posted 18 November 2009 - 04:05 PM
Teddy's mom, on Nov 18 2009, 03:33 PM, said:
Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?
No it doesn't. I am wondering why they are saying latent, perhaps because the villi are not totally destroyed.....yet. I would advise doing the diet to prevent any more damage. If you wanted after six months or so on the diet you could ask to be reendoed and see if the damage that they found had resolved. That would be a clear indication that the diet was needed.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
Teddy's mom
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Posted 18 November 2009 - 04:17 PM
ravenwoodglass, on Nov 18 2009, 07:05 PM, said:
No it doesn't. I am wondering why they are saying latent, perhaps because the villi are not totally destroyed.....yet. I would advise doing the diet to prevent any more damage. If you wanted after six months or so on the diet you could ask to be reendoed and see if the damage that they found had resolved. That would be a clear indication that the diet was needed.
Thanks for your reply. Boy you went through a lot to be properly diagnosed! I guess it is difficult. Good luck to you and your family. I'll keep you posted on my journey.
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