Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Blood Tests


MJS

Recommended Posts

MJS Rookie

Hey all,

I just started college this fall. I go to Johns Hopkins and all freshmen are required to buy a (really expensive) meal plan. Since I am spending so much on it, I try to eat almost everything at the dining hall.

However, I feel like I am getting a lot of cross contamination by eating there. They keep rice waffles and rice bread for me, but I have to use the same toaster as everyone else, as well as the same ingredients for my sandwiches (lunch meat, cheese, veggies, etc.). I know that the Boar's Head meat and cheeses are gluten-free. I try to only eat things that I know what's in them (fresh fruit, veggies, plain rice), but it would not be hard for stray crumbs or flower to make their way over.

I just feel generally crappy a lot of the time.I get some similar bloating and stomach pains that I used to before my diagnosis, only not as intense.

I also have never lived in a fully gluten-free home. My mother didn't really believe that even a little bit of gluten could make me sick, and so she never got me separate butter dishes, toaster, etc. But I did feel a lot better when I lived at home and cooked all my own food.

What I want to know is, is there a blood test that I can get to measure my gluten levels? I want to know if what I am eating is making me sick, or if something else is going on.

Do I need to see a doctor to get this figured out? Can I get the blood test without a doctor's visit? Last year I "graduated" from my pediatric gastroenterologist - they said that I only needed to come back if I had any complications. But that doctor is back home.

Any help would be greatly appreciated!

Maya

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jean'sBrainonGluten Newbie

There are blood tests to see if your immune system is being stimulated by gluten exposure. They talk about them in the testing forum but basically they are

Antiendomysial antibody (IgA EMA)

Antigliadin antibody (AGA-IgA and AGA-IGG)

Tissue transglutaminase (tTG-IgA and tTg-IgG)

Total serum IgA

There's probably a student health clinic of some sort there. You might go to them and explain your prior diagnosis and current symptoms and see if they're willing to do the blood work.

Enterolab has stool and mouth swab tests you can do on your own for a few hundred dollars depending on which tests you do.

Hope this helps and you can get better soon.

Link to comment
Share on other sites
JillianLindsay Enthusiast

Maya dear, you are definitely getting cc if you are sharing a toaster. I am sorry you are having to deal with this :(

You didn't ask this directly, but I feel a responsibility to mention that you should be medically exempt from your school's meal plan :)

https://www.celiac.com/gluten-free/index.ph...=discrimination

Open Original Shared Link

Jillian

Hey all,

I just started college this fall. I go to Johns Hopkins and all freshmen are required to buy a (really expensive) meal plan. Since I am spending so much on it, I try to eat almost everything at the dining hall.

However, I feel like I am getting a lot of cross contamination by eating there. They keep rice waffles and rice bread for me, but I have to use the same toaster as everyone else, as well as the same ingredients for my sandwiches (lunch meat, cheese, veggies, etc.). I know that the Boar's Head meat and cheeses are gluten-free. I try to only eat things that I know what's in them (fresh fruit, veggies, plain rice), but it would not be hard for stray crumbs or flower to make their way over.

I just feel generally crappy a lot of the time.I get some similar bloating and stomach pains that I used to before my diagnosis, only not as intense.

I also have never lived in a fully gluten-free home. My mother didn't really believe that even a little bit of gluten could make me sick, and so she never got me separate butter dishes, toaster, etc. But I did feel a lot better when I lived at home and cooked all my own food.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,089
    • Most Online (within 30 mins)
      7,748

    AnaRRR
    Newest Member
    AnaRRR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
×
×
  • Create New...