[hammer44]

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

[Wolicki]

hammer44, on Nov 20 2009, 03:26 PM, said:

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

THe same thing happened to me! I developed neuropathy and restless legs AFTER going gluten-free. Doc is fairlysure thatthe neuropathy is from low B12 and RL from low Iron. Have you had yours checked?

[Korwyn]

hammer44, on Nov 20 2009, 03:26 PM, said:

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I developed neuropathy and myoclonus after going gluten-free. Turned out I developed an allergy to Soy which was causing CNS inflammation and damage. Refined sugars in any form cause my RLS to reappear.

[ravenwoodglass]

hammer44, on Nov 20 2009, 03:26 PM, said:

For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

Have you made sure that all of those are for sure and for certain gluten-free?

[hammer44]

ravenwoodglass, on Nov 21 2009, 05:04 AM, said:

Have you made sure that all of those are for sure and for certain gluten-free?

Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

[Eric_C]

hammer44, on Nov 21 2009, 11:24 AM, said:

Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Same thing.

Take B12, D3, and Candex for yeast, all went away. I have no problems with soy or any other allergy thankfully.

[Alphawave]

hammer44, on Nov 20 2009, 03:26 PM, said:

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.

[Wolicki]

Alphawave, on Nov 25 2009, 08:08 AM, said:

The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.

Alphawave,
This is interesting about magnesium. I stopped taking it because my blood levels were normal. Do you have any links to any articles on this? Thanks!

[one more mile]

soy makes me feel like crap, runs, restless leg, body achs. ( I no longer eat it)

[Amber M]

hammer44, on Nov 20 2009, 04:26 PM, said:

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I have been gluten free for over a year now and still have problems with Gluten Ataxia which includes some of your stuff. After finally tapping into the "Candida" issue, thanks to you people, I have been on mega doses of probiotics and am getting some relief. I researched to discover that the outside of the cell of the yeast infection produces the exact same protien as gluten and will attack the same as gluten! Shock! I had a white tounge, thats it, but obviously (after several rounds of antibiotics), ya, I had an overgrowth. My Ataxia was at its worst during both of the last 2 rounds of atibiotic. But the overgrowth of yeast has been there for a lot longer than that. No wonder I haven't been well.
But another issue has cropped up. The Doc thinks there may be an "underlying" issue that brought the imulogical gluten issue out to begin with since I was genetically pre-disposed for it. Upon further research, I disscovered that they now think the over growth of yeast brings out our pre-dispossed for diseases! They are testing me for "Lymes" and "Heavy Metals" too (I work with 7 types). What ever brought the gluten issue to the surface, it is here for life now, just like diabetes, etc. I don't try to fool myself into to thinking I can eat the stuff again, but maybe corn?, or the many other food allergies that have cropped up since the gluten issue.
I guess also part of what I'm saying is this journey I have been on is sometimes a drag, but the one thing that has helped me the most is this sight. It leads me to go further researching every aspect of this gluten issue. It's the thing that has saved me because I have Doctors that know nothing about this. My PA is doing research now, thanks to the "mystry" I have presented to her.
Best of Luck, check out the "National Ataxia Foundation" as well as the neuropathy things.