Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What Does A Lab Result Of "barely Positive" Mean?


itsallgood

Recommended Posts

itsallgood Rookie

My 11 year old was recently tested (all 5 screens) as requested by me. Dr. said his "ratio" was barely positive, and that the lab ratio was 1 to 5. His was 1 to 10. What does this mean??

I keep leaving messages to ask what particular test was positive and their messages back are always too general, so I don't know exactly which screen it was.

When I first learned of it, the nurse called and said result was 34 and the top of the range was 30. I will call them today and ask for them to give me exact numbers for all 5 screens.

Does anyone have any advice about what to ask them? They seem reluctant to say it's an indicator of Celiac. BTW, his symptoms are more mood oriented and he sleeps for hours after school and still needs sleep through the night. He's been diagnosed with anxiety and ADD. I went ahead and put him on gluten-free diet three weeks ago. He slipped one day when he forgot his cold lunch and looked like he'd been hit by a truck for 2 days. After all I've read from you folks, it seems silly NOT to keep him on the diet. The doctor said "I'm not sure that's the way to go." I declined a referral to a gastro. I figured why subject him to a biopsy when the only treatment is gluten-free diet?

Worthy of note: his 15 yr old brother recently tested negative after 3 years of fatigue and nausea, and is a year and a half into being diagnosed with type 1 diabetes. We put him on gluten-free diet anyway and it is miraculous!!! He says he hasn't felt better in three years.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie

I can't answer as to what more you need to ask in terms of the tests (besides asking for the printout of the lab results). But I have to scratch my head a bit on the "barely positive" answer you've already received. Is that like being "barely pregnant"? ;)

I guess that I interpret such results as the disease has been caught early....before a lot of damage has been incurred. And I have to question any doctor who would look at those results and then state that they "aren't sure that's the way to go" as far as beginning a gluten-free diet. The diet cannot harm your child. Not adhering to it when tests are indicating a problem....well that, to me, is ignoring the elephant that's trying to squeeze its way into the room. Does the elephant really have to be already inside the room before it will be recognized? What if it stays in the corner? Do we ignore it then as well?

You may want to push the doctor into giving his/her reasons why this "isn't the way to go". What else could these test results indicate? If there could be another health issue at work, then what needs to be done to rule it out or in? Or is this a canned answer given to everyone who tests positive prior to a biopsy being performed to further confirm? Is it a standard CYA response?

I think you may be dealing more with procedural policy as opposed to diagnosis. Asking the doctor why he/she is hesitant to diagnose will probably yield more insight as to what the tests are truly indicating. HTH

Link to comment
Share on other sites
Ahorsesoul Enthusiast
"barely positive" answer you've already received. Is that like being "barely pregnant"?

Exactly. It isn't so bad it's showing damage yet.

Link to comment
Share on other sites
lovegrov Collaborator

In my book, "barely positive" and a good response to the diet equals celiac. BTW, you have a right to a copy of those test numbers. You paid for it.

richard

Link to comment
Share on other sites
Xina Newbie

Also agree. Request a copy of the numbers and I know you don't want to put him through tests, but the best kind of doctor to correctly diagnose is a gastroenterologist and the only way to confirm is an endoscopy. You can also do a genetic test to confirm, but genetic alone si not conclusive.

If he is IgA deficient the initial testing will give you a FALSE Negative result. Something to consider.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,181
    • Most Online (within 30 mins)
      7,748

    KarolRmz
    Newest Member
    KarolRmz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
×
×
  • Create New...