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Muscle Twitching


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#31 Jean'sBrainonGluten

 
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Posted 20 December 2009 - 04:03 PM

I do get tremors in my hands that I can see but not feel - see my discussion of scary symptoms and trust in the process, above.

It's kind of horrifying that wheat or gluten can cause symptoms this extreme and be so unknown. The saddest case I saw online was in a psychiatric journal - about a 67 year old woman with 'IBS', visual disturbances, white matter lesions, and hallucinations (all on record in later literature for gluten white matter lesions) who was told she had dementia and was just going to get worse until she died. Thank God we at least know what is happening and have hope to get better.
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#32 VioletBlue

 
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Posted 20 December 2009 - 05:55 PM

I've read some research that suggests that Gluten Ataxia presents brain lessions similar to those found in MS patients. Lessions are found in the cerebullum which is the area that controls coordination. I also found out through researching my DNA results that the gluten intolorant gene I have a double copy of is found in most people diagnosed with MS. Who knows what that means.

Ataxia basically presents as a balance issue. There is a simple test. Stand with your feet together and your arms at your side and close your eyes. People suffering from Ataxia will literally start to teeter tooter from side to side and run the risk of falling down. "Normal" people can do this without a problem.

I also have had the muscle twitching. If I'm taking all my vitamins regularly that problem seems to go away. The B complex and the magnesium seem to help the most to keep the twitching at bay. I'd say that muscle twitching is more about vitamin levels than any type of brain disorder.

I've been gluten-free since Dec 2006. I still have balance issues. But the bright side is they have not gotten worse and have possibly gotten some what better. It was the anemia that led me to an eventual Celiac Diagnosis. My levels of B, D, C, A and iron were way off. I still supplement with B, D and iron to keep those levels up. If I recall it took about six months for the twitching to stop once I started supplementing and went gluten-free.



Hello all. I'm 23 and I was diagnosed with Celiac disease 11 days ago. Both my blood work and biopsy tested positive. I haven't touched gluten since my diagnoses.

I do not have any gastrointestinal symptoms...

My primary doctor sent me to a spine and joint doctor for buzzing/tingling & twitching in my legs. She did an MRI which revealed a single white matter lesion on my brain. She suspected I had MS and referred me to a neurologist. My neurologist quickly dismissed MS and said the lesion was non-specific.

It was my neurologist who requested the blood work for celiac disease. My symptoms began with buzzing in my legs and feet which progressed to twitching and stiffness and than finally to muscle pain (mostly in calves). The twitching has since jumped around here and there, but primarily it settles in my calves.

My pain has greatly diminished and the buzzing has all but gone away, but the twitching still persists. I think the twitching has become less intense, but honestly I cannot say for sure. Also, stiffness is still there...

I am quite concerned about the twitching because my B12 (517) read within normal levels. And I understand a B12 deficiency is often the cause of twitching in Celiac patients. Seeing how the twitching is still hanging around I fear that perhaps the twitching isn't connected to my gluten allergy and may indicate something much worse. That's where the anxiety kicks in...

1. Do any of you experience muscle twitching?
2. If so, how long does it normally take for it to go away after exposure?
3. Do you have any vitamin deficiencies?
4. Is there anything I can do for treatment?

Thanks!


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"My mother always told me, it's okay to play with a man's mind
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#33 JustJust

 
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Posted 20 December 2009 - 06:26 PM

My celiac started out with all NEURO/NERVE problems....had the CT-scan for MS just like everyone else with celiac seems to have, resulting with a negative. Low Calcium can cause Muscle twitching, you need to have lab work drawn to show your vitamin and mineral deficiencies, you probably have more than one, Ferritin (iron), B12, etc.......

Justine RN
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Justine REGISTERED NURSE
DOB 1-80
Dx w/ celiac disease via Biopsy and Seurologies 08-06-07
Misdiagnosed for 10 years, MisDx on 01-07 with RSD/Complex regional pain syndrome
Anemia, Osteoporosis (bone pain), Nerve Damage, Bruising, Depression, Fatigue, Swollen Glands, Gas, Constipation

#34 JustJust

 
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Posted 20 December 2009 - 06:32 PM

I had muscle twitching before the DX and then went gluten free (strict) and now 2.5 years later the muscle twitching in the legs is back even though all my lab values are normal. I'm still going to keep taking my calcium, vit.D and multi vit and even up the dose to see if that works......(of course, you should talk to a dr. before taking doses of meds above the recommended daily value)
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Justine REGISTERED NURSE
DOB 1-80
Dx w/ celiac disease via Biopsy and Seurologies 08-06-07
Misdiagnosed for 10 years, MisDx on 01-07 with RSD/Complex regional pain syndrome
Anemia, Osteoporosis (bone pain), Nerve Damage, Bruising, Depression, Fatigue, Swollen Glands, Gas, Constipation

#35 SirSleepie

 
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Posted 22 December 2009 - 10:48 AM

So, as I understand it, Celiac Disease causes inflammation throughout your entire body. I have a lots of fluid in my joints. Lots of popping. I don't know if it is related. Does anyone take any anti-inflammatory products while detoxing? Garlic pills, ginger, turmeric, etc... Any magical elixirs I should be aware of?

Thanks.
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#36 lvtelleria

 
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Posted 24 December 2009 - 01:19 AM

I'm 26 yrs old and have not been officially diagnosed. My blood work was negative. However, I took it upon myself to test the gluten-free diet. It was my last resort! for the last 5 yrs I have had every symptom under the sun and about 3 months ago I got really sick. It was beyond my "normal symptoms" ( GI symptoms that I had learned to cope with), my body literally began to fail me. I could barely walk (extreme muscle weakness), my chest was pounding out of my chest, my muscle twitching/spasms/tingle/numbness extended from head to toe (felt like internal turrets, and my leg felt like it was going to explode -- extremely painful!) I think it scared me the most when it reached my neck and face. I felt as though a thread was tugging through every facial muscle. There were quite a few other symptoms as well including blurry vision, migraines and ear aches-- all in all I was very scared! After about a few weeks of having this dying feeling I went to the ER. "Everything is fine, just get some rest." At this point I had lost all hope! Not one doctor could "find" a thing. Shortly after the ER visit I stumble across celiac disease in my research. I couldn't believe ALL of my symptoms matched! ---- As I mentioned above, I began a gluten-free diet. Its been 2 1/2 months and I feel great! Now, by great I mean I see light at the end of the tunnel. All of my symptoms are much less severe. I am a bit frustrated because just when I think am 100% gluten-free I find another hidden source. When my symptoms flare up I have to back-track through everything I've eaten to try and uncover the culprit. On a positive note it is well worth the sacrifice and discipline. "Sleepie"-- Keep up the gluten-free diet ...you will see a difference. Some people just take longer than than other to heal.

I have a bit of a random question. I have noticed over the last year or so I have lost my ability to articulate. I used to be able to articulate myself very well and it seems as though I can't organize my thoughts or even connect my mental thoughts to my verbiage (what I actually end up saying). For example: I was having a conversation with friend. She was looking for a roommate and I told her I knew someone. She as if the person was male or female and I stumbled over my words and said " ffmmmalfemale" . She started laughing "what?! ... both? hahah" I said " NO! She's a he." I thought I had corrected myself and it turns out I made it worse every time I opened my mouth! -- This is a very specific (embarrassing) incident but I've noticed it to be a general problem lately. Is anyone else experiencing this????
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#37 Korwyn

 
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Posted 24 December 2009 - 10:17 AM

I'm 26 yrs old and have not been officially diagnosed. My blood work was negative. However, I took it upon myself to test the gluten-free diet. It was my last resort! for the last 5 yrs I have had every symptom under the sun and about 3 months ago I got really sick. It was beyond my "normal symptoms" ( GI symptoms that I had learned to cope with), my body literally began to fail me. I could barely walk (extreme muscle weakness), my chest was pounding out of my chest, my muscle twitching/spasms/tingle/numbness extended from head to toe (felt like internal turrets, and my leg felt like it was going to explode -- extremely painful!) I think it scared me the most when it reached my neck and face. I felt as though a thread was tugging through every facial muscle. There were quite a few other symptoms as well including blurry vision, migraines and ear aches-- all in all I was very scared! After about a few weeks of having this dying feeling I went to the ER. "Everything is fine, just get some rest." At this point I had lost all hope! Not one doctor could "find" a thing. Shortly after the ER visit I stumble across celiac disease in my research. I couldn't believe ALL of my symptoms matched! ---- As I mentioned above, I began a gluten-free diet. Its been 2 1/2 months and I feel great! Now, by great I mean I see light at the end of the tunnel. All of my symptoms are much less severe. I am a bit frustrated because just when I think am 100% gluten-free I find another hidden source. When my symptoms flare up I have to back-track through everything I've eaten to try and uncover the culprit. On a positive note it is well worth the sacrifice and discipline. "Sleepie"-- Keep up the gluten-free diet ...you will see a difference. Some people just take longer than than other to heal.

I have a bit of a random question. I have noticed over the last year or so I have lost my ability to articulate. I used to be able to articulate myself very well and it seems as though I can't organize my thoughts or even connect my mental thoughts to my verbiage (what I actually end up saying). For example: I was having a conversation with friend. She was looking for a roommate and I told her I knew someone. She as if the person was male or female and I stumbled over my words and said " ffmmmalfemale" . She started laughing "what?! ... both? hahah" I said " NO! She's a he." I thought I had corrected myself and it turns out I made it worse every time I opened my mouth! -- This is a very specific (embarrassing) incident but I've noticed it to be a general problem lately. Is anyone else experiencing this????


Yes, I have had similar issues. I have been gluten-free/CF/SF since April of this year (2009) and found some of this same thing happening to me. It has been somewhat scary. I think that some of it is related to the neurological component of celiac disease is being found to be far more common than thought, but I also think some of it is nutritional issues. The FDA mandates vitamin enrichment of many different foods. Probably because our mass production/processing of them strips so many out that nutritionally they are worthless otherwise. So when we cut out all these 'enriched' foods we take a huge hit in a variety of vitamins. After doing quite a bit of research I have found adding extra-virgin organic coconut oil and kelp into my diet (along with some other vitamins and supplements) has helped quite a bit. There is also a serious withdrawal for some people from gluten. Some of the research points to an opioid like effect on the brain, and when that is removed there are often some symptoms the crop up.

The neurological and CNS effects of Celiac Disease can take quite some time to resolve and heal, and there will be various ups and downs as your body goes through various phases of healing. Try and make sure you are eating as much unprocessed and preferably organic or home-grown foods and meats (untreated with hormones, pesticides, chemical fertilizers), local farm eggs, fermented foods (yogurt, kombucha, live sauerkraut), etc. This really does have a significant toxin impact on your body.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#38 gabby

 
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Posted 25 December 2009 - 03:29 AM

The first year of going gluten free I had terrible cramps in my leg muscles, the bottoms of my feet, and in my hips. At the same time I was rapidly losing weight and going through regular unintentional glutenings from foods that I didn't realize contained gluten (like flavoured potato chips, salad with the crutons picked off, etc.) After the first year, it got much better.

I still have the shakey-fiine tremor-clumsiness happen to me from time to time. This helps: measure a third of a teaspoon of baking soda and mix it into a glass of water. Stir until it is completely dissolved. Then drink it all down, fast. It is salty and doesn't taste great, but just drink it all down quickly. Follow with half a glass of water. The shaking usually stops within 20 minutes.

A doctor explained to me that the shakiness and clumsiness can sometimes be attributed to an electrolyte imbalance. The baking soda works because it restores the electrolytes.

Not sure if this will work for everyone. It is just what I do, and helps a lot.

Also, a note on tingling, clumsiness, shakiness: a neurologist explained this to me: if your symptoms occur on both sides your body, then it is probably an electrolyte imbalance. BUT if your symptoms always occur on one side of your body (i.e. you always drop things with your left hand, you always bump your left hip, your left ankle always tingles, etc) then it could be something neurological. It is worth mentioning to your doctor if the shaking/clumsiness/tremor is always on one side of the body.

Hope this all helps!
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#39 Lanie940

 
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Posted 25 December 2009 - 09:44 AM

Hello all. I'm 23 and I was diagnosed with Celiac disease 11 days ago. Both my blood work and biopsy tested positive. I haven't touched gluten since my diagnoses.

I do not have any gastrointestinal symptoms...

My primary doctor sent me to a spine and joint doctor for buzzing/tingling & twitching in my legs. She did an MRI which revealed a single white matter lesion on my brain. She suspected I had MS and referred me to a neurologist. My neurologist quickly dismissed MS and said the lesion was non-specific.

It was my neurologist who requested the blood work for celiac disease. My symptoms began with buzzing in my legs and feet which progressed to twitching and stiffness and than finally to muscle pain (mostly in calves). The twitching has since jumped around here and there, but primarily it settles in my calves.

My pain has greatly diminished and the buzzing has all but gone away, but the twitching still persists. I think the twitching has become less intense, but honestly I cannot say for sure. Also, stiffness is still there...

I am quite concerned about the twitching because my B12 (517) read within normal levels. And I understand a B12 deficiency is often the cause of twitching in Celiac patients. Seeing how the twitching is still hanging around I fear that perhaps the twitching isn't connected to my gluten allergy and may indicate something much worse. That's where the anxiety kicks in...

1. Do any of you experience muscle twitching?
2. If so, how long does it normally take for it to go away after exposure?
3. Do you have any vitamin deficiencies?
4. Is there anything I can do for treatment?

Thanks!





OK. I just spent 4 days in the hospital with numbness and muscle buzzing in my calves! I noticed the facial numbness especially around my lips and nose. I have Celiac was diagnosed early in December. My muscle/twitching issues were due to an electrolyte imbalance. My numbers were so low when I came to the ER the Dr. had never seen any that low. With Celiac you have a malabsorbsion problem and it can deplete the needed vitimins and minerals,etc I was low on calcium,magnesium, potassuim,etc so i was a wreck. The Dr.s feel it was due mostly to the electrolyte imbalance from the celiac disease process. they are checking other things also. I'm now seeing an Endogrinologist. If you have these tingling sensations call your DR. as soon as possible!
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#40 eker

 
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Posted 17 June 2010 - 08:12 AM

I would like to second Korwyn's suggestion re: kelp... even before I realized I was gluten sensitive, kelp helped a lot with both muscle twitches and foot pain, especially the kind that is worse when you wake up in morning and are just starting to walk around... which I believe is also a hypothyroid symptom, albeit a more obscure one.
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#41 Cameron322

 
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Posted 16 November 2010 - 04:45 PM

I have the same problem, recently diagnosed, But my twitches have gotten worse since going off gluten. Did yours go away yet?
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#42 TPT

 
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Posted 17 November 2010 - 04:56 AM

I have yet to be diagnosed with celiac.

For years, I have been worried that I might have MS. My right hand (I'm a righty) is the worst. I experience what to me sounds like a description of carpal tunnel. I have pain and numbness in my hand, wrist and sometimes my arm, especially at night. Sometimes I get it in my left arm as well. Always seems worse when I am using the computer a lot, do yard work, etc. I get tingling and numbness in my feet and legs as well. I get lots of muscle twitching all over, but most commonly my left eye. A few months ago, my whole belly was twitching! It looked and felt like I was pregnant!!! It seriously looked like a baby moving inside my belly.

The thing is, all this started at the same time my other (probably celiac) symptoms started. I gained weight. I started getting skin rashes, etc. etc. The puzzle is coming together.
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#43 TPT

 
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Posted 17 November 2010 - 05:03 AM

Forgot to mention until I saw else mention the same thing...I also get numbness and tingling in my face.
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#44 GuyC

 
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Posted 17 November 2010 - 09:38 AM

This string of posts is an encouragement to me. My celiac symptoms are almost all nerve related. It started when I had an ear infection. After the infection, my ear would feel like something was crawling around in it (sometimes a buzzing/tingling). Sometimes the feeling would go up into my temple as well. This was over a year ago. I read that it could be nerve damage so I just figured it was part of my life and moved on.

Then in late Jul '10, a buzzing appeared. The buzzing impacted a neck issue and shoulder issue that already exisited. The buzzing then shot down my spine and also settled into my hips. I couldn't sit still at the office. I was a mess. I felt like jumping up and running down the hall at any given moment. I felt that if you handed me a raw lightbulb, that I could power it by grabbing it. I work patrol and carry a Taser. I jokingly discussed with my wife the possiblity that she could tase me! I told her it might reset my electrical balance (for the record...no tasing occured).

Some folks said it was a nervous breakdown or just stress. I knew it wasn't because I could think clearly and stress in life was low.

Eventually, my face started burning like a sunburn (without the redness) about 30 min. after every meal. I started elimanating food and realized it was wheat. I visited my family doc in late Sep '10. When they set up a blood test, I asked her to toss in the gluten test. She questioned me but complied. A normal result was 0-3. I came back a 93. She referred me to a GI and he did the tube down my throat thingy and diagnosed me celiac.

I'm now 3 weeks gluten-free today. I'm starting to see some improvements...not big...but some. I'm excited! The buzzing is usually contained now to my shoulder area. The ear buzzing/tingling doesn't happen as often. The sunburn feeling in my face after meals has almost all gone away.

Based upon my reading here, I've started taking B12, D3 and a great gluten-free multi. I take around 1000 mcg B12 a day. Is this too much or not enough? Can you OD on B12?

Thanks again everyone for the thread.
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-Guy

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#45 yolo

 
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Posted 28 November 2010 - 03:37 AM

This string of posts is an encouragement to me. My celiac symptoms are almost all nerve related. It started when I had an ear infection. After the infection, my ear would feel like something was crawling around in it (sometimes a buzzing/tingling). Sometimes the feeling would go up into my temple as well. This was over a year ago. I read that it could be nerve damage so I just figured it was part of my life and moved on.

Then in late Jul '10, a buzzing appeared. The buzzing impacted a neck issue and shoulder issue that already exisited. The buzzing then shot down my spine and also settled into my hips. I couldn't sit still at the office. I was a mess. I felt like jumping up and running down the hall at any given moment. I felt that if you handed me a raw lightbulb, that I could power it by grabbing it. I work patrol and carry a Taser. I jokingly discussed with my wife the possiblity that she could tase me! I told her it might reset my electrical balance (for the record...no tasing occured).

Some folks said it was a nervous breakdown or just stress. I knew it wasn't because I could think clearly and stress in life was low.

Eventually, my face started burning like a sunburn (without the redness) about 30 min. after every meal. I started elimanating food and realized it was wheat. I visited my family doc in late Sep '10. When they set up a blood test, I asked her to toss in the gluten test. She questioned me but complied. A normal result was 0-3. I came back a 93. She referred me to a GI and he did the tube down my throat thingy and diagnosed me celiac.

I'm now 3 weeks gluten-free today. I'm starting to see some improvements...not big...but some. I'm excited! The buzzing is usually contained now to my shoulder area. The ear buzzing/tingling doesn't happen as often. The sunburn feeling in my face after meals has almost all gone away.

Based upon my reading here, I've started taking B12, D3 and a great gluten-free multi. I take around 1000 mcg B12 a day. Is this too much or not enough? Can you OD on B12?

Thanks again everyone for the thread.


Hi GuyC,

I take co-enzyme B vitamins since they are more easily absorpable--in a complex so they are balanced. I don't know about the amount to take of the sublingual B12.

However, I have just discovered that coconut oil also causes neurological symptoms for me--including sciatic nerve pain and lumps on (an old injury site) the top bones of my hips. It makes it nearly impossible to sleep--like tonight. I finally figured out I got a bit of coconut oil from snacking some gluten-free pancake my boyfriend cooked earlier today.

Allergies to other things like potatoes/tomatoes/peppers, ascorbic acid and fruit also causes eczema and nerve twitching for me.

Fortunately for me I now seem to have no adverse reaction to eating brown rice after I have thoroughly washed it--and even eggs, which I long considered a no no since they used to give me migraines. I could not eat these things at all however without a bad reaction as long as I was also eating other offending items like lemons and peppers.

So, I suggest being a bit of a sleuth to figure what does or does not bother you. Am hoping for you that the simple anti gluten diet does it, however for many of us it is more complicated than that.

Bea
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!




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