The Chex Issue just called them again
#1
Posted 20 November 2009 - 10:20 AM
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#2
Posted 20 November 2009 - 10:31 AM
I am calling again now... I want to tell them what you just told me.
I will tell you what they say in a minute...
--> She (Peggy) is checking on the person who I first spoke with...
--> I am now on hold... She is pulling up my file...
--> She is now telling me how sorry she feels for me, about my symptoms I got from the cereal...
--> Wow, she is actually telling me the truth. That they do not know if anyone has called in... and the previous woman had told me that no one had called.
--> She said she doesn't know anything about the facilities, and is forwarding the report again...
Not any help. But, she is alot nicer. She said they will call back with more information.
ABCDEFG, gummy bears are chasing me. One is red, one is blue, the yellow suckers got my shoe. ABCDEFG, gummy bears are chasing me.
#3
Posted 20 November 2009 - 10:48 AM
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#4
Posted 20 November 2009 - 10:52 AM
So, they can stick it up they're gluten free factories, customer service know-nothing, should be fired for lying to a moooooody Celiac and have they're tounge tied for a month's, nostril!
Yes, I am a little moody and P.O'd right now!
Hmm, is it okay to rant and rave like a lunatic on here? Oh, this is a Celiac forum. It wouldn't be normal without ranting and raving sometimes... lol
ABCDEFG, gummy bears are chasing me. One is red, one is blue, the yellow suckers got my shoe. ABCDEFG, gummy bears are chasing me.
#5
Posted 20 November 2009 - 10:55 AM
Becci, on Nov 20 2009, 11:52 AM, said:
Yes, it's okay, but only if you spell it right! LUNATIC. just kidding-
so, did they tell YOU it was a gluten free facility??? I am annoyed with you.
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#6
Posted 20 November 2009 - 10:59 AM
mcphena, on Nov 20 2009, 01:55 PM, said:
so, did they tell YOU it was a gluten free facility??? I am annoyed with you.
HAHA! Yes, I noticed that and fixed my rant-spelling...
And the woman I spoke to the first time told ME it was a gluten-free facility... Then Peggy, the next woman, told me she has nooooo idea!
GRRRRRRRRRRRRRRR!
I am annoyed with you. You showed me what I misspelt... You should be thrown into a pan of gluten-free lasagna.. A large pan. Yes, I said gluten-free... Cause I don't want your Celiac ghost to come back in a gluten rage and kick my... tushy. HAHA, No, I am not really annoyed with you!
ABCDEFG, gummy bears are chasing me. One is red, one is blue, the yellow suckers got my shoe. ABCDEFG, gummy bears are chasing me.
#7
Posted 20 November 2009 - 11:13 AM
Becci, on Nov 20 2009, 11:59 AM, said:
And the woman I spoke to the first time told ME it was a gluten-free facility... Then Peggy, the next woman, told me she has nooooo idea!
GRRRRRRRRRRRRRRR!
I am annoyed with you. You showed me what I misspelt... You should be thrown into a pan of gluten-free lasagna.. A large pan. Yes, I said gluten-free... Cause I don't want your Celiac ghost to come back in a gluten rage and kick my... tushy. HAHA, No, I am not really annoyed with you!
Yep, the Ashley I spoke with had no idea about my questions either. Makes me wonder if the answers I got today are even the truth! She said she spoke with her supervisor about the how ofthen they check the batches question and she had to call me back with that answer, and call me back again with the answer to the ppm question, so I'm hoping I got the truth today. But I still think a lot more of us need to call and bug them and report what they are told too. mmmmm, now I want lasagna!!!
ttg iga 88, reference range 0-19 gliadin peptide antibody iga 105, reference range 0-31
endoscopy positive for celiac disease, hiatal hernia, major acid reflux damage
diagnosed with arthritis in my teens, thyroid disease in my 20's, epilepsy in my 20's, adult ADD in my 30's, lupus this year(not convinced I have lupus)
suffered from joint pain, migraines, seizures, 4 miscarriages, 2 years infertility, scalp rash, bloating, chronic constipation, acid reflux, weight gain, hashimoto's disease, enlarged thyroid, thyroid nodule, extreme fatigue, low vitamin D, anemia, mouth and nose sores
Started gluten-free diet 10/7/09!
#8
Posted 20 November 2009 - 11:31 AM
I was under the impression the FDA standard for gluten free labeling is 20 ppm (20 mg/Kg)--perhaps moderators here are more familiar with the current status of FDA's "gluten free" labeling requirements. IMHO 20 or even 10 ppm is too high for very sensitive celiacs. I had read the FDA is working on determining a more reasonable gluten-free ceiling.
http://www.fda.gov/Food/LabelingNutrition/...n/ucm077926.htm
http://www.csaceliacs.org/FDADefinitionofG...reeLabeling.php
I'm not sure which gluten assay General Mills uses, but ELISA assays should be good down to lower than 1ppm. If they are properly batch testing for an acceptable threshold, the CHEX product shouldn't necessarily have to be mfr'd in a gluten-free facility. http://www.tepnel.co...n-assay-kit.asp
Perhaps it would be better to speak with a process engineer or chemist @ g mills. Customer service reps often just read from a script. Creating a panic where folks are "inaccurately" afraid to buy certain gluten-free products could hurt us if mfr's think we're just a bunch of hotheads.
#9
Posted 20 November 2009 - 11:38 AM
mcphena, on Nov 20 2009, 02:13 PM, said:
MMmmm, lasagna! Dang, now I need to go to the store! I'll email you some
ABCDEFG, gummy bears are chasing me. One is red, one is blue, the yellow suckers got my shoe. ABCDEFG, gummy bears are chasing me.
#10
Posted 20 November 2009 - 03:06 PM
I want those 6 months back! Just kidding...I know there are worse things and we are fine now. I just feel like I was scammed. I think self regulating for gluten content is a bunch of crap, they are out there to make $$$, I don't think for one second they really care about the Celiac community.
Yep, still pissed. Feel free to ignore my rant too, lol.
Age 11 - Psoriasis
Age 8- dx'd Celiac March 2005
Age 6- gluten-free/cf, allergy related seizures
Age 4 - reflux, resolved with gluten-free/cf
#11
Posted 20 November 2009 - 03:27 PM
taweavmo3, on Nov 20 2009, 04:06 PM, said:
I agree that a better gluten-free labeling standard needs to be implemented by the FDA. This is where changes need to be made.
I'm currently dealing with cc issues, perhaps from Quaker Rice cakes myself, but not completely sure yet. I have been fine with Chex, but noticed my local grocer has Chocolate Chex, some boxes are labeled gluten-free, while other boxes are not, according to the ingredient list. Perhaps old stock mixed in?
#12
Posted 20 November 2009 - 03:34 PM
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world
#13
Posted 21 November 2009 - 06:18 AM
I had been sick since I was little but no one ever knew why.
IBS
Migraines
Vertigo
Miscarriages and lost my third child to stillbirth
Liver and Spleen problems
Lactose Intolerance
Anxiety
hair loss
Hypoglycemia
Foggy Brain
Joint pain-diagnosed with Fibromylagia
#14
Posted 21 November 2009 - 08:13 AM
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world
#15
Posted 21 November 2009 - 08:57 AM
Get angry at "could possibly have 1ppm" gluten all you like, but it is NOT economically feasible to test for less than that. If you want to pay $30/box for cereal, and have a couple thousand other folks who will do the same, maybe. But it's an impossible business case. Heck, even if you have a completely gluten free kitchen (you NEVER let anyone bring ANY gluten into your house, and they wash and change clothes when they enter), you couldn't actually prove 0ppm either - because a true 0 can't be tested for.
ANY new food you try should be suspect until you know that you are good with that food - regardless of any labeling. It's never sufficient to say "well, it says 'gluten free' on the label, so that can't be what's making me sick".
I agree that it would be nice if we could get a straight story from GM on the facility issue, but I wonder if they only have one facility? Could they not have multiple ones, and some are dedicated, others are not, and hence your answer depends on where you live?
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

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