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Celiac.com Celiac Disease & Gluten-Free Diet Forum: How Long Before I Can Do Things Again - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   NathanFS 

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Posted 19 November 2009 - 04:51 PM

Well I was diagnosed with gluten intolerance two weeks ago, the first week I ate as strictly gluten free as possible and I can only think of two times I made a mistake. The second week I have checked every label, gone to websites, checked the labels again. I don't know what I could possibly be doing wrong but I still am sleeping for 14 hours and when I am awake I have unbearable abdominal pain and muscle tightness. I want to be able to do things but I am so fatigued and have no energy. Is there anything I can do? How long was it before you started feeling normal again?
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#2 User is offline   Lisa 

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Posted 19 November 2009 - 06:33 PM

Hi Nathan and welcome!

Everyone is different so there is no specific answer to your question. I would keep a food diary and document everything you eat, to include meds, vitamins, toilettress, lotions...in other words, anything that can get into your mouth.

Eat simply. Fish, meat, rice, potato, fresh veggies in the simplest way are your friends. When you feel comfortable, add a little at a time.

Once you get over the hump, it's a lot easier. This is a great place to learn...take a walk around.
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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#3 User is offline   Wolicki 

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Posted 19 November 2009 - 08:14 PM

Have you had all your vitamins and minerals checked? I got much better faster when I started supplements for the things I was low on. You should test A, all the B's, D, Ferritin, magnesium, calcium, zinc to make sure your levels are up.
Gluten free is not so bad! If you are new, hang it there, it gets easier!
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#4 User is offline   sunnybabi1986 

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Posted 19 November 2009 - 08:30 PM

I also wanted to chime in about the vitamin/mineral deficiencies. I'm getting checked this week and I suspect I'm deficient in several, due to my extremely low energy level.

I did read that deficiency in Vitamin D can cause stomach pain and muscle weakness/aches. Iron or B deficiency can cause fatigue. Get those checked out and see if you need to be supplementing. Good luck! Let us know how it goes!

Janie
Gluten Free since October 2009

If evolution really works, how come mothers only have two hands?" - Milton Berle

"Life is 10 percent what happens to me and 90 percent how I react to it."--Lou Holtz
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#5 User is offline   redsidekick 

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Posted 20 November 2009 - 02:47 AM

Sadly, it is different for each person. I know I used to get depressed reading how quickly some people felt better. That was not the case for me. Maybe it was because Im older (42), I dont know. I can tell you things improved each month, when I looked at improvement like that, instead of daily, I could see the difference even though I still felt horrible. It has now been nine months since going gluten free, around the seventh things got noticeably better, and now nine months in I still have some bad feelings, but nothing like it was in March. Hope that helps to encourage you.
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#6 User is offline   sadeew 

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Posted 20 November 2009 - 06:57 PM

Hi Nathan~

It was 2 weeks before I noticed improvement and another week before I felt like I was really feeling better.

Be patient. It is different for everyone becasue we all have different degrees of damage. Age, diet, health, etc. all play an important role.

Drink LOTS of water to help your body and make smoothies with good nutrition in them so you are giving yoru body what it needs to heal.


Probiotics are super important, too, especially if you have gut pain. I take PB8 - 4 caps 3x's/day.
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#7 User is offline   Korwyn 

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Posted 20 November 2009 - 09:06 PM

View PostNathanFS, on Nov 19 2009, 04:51 PM, said:

Well I was diagnosed with gluten intolerance two weeks ago, the first week I ate as strictly gluten free as possible and I can only think of two times I made a mistake. The second week I have checked every label, gone to websites, checked the labels again. I don't know what I could possibly be doing wrong but I still am sleeping for 14 hours and when I am awake I have unbearable abdominal pain and muscle tightness. I want to be able to do things but I am so fatigued and have no energy. Is there anything I can do? How long was it before you started feeling normal again?


Hi Nathan. Several people posted here but I want to re-iterate, get your vitamin levels checked! D, B, K, A, E, Iron levels, etc. It is VERY rare to find someone with Celiac who doesn't have some type of deficiency, and if you have been diagnosed as gluten-intolerant, it is possible you actually have Celiac disease. There is also some substantial research showing that non-gene mediated gluten intolerance can still lead to systemic inflammatory response and nutrient issues.
Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(
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