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Glutened By Amy's?
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This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

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Trina,

Yes, Amy's got me too. :o It was some time ago. I had a delayed response and the room was spinning for 6 hours. I'm never touching anything by that company again.

Susan

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This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

Trina, there can be hidden sources of gluten in amy's products. I know from reasearch and from personal experience with other products. If you can get a copy you need to read a book called dangerous grains. It explains about hidden sources of gluten

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This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

My G.I. warned me about Amy's, his wife and son are celiac and he said they had issue's with Amy's.

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I can count on Amy's to make me sick every time. So now I don't buy the products. I despise the ccompany.

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I stopped eating Amy's after my first year with the disease (I'm on year 6)...it never failed that every time I ate it I'd get sick. While I appreciate their effort to be "gluten-free"...it still makes me wonder what it is making so many people still sick!

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I ate some Amy's gluten-free dinners also and was itchy. But my ankles were swollen also, so I though it was too much salt in them.

I heard that Trader Joes carries some dinners that are made by amy's, don't know if it is true.

No more Amy's for me, too expensive, I only bought them because they were on sale.

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I had a severe reaction immediately after ingesting their products. So yes, I agree - definitely something in those meals!

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Yes, Amy's stuff also makes me not feel good. It's been ages but I remember being glutened by them a long time ago. I stay away from ANY processed foods now.

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Yes I have been glutened twice by Amys frozen dinners, It's a shame because they are something quick and tasty to eat. I am not buying them anymore. :(

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Just thought I would chime in to say that I do not get sick from Amy's food BUT I have never really eaten the ones that say "no gluten ingredients." Plus, I also only eat the dairy-free ones.

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In the past, I have reacted to Amy's. I contacted them and they were incredibly great to deal with. They sent a sample off to the lab at the University of Nebraska for me to be tested from a batch I reacted to. It came back at 33 ppm.

I now eat their rice crust pizza because it is never a problem for me.

You may react to their products, but at least they are one of the honest, upfront companies that discloses ALL their ingredients and manufacturing processes. The products labeled "no gluten ingredients" do not have gluten but any processed food is subject to CC.

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My son reacted to their rice pizza once. I called them and it had been tested to contain less than 5 ppm gluten. I was disappointed to find out that my son is so sensitive to trace levels of gluten.

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This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

It's not just you. My friend has the same problem with Amy's. It sucks because they really have some great stuff.

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Trina,

Yes, Amy's got me too. :o It was some time ago. I had a delayed response and the room was spinning for 6 hours. I'm never touching anything by that company again.

Susan

That's it. I am going to write the company. I think we all should. This is not OK. If they want to say in business, They need all of us. If they start to lose the people who use celiac.com Then they are losing a large part of there customer base.

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Thanks so much for the help, all of you are great. It makes me realize I'm not alone. :D

I think for me the part that bothers me the most is that the labeling (to me) is misleading. I fell like they are purposly trying to mislead you by the way they word it. I don't know about ya'll but it is like gambling, will I get sick, maybe, maybe not. I'm not into rolling the dice!!

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I roll the dice every time I eat anything processed. How does gluten free mean up to 20 ppm gluten?

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I think under 20 ppm is impossible to detect via current testing methods.

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I heard that Trader Joes carries some dinners that are made by amy's, don't know if it is true.

I have bought Trader Joe's Rice Pasta and Cheese (I think thats the name of it), when I looked at the Powdered cheese envelope, I noticed it was stamped for Amy's product. Course I didn't look until too late. I ended up with the same reaction that I did for the same product with the Amy's label so I don't buy either of those products anymore.

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I get sick everytime I eat Amys Gluten Free Frozen lunch/dinner and the Soup!!!! I get really nauseous for a couple hours.

I am Gluten free since April but had some issues in August from that took a while to recover from. I was thinking I was getting sick from Amy's b/c my stomach probably isnt healed yet and it couldnt handle anything "processed" b/c AMys is the only pre-prepared meals I eat.

Amy's was my "emergency" food (when I forgot to make my lunch or too late to cook dinner), but if you all are saying it is gluten then I wont buy from them anymore. Its not about just being nauseous its about healing my stomach. .......sneaky.

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I like the enchilada meal (the dairy free one) and haven't had a problem. Perhaps there are certain ones that are riskier than others.

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I haven't noticed a reaction either, but I was only eating the frozen mac & cheese. I really liked it! Now I'm afraid to eat it. I definitely won't try the others now. That's really too bad so many people are having a reaction. There must be some gluten in them. I guess gluten free doesn't mean "gluten free." That's just crazy! I do think we should all write and call the company. That's just putting people's health at risk!

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I guess I'll consider myself one of the lucky ones. I have never had a problem with any of Amy's products. I do only eat the gluten-free and non-dairy ones, maybe that has something to do with it?

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I have been gluten free for more than three years now. Early on I found I had reactions to Amy's and decided to stay away from them. I have a tiny variety of foods that I eat every day, a gluten free kitchen, and as many of you, over a long process of elimination (including never eating at restaurants, or anything that anyone else made), I have not been sick in almost a year, until this week. Over the past two years I probably have been sick only a couple of times.

Over the past couple of months I started eating Amy's again, only the gluten free, dairy free Mexican dishes -- and yesterday I was sick. I think I had a few stomach pangs after eating Amy's over the past couple of months' however, I did not get sick, but yesterday knocked me out and today I am feeling iffy. I am wondering if I have been having mild reactions to Amy's, since I have been so good for so long, and the last meal caught me- I made it up and over into the bad reaction threshold.

It really does concern me that when I am feeling good for so long that I may be slowly poisoning myself with Amy's foods. I will not purchase any more of those convenient meals. I am going to stick with my instincts when it comes to certain foods.

Merry Christmas- Happy Holidays to all!

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I think under 20 ppm is impossible to detect via current testing methods.

When I contacted Amy's to tell them that their rice pizza has glutened my son, they told me that it had been tested to contain less than 5 ppm gluten. The tests that they use test to 5 ppm. That is under 20 ppm. Crispy Green told me by e-mail that they test to 5 ppm, and Tropical Source on label says that they test to 5 ppm. The New Grist beer company told me by e-mail that they have their beer tested to 5 ppm at the University of Nebraska.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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