Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ate Gluten By Mistake
0

18 posts in this topic

I found out December 1, 2004 I was Celiac. I'm 38, male, my more unpleasant side affects were realized in 1999 when I had a compound fracture of my femur during a somewhat routine bicycle accident. When I learned why all my problems happened I became VERY careful not to eat gluten, I understand very much how serious celiac can be. My health and well being have improved drastically since gluten-free with about 5 minor mistakes (gasx, a couple fries in 'bad' oil ect...) the mistakes where unpleasant. Anyway a few months later here and now I am better than I have been since 1999, perhaps better than ever because I now know why my life has been a little rougher than most. I have always enjoyed travel to new places but the last few years was much to sick, after going gluten-free for a couple months I was feeling well enough to plan a trip for the first time in a long while. On 4/21/05 I got a plane from my Florida home to North Carolina. In a weak moment at a airport interchange I ordered a omelete from "Phillips" resteraunt in charollette, NC that had crabmeat and cheese, waitress said real crab... but I was in a hurry and wasn't REALLY careful. Anyway clearly there was gluten. That night 8-12 hours later I enjoyed a great concert and later felt unuasally tired and fell asleep. I woke at 3 am about 16 hours after eating the gluten. The pain in belly was bad, the sickness, everything I have been through all my life came back to me. All the nightmares. In a hotel my nieghbors sent staff to check on me as I was noisy in my pain and sickness. The next 8-10 hours were the worst. 10 days later I feel 90% better. I have bad back pain since then, an unusual symptom but then my body is a mess. The little bit of gluten I had now I am gluten-free was a unbelievable nightmare. I can't believe some doctors put people back on gluten. Some fool doctor told me to eat a slice a bread I might slap him upside the head. After the worst of the gluten sickness I have been very tired, terrible bone pain, my nasty toungue problem is back, tummy always turning, HD is rampant. Bowells are a mess. Cold spells gone after a a few days thankfully. Neck and back pain still bad maybe a hair better, but my back feels like it did back in the day and that is very unpleasant. Mood swings, emotional unstable since gluten accident.

Sorry, long rant! But I know I'm not the only one who has been through it, and not the last. Be careful out there, this crap is poison.

0

Share this post


Link to post
Share on other sites


Ads by Google:

so true mcdougall---so very true--a very tough reminder that we can never be too careful--i have gotten so i dont trust anyone with my food and thats bad, but i cant face this kind of sickness--i just cant---deb

0

Share this post


Link to post
Share on other sites

Its fine to rant - I do too! I have had this thing for over 6 years - if Im not mistaken may have had it while I was growing up but last 3 years have been dreadful! I have only been gluten-free for 5 days and feel amazing but last night I had an accident - and I am sick today and cant go out of the house at all - you feel like kicking yourself dont you? its prob not as bad as yours sounds but still it takes over you life! I would never touch gluten again no matter what any doctor saya - even the smell of once loved bread makes me heave! And ive only been gluten-free for 5 days!! unbelievable isnt it! Im glad to hear that you got to go on a trip tho - you can do it again, for sure!!!!! Take care

0

Share this post


Link to post
Share on other sites

One gluten mistake can send you right in a tailspin. I get sick for about 2 weeks and it's torture. I have noticed it really just sets your body back...your body has to fight this. For some people it can take numerous weeks to get back on track after a "gluten poisoning".

Feel better soon :D

0

Share this post


Link to post
Share on other sites

I did something dumb the other night, made tacos .... used corn hard shells, checked the taco sauce and it was ok....forgot to check the seasoning packet - it must have had gluten because I have been sick for two days. My son at a pop tart and left crumbs on the counter, I brushed them into the garbage with my hand and now my finger has itchy bumps on it. It seems like the longer I try to stay gluten-free, the more sensitive I become to the crap. Do any of you take Imodium for the diarrhea and cramping, or is that not a good idea?

0

Share this post


Link to post
Share on other sites




I just accidentlly "got glutened" for the first time since August 2004 - we were having sandwhiches, and not wanting to leave me out of the whole thing, I planned to make my own bread, well, I got busy and forgot to bake it. So, I made my bread, popped it into the oven, then ran into the health food store because there was no way mine would be ready in time for dinner.

I found a bread that was Wheat Alternative and Yeast Free - Yea! I have never heard of Kamut. Well, I was sick as a dog by the next morning and in between runing to the bathroom, I looked up Kamut in my gluten-free Cookbooks and find out "it is to be avoided since it is another type of wheat" well - needless to say, I threw the whole loaf away and was angry at my own supidity.

By the way, my baked bread then came out and is not making me sick!!!! Stupid...

0

Share this post


Link to post
Share on other sites

"It seems like the longer I try to stay gluten-free, the more sensitive I become to the crap. "

This is clearly how it works. My point. Be careful and feel good:-) Aloha

0

Share this post


Link to post
Share on other sites

"Its fine to rant - I do too! I have had this thing for over 6 years - if Im not mistaken may have had it while I was growing up but last 3 years have been dreadful! I have only been gluten-free for 5 days and feel amazing but last night I had an accident - and I am sick today and cant go out of the house at all - you feel like kicking yourself dont you? its prob not as bad as yours sounds but still it takes over you life! I would never touch gluten again no matter what any doctor saya - even the smell of once loved bread makes me heave! And ive only been gluten-free for 5 days!! unbelievable isnt it! Im glad to hear that you got to go on a trip tho - you can do it again, for sure!!!!! Take care :"

We are born with it... Email me anytime, I remember real good how 5 days gluten-free felt, higi@higittiki.com

0

Share this post


Link to post
Share on other sites

"One gluten mistake can send you right in a tailspin. I get sick for about 2 weeks and it's torture. I have noticed it really just sets your body back...your body has to fight this. For some people it can take numerous weeks to get back on track after a "gluten poisoning".

Feel better soon "

Thanks:-)

0

Share this post


Link to post
Share on other sites

Jeri, Even though I am gluten-free, I still do take Imodium. Actually, I take the brand from Sam's Club b/c it is the same strength (2 mg loperamide). I have had so many unexpected "attacks" resulting in mad dashes to the bathroom that I have become paranoid about it. Sometimes I made it and sometimes I didn't and those are the times that have warped my psyche. I don't take it if I'm going to be at home, otherwise, yes. It helps me lead a somewhat normal life. :rolleyes:

0

Share this post


Link to post
Share on other sites
I did something dumb the other night, made tacos .... used corn hard shells, checked the taco sauce and it was ok....forgot to check the seasoning packet - it must have had gluten because I have been sick for two days. My son at a pop tart and left crumbs on the counter, I brushed them into the garbage with my hand and now my finger has itchy bumps on it. It seems like the longer I try to stay gluten-free, the more sensitive I become to the crap. Do any of you take Imodium for the diarrhea and cramping, or is that not a good idea?

Hi!

I have discovered that the longer I am gluten-free, the more sensitive I am when gluten does enter my diet accidentally. I usually respond with sickness within a 1/2 hour. My physician believes this is tied to the auto-immune part of celiac disease, meaning that the antibodies are not present because I have been on a gluten-free diet. This means a more severe response by my immune system when gluten is presented in the body.

To answer your other question, I take charcoal for the diarrhea. It is much less constipating than Immodium or other OTC stuff.

Anyway, I am religious about my gluten-free diet. However, I have had a very busy 5 weeks with travel (for work) and other stuff. I have inadvertently eaten something with gluten in it for 5 weeks straight. I can only assume that I'm being given misinformation when I ask questions, etc.

I'm so bummed by this. I'm exhausted and I ache all over. And, I'm really pissed right now for even having celiac disease! (It's been 30 years since my diagnosis.)

AUGH!!

Thanks for letting me vent!

0

Share this post


Link to post
Share on other sites

I take Immodium when I have diarrhea and it is a God send. As long as I don't take too much it doesn't make me constipated.

0

Share this post


Link to post
Share on other sites

what should you do if you just ate some by mistake? I ate about half a bag of Doritos before I realized they changed the ingredients to add wheat flour - my stupid mistake - but now what? I can't reach my doctors, I tried unsuccessfully to throw the food up when I first realized. It was about an hour ago and the only symptoms I have (other than panic) is a burning feeling in my stomach. what should i do? are there things that can help, or make the damage less?????

0

Share this post


Link to post
Share on other sites

Basically you have to let the reaction run its course. Accidents happen so try not to worry about it too much just be more careful next time. It's not like you knew you were glutening yourself. Some dorito flavors are gluten free but I know the nacho cheese kind we can't have.

Try drinking some teas to sooth the stomach...pump yourself with vitamins too. Also being on probiotics and enzymes might help your body as well.

0

Share this post


Link to post
Share on other sites

if I get accidentally glutened I rely on immodium or pepto, and I also take probiotics and digestive enzymes. I've also found that drinking plenty of water helps tremendously. Funny, I get major panic attacks when I get glutened too.

0

Share this post


Link to post
Share on other sites
Funny, I get major panic attacks when I get glutened too.

I get major anxiety when I am glutened too.

0

Share this post


Link to post
Share on other sites

Reading this, I feel so (relatively!) lucky that I don't get sick to my stomach from gluten mistakes, although I get bloating and a stomach tightness, followed by 24-48 hours of severe brain fog and exhaustion, and I get depressed and incredibly irritable and usually an excema/acne breakout too. That all sucks of course, but I do not have to run to the bathroom and I know that if the stomach tightness kicks it's like a warning, and I have about 12 hours before the other stuff starts to happen, so I can usually plan the next day around it. :lol:

0

Share this post


Link to post
Share on other sites
what should you do if you just ate some by mistake?  I ate about half a bag of Doritos before I realized they changed the ingredients to add wheat flour - my stupid mistake - but now what?  I can't reach my doctors, I tried unsuccessfully to throw the food up when I first realized.  It was about an hour ago and the only symptoms I have (other than panic) is a burning feeling in my stomach.  what should i do?  are there things that can help, or make the damage less?????

[FONT=Geneva]If you have some good (plant based), broad spectrum digestive enzymes, these will help the offending food break down faster and therefore move through your system quicker. I don't think you could take too many...so take 5 or 6 for the emergency. Ongoing, they'll help you digest and assimilate all foods. Another good idea, ongoing, are probiotics. Either a broad spectrum all in one type or Acidophilus and Bifidus seperately. Both are important as they function in a synergistic way.

B) pamela

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,375
    • Total Posts
      920,572
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a disc with records to me, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten. He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • Celiacs got better gluten-free. Post-war, grains became available again and the same patients got sick again. 1952 the Gluten-Free Diet is officially ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,451
    • Most Online
      1,763

    Newest Member
    Chelsealarita
    Joined