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Muscle Twitching


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46 replies to this topic

#16 Jean'sBrainonGluten

 
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Posted 14 December 2009 - 03:21 PM

Um, I would be careful about Benadryl - it makes my myoclonus significantly worse. Try a small dose first if you think it seems promising.
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#17 SirSleepie

 
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Posted 15 December 2009 - 03:04 PM

Thanks for the info.

I just read an editorial called "Gluten Sensitivity as a Neurological Illness," which explains that "peripheral neuropathy is the second commonest manifestation of gluten sensitivity."

Hopefully my issues are related to my celiac diagnoses and I will improve shortly.

20 days and NO relief yet.

I hope this post will catch more eyes. I agree with Jean, there needs to be more attention brought to the neurological implications of Celiac disease. If muscle fasiculations (twitching) and cramping is indeed the result of antigliadin antibodies at work than I would imagine that there would be more of you who frequent these forums who have experienced this. The more of us who come forward the better.
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#18 CarbQueen

 
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Posted 15 December 2009 - 09:17 PM

After doing a gluten free diet for approx. 3 mo. this year, I returned to gluten diet for a short period of time. In just a few short weeks my muscles and joints were throbbing in pain. Also, I experienced muscle spasms comparable to a charly horse.

I quickly returned to gluten free diet, and it took a few weeks before my body returned to normal. During that time I experienced the occasional muscle spasm before it settle down to twitches and then just random twitches.

When ever I am accidentally gluttened, I feel it immediately under my left eye which starts to twitch then comes the heart palpitations, anxiety, and ADHD symptoms. That's from trace amounts of gluten. What follows is gas and indigestion.
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#19 Jean'sBrainonGluten

 
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Posted 16 December 2009 - 12:43 PM

The thing with neuro symptoms is that they reflect damage to the brain and the papers I've looked at imply that it takes about a year gluten-free to clear up, but you have to be really scrupulous about cross contamination and not eating grain derivatives in flavorings. You should start to see improvement soon, depending on your age (younger people heal faster). Make sure you are getting a good gluten free overall vitamin supplement and specific supplementation with B vitamins or D if tests show you are low.

Several other things also have helped me

avoiding common migraine trigger foods like onions, aged cheeses, citrus, pickled foods, ...even limiting gluten free preserved meats - there are good websites because migraines cause swelling in the brain

icing my head when I have even a small headache

sometimes a heating pad on my lower back helps a little

doing calf and other leg exercises ( standing on tip toes - up/down repeat several times and then do a slow stretch of the calf and achilles area) right before bed

and, again, avoiding antihistamines and opioids ( hydrocodone and tramadol are the ones I had tried for fibro pain, tramadol is related to opioids)

Hope you feel beter soon!
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#20 SirSleepie

 
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Posted 16 December 2009 - 02:26 PM

I'm reducing everything to very clean foods; fruits, vegetables, meats, rice, and that's about it.

I notice exercise exaggerates the twitching, but only for a short time. I was doing lots of walking and calve raises up until recently. The extra twitching it invited was starting to get annoying, but it did seem to work out the kinks and decrease stiffness.

How does this promote healing? Can you break down the science?

Is it the excess blood flow in the effected extremities or a muscle/brain stimulation thing?

Thanks.
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#21 srthomas21

 
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Posted 16 December 2009 - 07:39 PM

Srthomas21 - Muscle fibers dance about. Pulsating movements... Twitches/Fasiculations. Really don't know how else to describe them. Sorry. Mostly occurs in my calves. Also happens a lot in my feet. I have pain and stiffness in my calves as well. Anxiety is horrible.

I've been gluten free for 19 days now. I noticed significant improvement on Friday & Saturday (The best I've been in a while). I took a few steps back on Sunday and now I appear to be right back where I started. Very frustrating.

Thanks for the feedback and the support.


Hey,

I primarily had neurological symptoms. I had this horrible feeling that I'd been drugged that went on for months. I had cloudy thinking and a very strange sensation in the back of my head. My neck also would ratchet when I moved my head up and down. Very weird. I also had muscle twitching, weakness, and cramps. Some weird visual problems to that aren't quite resolved yet.

When all this was going on I was also having very bad anxiety and I can tell you for a fact that anxiety can amplify your symptoms 100 times. If you are having bad anxiety it can make your muscle twitching a lot. It did for me. You need to get the anxiety under control to see if that helps the twitching. I can honestly tell you I thought I had a horrible neuro disease but it turned out to be Celiac and bad anxiety.

After gluten free for 7 months the anxiety is a lot better. I was on meds for it but I am off now.

Try not to worry too much about it. You know you have Celiac and it can cause many many weird symptoms so to me its the most logical cause of your muscle twitching and it's probably exacerbated by the anxiety.

Other than the muscle twitching and anxiety are you having any other issues? Motor control? Clumsiness? altered gait when you walk?

My muscle twitching is now resolved. I think it took about 3-4 months gluten free for it to go away. I still have some minor muscle cramps primarily when I do sudden movements.

It's easy to let your brain wonder and think that there is something else wrong with you. I still have issues with that because I'm not feeling 100 percent yet. I go on the internet, consult lord Google with my symptoms, press a button and whalaa there is a list of 30 more possible illness I may have :) However, I then try to talk sense into myself because the most logical thing to cause my issues is Celiac.

Like Jean'sBrainonGluten says it could take up to 2 years for neuro symptoms to completely resolve. I still have neuropathy in my hands but it has gotten a lot better since going off gluten. I'm hoping in time it will go away completely.
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#22 srthomas21

 
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Posted 16 December 2009 - 08:17 PM

Here is the full pdf version of the Gluten sensitivity as a neurological illness

http://www.ncbi.nlm....les/PMC1737870/
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#23 CarbQueen

 
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Posted 17 December 2009 - 11:53 AM

The walking does make the twitching worse initially, but subsides after I resume gluten-free diet. I eases back into walking. Started with a block then worked my way up to 2k, 3Xs per week. Baby steps are the key. I've learned to be patient.

I practice yoga on a daily basis. It reduces the severity of my flares.

Cranial sacral therapy helped me with the muscle and joint pain.

I use an herbal product to improve the circulation of the blood.

Organic produce is a must, because the chemicals, pesticides or herbicides can cause problems with the muscles and joints, as well as ADHD symptoms.
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#24 Jean'sBrainonGluten

 
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Posted 17 December 2009 - 12:43 PM

Hi I'm not sure why the leg lifts help me. I am careful not to do too many - less than 15 and only a couple stretches.

So here's a technical discussion on why I think it's a muscle/brain stimulation thing....

Twenty eight (?) years ago I was a lab tech for a psychologist studying whether exercise helped rats recover from brain trauma, which it clearly did. Here are some references

http://www.scientist...recovery/23520/

http://www.pmrjourna...0382-7/abstract

http://www.webmd.com...stroke-recovery

I just found those articles but I did the mild exercise based on my lab tech experiences and some reading I did years ago on recovery from coma - it was more or less a theory of mine that mild activity could stimulate the motor neurons and help rehabilitate the brain. The idea is that gluten is causing me brain damage and the mild exercise helps overcome the damage. It wouldn't be effective without the gluten free diet stopping the ongoing damage.

The researcher Hadjivassiliou, srthom21's article author, has actually opened a Brain Ataxia center in England, but I'm unable to find recent publications by him. Anyway, several of the papers on different neuro symptoms and their correlation with celiac are written by him.

For muscle cramps you might look at potassium and magnesium supplementation.

Hope this is helpful.
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#25 SirSleepie

 
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Posted 17 December 2009 - 03:15 PM

Srthomas21 - Primarily muscle twitching and stiffness...throw in a dash of buzzing and some pain. My right leg ached pretty badly last night. That was a first and kept me up for awhile. I haven't noticed problems with motor control, clumsiness, or gait.

CarbQueen - How long did it take for your symptoms to subside after diagnoses? How intense/often was your twitching and when did it go away? Did the healing process take a longer period of time after diagnoses compared to isolated incidents of ingesting gluten?

Jean'sBrainonGluten - Your theory certainly makes sense. If indeed gluten is causing brain damage I would assume some sort therapy would be in order. I've been taking 400mg - 600mg of magnesium daily for nearly a month. I try to ensure that I at least have one banana a day. I've began some light stretching and leg lifts. Also, I've been using a heating pad on my calves which seems to do some good.

Thanks for the feedback.
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#26 Ahorsesoul

 
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Posted 17 December 2009 - 03:34 PM

Twenty eight (?) years ago I was a lab tech for a psychologist studying whether exercise helped rats recover from brain trauma, which it clearly did.


I want to thank you and the people doing this study. My dd was in an accident in 1989 which resulted in her brain injury. She was in a coma for months. We found the best rehab hospital in the country (in Bryn Mawr, PA ). It was not close to us but we knew whatever care she got right after the accident would determine how she lived the rest of her life. Exercise was strongly push upon her even while in a coma. She still has a brain injury but she walks and participates in life because of the excellent care she was given. So thank you.
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1960s-had symptoms-could have been before but don't remember
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world

#27 CarbQueen

 
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Posted 17 December 2009 - 05:58 PM

Srthomas21 - Primarily muscle twitching and stiffness...throw in a dash of buzzing and some pain. My right leg ached pretty badly last night. That was a first and kept me up for awhile. I haven't noticed problems with motor control, clumsiness, or gait.

CarbQueen - How long did it take for your symptoms to subside after diagnoses? How intense/often was your twitching and when did it go away? Did the healing process take a longer period of time after diagnoses compared to isolated incidents of ingesting gluten?

Jean'sBrainonGluten - Your theory certainly makes sense. If indeed gluten is causing brain damage I would assume some sort therapy would be in order. I've been taking 400mg - 600mg of magnesium daily for nearly a month. I try to ensure that I at least have one banana a day. I've began some light stretching and leg lifts. Also, I've been using a heating pad on my calves which seems to do some good.

Thanks for the feedback.



After diagnoses my symptoms took approximately 6 weeks to start to to diminish. By 3 months I was feeling almost symptom free.

My twitching was almost constant and on a scale of 1 to 10 with 1 being the least, it was about 7.

Yes the healing took longer after diagnoses compared to isolated incidents of ingesting gluten. 3 months for recovery after diagnoses and 1 to 3 days for accidental glutening.

Jean's info is useful. I'm a survivor of an auto accident, and a patient of a physiotherapist, neurologist, cardiologist, head/nose/throat specialist, orthodontist, internal medical doctor, cranial sacral therapist, etc.

I was a pre med student before my thyroid stopped functioning. I learned to doctor myself.

Maybe at some point I will study naturopathic medicine.
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#28 StacyA

 
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Posted 18 December 2009 - 05:15 AM

Jean'sBrainonGluten wrote: "lots of meats have vegetable broth added for 'flavor' and that can have gluten."

I just found this out!! I thought I was doing so well doing my own cooking with plain old ingredients like meat and veggies and potatoes. Then I read something that made me realize I need to read the labels for meat, so next time I was at the grocery store I picked up packets of fresh and frozen chicken and pork and lo and behold I kept seeing that they were injected with 'broth'. (And, of course, so many broths have gluten and MSG.) That was a sad day. Hormel labels well, and Perdue has a list of gluten-free products.
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#29 SirSleepie

 
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Posted 19 December 2009 - 08:50 PM

Along with the twitching in my calves that I feel... I also have twitching that I can see, but that I do not feel. Anyone experience something similar to this?
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#30 Jean'sBrainonGluten

 
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Posted 20 December 2009 - 03:59 PM

I'm not sure what you mean by not feeling the movement. I got twitching in my legs when I was lying down. I didn't feel it directly but I felt my skin moving against the bedclothes and the bed moving because the twitches were quite strong.

What I decided is that some of my symptoms are scary and I wish they would go away faster but

I had the MRI and the carotid ultrasound. The MRI showed nonspecific lesions and the ultrasound was normal - nothing desperate except how I feel, so I'm not going to panic

there are plenty of people in the medical literature whose symptoms were much worse than mine and who recovered - it just took time - the guy with out and out epileptic seizures took nearly a year and he was about your age

even in a person your age it takes several months for gluten damage to the brain to heal, I'm over twice your age so I figure I've got months or years before I'm much better. It isn't what I want, but it is true.

in the meantime you can

try adding a little more magnesium - I take quite a lot and find it helpful
continue with exercise and zealous gluten free eating, check personal care products, meds, cross contamination
track your food and other things to see if the symptoms wax and wane and what might be triggering them
look at foods that trigger migraines since they may increase brain pressure and could be contributing to the twitching (aged cheese, preserved meats, citrus, beans, check the web)

practice self-calming and judicious distraction.

Hope this helps
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